Tag: hope

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Never Take Today For Granted

To say that the last few days have been anything but wonderful, would be an understatement. Nothing as changed in my life that would trigger a flare up of my anxiety and depression. It just happens, I have no control over my illness when it decides to control my mind and body.

Yes, I did say, ‘mind and body’. This illness affects every aspect of your life, and some days leaving you crippled and disabled. Confined to the most inner core of your brain and leaving your body paralyzed as it were and difficult to move. Trying desperately to move and fight this war within. When on your very bad days you just want to give up, lie down and sleep away your emotional pain. But I cannot always do that, my anxiety makes it very difficult to relax even enough to fall to sleep. When my eyes open to the morning light, I cannot just lie there and enjoy the warmth and comfort of my bed, my thoughts would run away with me; so in order to not over think things, I have to get up and move. Staying there in my cozy bed would only exasperate my symptoms and make me feel worse. Getting up and moving is the best thing I could do for myself and everyone around me.

Hobbies certainly help in the control of my illness. But when I am really low, hobbies are the last thing I want to do. Sometimes I have to give myself permission to just take a break from it all. But I can’t let this break last too long because if I did nothing for extended periods of time, it would only increase my depression and anxiety. So I have to give myself a little pep talk, then a kick and try as best I can to get back on track. None of which comes easy for someone with a mental illness but life is not always about being easy.  The mental fatigue that comes with this disorder drains you of any physical energy that you may have, thus leaving you depleted and exhausted.

Life’s everyday responsibilities and demands put so much pressure on us to perform. Even for someone that is well; that can get overwhelming. But for someone struggling day in and day out with a mental disorder, it can seem impossible to do. So I can only do what I can and no more. I have learned how to say, ‘no’ and I know my limitations. My first priority is my family and I try desperately to be the best father and husband that I can be, in spite of my limitations and I know there are times I fail but I do give all that I have and sometimes because of my illness, that is just not enough. But I have to accept that I can do no more then what my mind and body allows. When you do your best, with what you have, you can do no more.

Today I pray will be a better day, I never give up on hope. And when I do get a good day, I give it all I got and enjoy it to it’s fullest. Because we never know what tomorrow is going to bring. Never take today for granted because our lives can change in a moment.

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The Search For The True Me

Please click on the link below or copy and paste in your URL to read another sad story of a young pastor  who lost his life by suicide. https://www.facebook.com/566080522/posts/10160895596230523/

I cannot stop from exposing mental illness, the urgency and desperation that is felt throughout the world, is ever rising. Never before have we lived in a world/society that is so highly stressed; the expectations that are placed upon individuals are overwhelming, the pressure to be the perfect husband, father, wife, mother, professional and provider are just beyond being realistic. We live in a fantasy environment, where we have unrealistic goals set for ourselves by society. WE have sat ourselves up for failure. We are not perfect and we do not live a perfect life, so lets stop pretending! The facebook cookie cutter lifestyle is the pressure cooker for developing poor mental health and self worth. Where will it all end?

Sadly, many who feel they cannot cope with the expectations of  society, the pressures of life and mental illness; turn to desperate measures; drug abuse,  alcohol abuse, suicide and  anything that will kill the hurt and heal the pain. And we wonder why we have a drug problem on our hands, we need not wonder. Our need and drive to be happy, for some can only be found outside themselves. If we are looking and searching outwardly we are setting ourselves up for a big let down. Happiness cannot be found in anything outside ourselves.

But how do we find happiness within ourselves; when all we feel is sadness, emptiness, loneliness, worthlessness and the list can goes on? To begin with; we are not our thoughts or another way of looking at it is, we are not our minds. There is more to me then my mind and my thoughts. I am a being, a living soul, a spiritual being. That part of our being that exist deep, deep down inside us. It’s not an organ of the body but its our Being. Because a thought enters my mind, doesn’t necessarily mean that it is real or true. Many times our thought are distorted and untrue; so we cannot always listen to our thoughts and let them define us.

We find happiness within us by releasing our past, letting it go; no matter how painful. If we hold onto the past we will never heal, we will never move forward. Letting go basically means giving it over to a spiritual power, someone bigger, someone all knowing. Letting Him bear the weight. We don’t have to carry it anymore. 1 Peter 5:7 says, ‘Cast all your cares on Him because He cares for you.’ And when we do, it’s like a heavy load that we’ve been carrying is lifted.                                                                                                                                                                         Not only do we need to release the past but we also have to give Him(God)  our future. We have no control over what the future holds but we can trust that He will take care of that for us as well. Surrendering our past and future to Him doesn’t come easily or instantaneously; it will take time and practice. We have to learn to trust in Him and all will be well. Matthew 6:25 says, ‘Take no thought for tomorrow(don’t worry); for tomorrow shall take thought for the things of itself.’ Once we learn to surrender both past and future to Him, then our mental health and spiritual health will flourish.

The greatest lesson I’ve learned in regarding my mental health is, living in the moment, some call it mindfulness. The moment is all we have, the past is gone and the future is not ours to own. This requires taking control of our thoughts; our thoughts will travel both to the past and to the future. But it’s here we have the power within ourselves to control these thoughts. When we travel in either direction we have to bring our thoughts back to the moment; to the here and now. It’s in this moment we will find peace, happiness, joy and contentment; no matter what our past and no matter what the future, we can find happiness right in this moment.

So if you are hurting today, if you are tired from trying to be okay, if life’s expectations have become overwhelming, if you feel you just don’t measure up, if you have an addiction that is out of control and destroying your life, if your past is too painful to go on and your future seems hopeless; don’t give up!  I don’t claim to have all the answers, I don’t, but I do know that with time and God; you can do this. Believe in yourself, you are worth it! I won’t pretend this will be an easy road but you are not alone.

Each of us were put here for a reason, there is a purpose and we will find it. Mine did not come with twenty- eight years of being a business owner but mine came with a lifetime of suffering with a mental illness (major depression and anxiety). Being a business owner was not my purpose in life, it was my job, it did not define who I was on the inside. But now I feel my purpose is to tell others that they can survive and live with a mental illness because I am living proof. I can speak from my heart, from my soul, from my innermost being because I have lived the horror and I can tell you there is hope, there is happiness, there is joy; in spite of it all.

This is an amazing song that  has brought  me much hope!  May you find encouragement, hope and strength in the words and music!

 

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I Have Tried Everything

I remember getting to a point in my illness when I felt I had tried ‘everything’ and I still wasn’t better. I had done months of therapy, counselling, I had tried every antidepressant, anti psychotic, every cocktail of medications, shock therapy and yet I found no miracle working relief from my ever emerging symptoms of my illness. Because of this, much panic, hopelessness and fear of not escaping this hell sat in. I felt I was at a dead end and my hope was depleting.

So the statement; ‘I have tried everything and nothing works’ in fact may be true to some extent but in another, is not. When you do get to this point, you still haven’t tried ‘everything’, you may think you have but no you haven’t! You have to consciously make the decision everyday to fight for you, you still have ‘you’, you cannot give up on you. But ‘YOU’ have to do it; no one else on this earth can do it for you. You have the power and strength within you to do it. Where this inner strength comes from I believe is from God; our creator, He who knit us in our Mother’s womb, He who knew the plans He has for us, even before we were born. He who said, ‘I will never leave you or forsake you.’

Yes, everyday is still a struggle; there are days when I feel so all alone, tired from the fight but I have to be determined to not give up. Though some days my mind tells me that life is not worth it anymore, I cannot listen. I will find the strength within me and God is there somewhere, even when I don’t feel Him. So when those days overwhelm me and I feel I have tried everything and nothing works; I have to remember how far I ‘have’ come and remember that I will come out on top, stronger in the end.

I will no longer look at myself as a victim but as a conqueror. It’s the fight that makes me stronger. Yes this illness is looked upon so differently then any other illness. If I had cancer, kidney failure, heart disease, diabetes, etc. all of which are looked upon with concern, support and compassion (and so they should be). But because it’s a mental illness, many, not all, look at you in a different light, really so much so that you are looked upon as being defected. They look at you as if you are a different person; and yes I agree that the illness does change you but it’s not your fault nor is it mine. I hate this illness for all it as done to me but I am coming back; all in time. It’s so difficult for friends and even family to sometimes understand what’s going on because of our mental illness. But educating themselves is the best defense against misunderstanding our behavior and separating themselves from us, when in reality there as never been a time when we needed them more.

Today I realize we all struggle with something; whether that being a sickness, addiction, lost, marriage struggles, loneliness and hurts. But I also realize today that if we feel that we have tried it all and nothing works. Then I am here to tell you (and to remind myself) we still have hope, hope in God, hope in ourselves. It may not be an easy road but it’s a one that leads to hope, light and a one that we are not walking alone. When we loose faith in God and ourselves, it’s then we have nothing left; we have no hope. So let’s keep hope alive and never give up! 

 

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Rainy Days

The morning clouds my foggy mind. I grasp for the light, I reach from within to find just a glimmer. My depression consumes the light, darkness overpowers my thoughts, But it will not win, I am strong, courageous and a fighter, this illness will not conquer me, though some days it feels like it just might. Fierce might be the battle from within, but peace will come because I am in control.

The pain I feel from inside is not a sharp, shooting pain, as if I cut my finger; but a sad , empty, lonely, searching pain. I’m desperately seeking an escape; an escape that will lead to peace, calm and happiness. To find a place where I don’t have to fight anymore, the fight has left me tired, I just don’t want to fight anymore. The battle as left me exhausted and drained, to a point where I have little of anything left to live with, my fuel tank is running on empty it seems.

Depression is an illness that is looked upon so lightly. The illness carries with it so much undeserved stigma, shame and misunderstanding. And this is why so many sufferers do so in silence and all alone; they feel they can’t tell others or seek help because that would mean they are weak and flawed. But that is so far from the truth, we have nothing to be ashamed of,  we have an illness that requires treatment and support. So forget the stigma and myths of this illness and talk about the way you feel and seek medical help; there is no shame in that!

I am reminded again this week as the news declares two more deaths by suicide of two very prominent, rich, successful icons. Both of these people, had it all, but both suffered from depression. Their illness killed them and their lifestyle and material possessions could not save them. They were consumed with that inner pain, that they could not escape and were forced to end the pain the only way they knew how. Tired of the battlefield in their minds; now no more fighting, no more war.

I began writing this blog very early in the morning, when I was alone with my thoughts. My thoughts can lead me into very ugly, dark and hopeless places. But when they do, I refocus; I deter my thoughts to a more quieter, calm and bearable place.

It was then my thoughts reminded me I had to mow the lawn, now when I say lawn I mean practically a football field (in my mind that’s what I see). So I give myself a kick and off I go to mow the football field. No sooner then I began, it started to rain. So I weighed the pros and cons and make my decision to keep mowing the grass. Now some would call that stubbornness but I call it determination. I think it makes for a great analogy of my battle with depression and anxiety. I could have easily given in, if I went by my feelings, but I knew if I did my lawn would be overgrown and would not get done. So here I am in the pouring rain mowing my football field; call it stupidity if you like.

But here I am two hours later, soaked to the skin; but my lawn is done. If I had given up because of the rain, it would not have gotten done. So it is with depression, I have days when the ‘rain’ is pouring down, and I could get so discouraged, I could just give up. But let me encourage you and myself to never give up, no matter how hard it rains. Because eventually the rain will stop, if we just wait. The sun will shine again and the ironic thing is, it does.

I want to encourage those who are reading this and you feel you have had your share of rainy days. Trust me, it won’t rain always, right now it might feel it won’t stop but hang in there, the sun is sure to shine. I have my share of rainy days and sometimes there’s no end in sight but I have to hold on to my faith and my hope and believe that the sun will shine again!

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A Day In The Life of My Mental Illness

 

 

 

 

 

I am so sick and tired of mental illness! I hate it! And I’m sure you must be tired of reading about my mental illness. Why do I do this? Why do I feel the need to blog? Why can’t someone else who’s probably a better writer, more qualified, more gifted, take up the torch. This week as been rough (what else is new lol); I took up my pen several times to write something. But there was nothing, I felt numb, blank, empty, nothing left to give, nothing left to share. The battle with my illness had left me powerless and speechless. I had nothing left to share that could possibly help someone else, I felt I needed someone to help me.

You see when you have been given a diagnoses such has mine, it is something that’s not going away; there is no cure. Just like cancer (and I am not comparing, they are two totally different illnesses) but in some ways they are alike. My ‘cancer’ as killed and destroyed who I am, it eats away at your soul, your self, your being and your will. It leaves you with the haunting fear of a relapse.

So this past week as awakened my somewhat sleeping monster. Before my eyes are opened to face the day; my mind is busy with crippling nightmares. Nightmares of being on a locked down unit on an hospital ward, not a prison ward. A prisoner not a patient. I will forever be traumatized by those evil days of hospitalization. Traumatized by the reality of knowing that I am treatment resistant and I have exhausted all available treatments. My dreams will not let me forget this mesmerizing reality. Then there’s the memories (of what memory I have left of that time) of ECT. In my dreams I’m awakened before the treatment is complete and I’m strapped to the bed and no one will free me. Then morning comes and I realize I’m safe, safe from my dreams but never safe from my reality.

I have to take control of my thoughts as soon as my eyes are open, if not, they could easily spiral out of control to a point of being extremely overwhelmed and panic could easily take over. But thankfully I am still able, to some extent, control my own thoughts. With a mental illness there are not just the mental symptoms but also the physical symptoms. There are times when panic attacks (and thankfully right now are pretty much under control) but I still experience related symptoms such as an extreme rise in body temperature and feelings of mild fear and panic. It’s my goal to keep them from escalating into a full blown panic attack; which I never want to experience again. So I start my day as if every things okay.

All day, every day, my physical body feels triple it’s weight, there’s an heaviness that never goes away. It may fluctuate but never leaves. Then there’s the rising tides of emotion that you just want to cry. Most times you don’t even know why; you just do.  Then you don’t  want to start because if you do, it just won’t stop. But sometimes I believe your emotions can be used for your good; a form of release. To admit this makes me feel weak but the truth is; God gave us emotions for a reason. Many times in the Bible, Jesus is recorded as being emotional; ‘Jesus wept.’ If Jesus can cry, and He’s the Son of God; then so can I. Because someone doesn’t shed tears, doesn’t make them any stronger then someone who does ( but if the truth were known; everyone cries). I remember my Dad being a very emotional man, especially when he talked of spiritual things and the faithfulness of God. And because of that I respect him, and admire his compassion for others; he had a big heart that made him a very strong, wise and gentle man. I hope to be just half the man he was, he left me with a great legacy that I hope I will live up to and make him proud. And when we meet again, I hope he can look at me and say, ‘See, I told you, you could do it’. But right now, today, I feel I can’t do it. But I will, somehow find my way.

By the time half my day is done; fatigue sets in, not just tired but exhausted. I fight it as long as I can but there are times when I just give in and have no choice but take a nap. And of course that makes me feel guilty, I’m not suppose to sleep in the middle of the day. But sometimes I just have to listen to my body and rest.

It’s my prayer everyday to just be able to have a day when I feel free and not be held captive by my mind. To just enjoy life, my wife and children without being dictated by my mind of what I can or cannot do. I get angry, angry at myself, angry at not being able to rid myself of this illness. I just want to live, not just to survive.

Not everyone who has a mental illness experience what I am experiencing. Every person is different and their journey may not be at all comparable to mine. If you are reading this and you experience a mental illness (mine being Major Depression and Anxiety Disorder), I hope that you cannot relate to what I am saying because I would not want to wish this on my worse enemy (I hope I have no enemies). I may be treatment resistant but that doesn’t mean that you are or will be. I pray that you will respond to your treatment successfully and are able to live a normal, functioning life. And although I may not be responding well to treatment, I am responding to a certain extent; just not to the point where I would like to be. But I will not give up hope, I will fight to the end!

 

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Hope In An Hopeless Situation

                                                         The days turn into months, the months into years and yet here I am still searching for that escape to freedom. Freedom from my own mind. My brain still captured and in bondage of that thing I call Depression. Some weeks seem like freedom is in sight, then that darkness overshadows me again. Giving up would be so easy to do, but where would that get me? So everyday I fight for my life and maybe just one day my fight will end  and my miracle will come. I sat in my doctors office just this week, drowning in a pool of tears;’ I’m just exhausted and tired of fighting’. As he looked helplessly into my dying eyes. My eyes told a story that never could be written. But hope is what keeps me alive, what keeps me moving, what pushes me to never give up.

After 2-3 years of trying practically every type of antidepressant and anti-anxiety medication on the market, every cocktail of drugs, psychotherapy, mindfulness therapy, talk therapy, acupuncture, inpatient assessments, a two month outpatient program at St. Clares Hospital, ECT- Electro Convulsive Therapy and I’m sure the list can go on. It was FINALLY decided that I was treatment resistant; no form of therapy was working. Is there any wonder I could become discouraged and lose hope? But despite everything, I make  the best of every day and try to live above my illness and circumstances.

I still believe that somehow, I am going to overcome this horrible existence that this illness as brought upon me. Treatment resistant or not, I am going to beat this! ‘I will look to the hills from whence cometh my help, my help comes from the Lord who made the Heavens and the Earth’. Its in those moments when I feel I can’t go on, when I have nothing left to fight with; that I have no choices left but to turn to God. It’s those times I find  hope, strength, peace and courage to go on. Many times over the pass few years I had to say, ‘Jesus take the Wheel’ (a song by Carrie Underwood). I can’t do this anymore, Jesus you take my wheel!

Just this week, I was at a very desperate place, a very dark place. I decided to do a little research of my own and see if there was something I was missing; I came across an article (two really, one pertaining to the other) that looked really interesting and hopeful, it was called Trans Cranial Magnetic Stimulation. Then of course I realized it wasn’t available in NL….surprise! But I thought that maybe I would share it with you and make this treatment more aware. And maybe one day, it could become available here; now that’s faith. Check it out:

 

This article was published by The Mayo Clinic, describing the treatment:

Transcranial magnetic stimulation
Overview
Transcranial magnetic stimulation (TMS) is a noninvasive procedure that uses magnetic fields to stimulate nerve cells in the brain to improve symptoms of depression. TMS is typically used when other depression treatments haven’t been effective.
How it works
During a TMS session, an electromagnetic coil is placed against your scalp near your forehead. The electromagnet painlessly delivers a magnetic pulse that stimulates nerve cells in the region of your brain involved in mood control and depression. And it may activate regions of the brain that have decreased activity in people with depression.
Though the biology of why rTMS works isn’t completely understood, the stimulation appears to affect how this part of the brain is working, which in turn seems to ease depression symptoms and improve mood.
Treatment for depression involves delivering repetitive magnetic pulses, so it’s called repetitive TMS or rTMS.
Mayo Clinic’s approach
Why it’s done
Depression is a treatable condition, but for some people, standard treatments aren’t effective. Repetitive transcranial magnetic stimulation (rTMS) is typically used when standard treatments such as medications and talk therapy (psychotherapy) don’t work.
Risks
Repetitive transcranial magnetic stimulation (rTMS) is a noninvasive form of brain stimulation used for depression. Unlike vagus nerve stimulation or deep brain stimulation, rTMS does not require surgery or implantation of electrodes. And, unlike electroconvulsive therapy (ECT), rTMS doesn’t cause seizures or require sedation with anesthesia.

This article was published a few years ago but obviously nothing was ever done about it:

New depression therapy should be covered in N.L. say doctor, retired nurse
CBC News
December 11, 2015

Trudy Bradbury says her depression was successfully treated with drugs, but many others are not as lucky. (CBC)

A retired nurse from St. John’s and a doctor in Toronto are arguing that a new treatment for depression should be covered by the medical care plan in Newfoundland and Labrador.

“I would ask them to please have a look at this treatment because so many lives depend on it,” said Trudy Bradbury, who worked as a nurse for 34 years, and suffered from depression herself.

“I know how it feels. I experienced it 13 years ago,” said Bradbury.

“I was one of the lucky ones. I responded to medication and was able to return to work within a few weeks.”

She said about one-third of people with depression do not respond to drugs, and now she’s asking the provincial government to pay for a different kind of therapy.

Repetitive transcranial magnetic stimulation (RTMS) is a treatment that was approved by Health Canada in 2002, and is already covered in Quebec and Saskatchewan.

Re-setting the circuits

Dr. Jonathan Downar, a Toronto psychiatrist who specializes in brain stimulation, said RTMS is effective, with two out of every three patients showing complete or partial improvement.

“It’s a technology that was developed in the 1980s and 90s, where you can stimulate the brain without having to open anything up. So it uses a powerful focused magnetic field to directly activate the neurons of the brain,” he said.

The treatment works by stimulating neurons in the brain. (CBC)
​Downar, who offers RTMS at a private clinic in Toronto, says the treatment costs between $1,500 and $3,000, with patients needing 20 to 30 daily sessions.

“RTMS, it’s like exercise, it isn’t like surgery,” said Downar.

“So when you apply the stimulations, it’s like re-setting the circuits. It’s like when you re-set your watch, after a few months it will gradually creep back to the way it was again.”

Patients need occasional booster sessions, he said, but with proper treatment can stay well for a long time.

“My message to the Newfoundland government is please focus on the new technology that’s out there,” said Trudy Bradbury, who is motivated now by the depression of someone close to her.

She said the cost of running a treatment program in this province, and covering it under MCP is worth it, because patients will be able to go back to work, and lead productive lives.

It’s also an alternative to electroconvulsive (shock) therapy, which has side effects like the loss of short-term memory.

Cost vs benefit

Jonathan Downar said the cost of RTMS is coming down, with research on how to shorten treatments.

He also said it also provides access to care within weeks of being diagnosed with a mental illness.

Jonathan Downar is a Toronto doctor who says the long wait list for one-on-one psychotherapy means other treatments have to be offered. (CBC)
“We will never have enough psychotherapists do one-on-one therapy for patients,” he said.

“So we have to figure out a way to use our existing supply of physicians and other mental health workers to see larger numbers of people, while preserving quality treatment … to provide good psychiatric care for everybody who needs it, not just for the lucky ones who make it through the wait lists.”

Post-traumatic stress disorders and other conditions could also be treated with RTMS, said Downar.

“It’s being explored for addiction to tobacco and to alcohol and to other substances. And it’s also being used in some cases for OCD and eating disorders.”

Downar said the magnetic stimulation therapy should soon be approved for funding in Ontario. Alberta is also considering it, but in Atlantic Canada the only facility is at Dalhousie University.

Bradbury said she met with health officials in the Paul Davis government to make her pitch, but got no commitment.

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How Are You?

                                                              I am depressed! That’s not an everyday answer to the question,” How are you?” I think if you answered with that phrase, the other person would go in shock or think you were crazy. The more sociable response would be; I’m doing fine, I’m great, I’m good, etc.  We live in a Society that really doesn’t want to hear the real truth of how you are truly feeling but the more politically correct response. If you are sensitive to negativity and only surround yourself with positive people or if you think negative thoughts are contagious; then you better stop reading and leave this blog. I believe sometimes we mistake pain and hurt for negativity. If I were to say I only have positive thoughts, then I would be lying. If I did, I would be in denial or living in a bubble. All illness, physical or mental, bring with it negativity. We have two forces moving through the universe; negative and positive. And in order to produce electricity we need both. I believe in order to live a balanced life we need both forces to ignite our fire. To say we do not have negative thoughts, then I believe we are suppressing reality. Just as the sun shines, so must the rain fall.

Reality for me is living with negative thoughts, do I choose to live with these thoughts? Do I have a choice about these thoughts? Absolutely not! I don’t have a on/off switch. Who in their right mind (no pun intended) would want to be bombarded by negative thinking. Certainly not me. But that’s what depression is; having more negative thoughts, then positive thoughts. I do my part to keep these thoughts under control when I am at a capable place in my mindset. O well, you might say, “All you have to do is think positive thoughts and surround yourself with positive people”. I pray to God it were that easy. That would be like saying to someone who has anorexia, “Just eat food”. It’s not that simple and that’s not the way it works. We have an illness, a brain disorder, and no amount of positive thinking will cure us. I’m hoping and praying that one day, my mind will heal completely, just as if I cut my finger and over time it healed.

My mental illness is much like a physical illness; if gone untreated it will only get worse and maybe even cause death. It is as real and painful has any physical illness. And will not go away on it’s own. “Suicide happens when pain exceeds the ability to cope”(Dianna Paige). People don’t kill themselves; their illness kills them. People are victims of suicide. Suicide is what kills them, their illness is what kills them. So mental illness needs to be treated before it escalates to a point where you have no hope.

How many slang negative terms can you come up with pertaining to mental illness; crazy, psycho, mental, insane, nuts, weird, etc. Now how many negative slang terms can you come up with for cancer? None, there are none. But both of these are illnesses; if you suffer an illness of the mind you are thought to be irrational but if you suffer a physical illness you are honorable, courageous and strong. Mental illness is the only illness that the person is blamed for their illness or lack of recovery.

I’m tired of living in a Society where you get a cast if your arm is broken, but if you have a mental illness, you become an outCAST.  Over the time it took to read this blog, over 20 people from around the world have died by suicide. With the proper support, guidance and care these deaths could have been prevented. It is up to us and is our responsibility to take a stand, end stigma and raise awareness for Mental Illness.

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Lauren’s Journey Of Hope

Its Laurens’ fourth visit to the Children’s Shriners Hospital in Montreal. This visit is filled with worry, uncertainty, apprehension but also with hope. This visit is off to a bad start already because Lauren now has two dislocated hips and that concerns us very much. The rhizotomy surgery that we are hoping for Lauren to have (which right now is her only hope of walking or having some form of mobility) is right now looking very bleak because the surgery requires the patient to have two good hips and that is not Lauren’s case.

The day began with my alarm arousing me out of my sleep into reality. Lauren and I go and make sure Mommy and Bruddy are out of bed; we don’t want to leave anybody ‘Home Alone’. Everybody gets ready and off we go in our van to the St.John’s Airport. It’s kind of icy but the road is okay.

We had a 5-6 hour stop over in Halifax which made for a very long day. But to brighten our day; Aunt Mary, Rochelle and Ben came to visit us at the airport which was so nice to see them again.

Now we’re off to Montreal, Sissy is going strong (no nap yet today), Bruddy is sleeping soundly.

We have arrived in Montreal and had a very, well deserved rest/sleep at our Hotel. Morning came too soon, the uncertainty of what the day could/will bring is overwhelming. But off we go to the Hospital.

X-rays are done first, she was really good. Then the orthopedic surgeon, Dr Canten, came to talk to us. I just hate being kicked in the guts and our hopes being crushed at the same time. She told us Lauren will need both hips reconstructed at separate times. Can’t do both together, she would lose too much blood and too stressing on her body. Then she said, ‘rhizotomy’ was  not an option at all. This was not what we wanted to hear. How can we has parents accept that the one hope of her walking is taken from us? We just felt like leaving and coming home but of course we can’t do that, maybe the day will get better.

Now  it’s off to the 2nd floor for Occupational Therapy and Physio Therapy. Well that was a waste of time. Lauren did not cooperate and just cried through the whole thing. No fault of her’s, she was just exhausted and scared and so were we. They certainly didn’t get a true picture of the real Lauren.

We were receiving some very bad vibes, we knew this was not going in our favour; call it parent intuition. We reluctantly moved to assessment room #1, where we would meet with Dr. Farmer…..he held all the cards. He spoke words we did not want to hear, this is not the way it was supposed to go. Before anything else could be done for Lauren, she has to begin another new medication for dystonia ( clubbing and twisting of her hands, etc). Left and right hip and pelvic reconstructive surgeries done at separate times. Then a baclofen   pump to be surgically placed under the skin, which will help reduce some spasticity. The rhizotomy surgery was certainly not on the top list of options.( I had to stop writing here, I could not see the keyboard for tears. Am I dreaming or is this reality? Are we talking about my little girl, so innocent, so fragile. She doesn’t deserve this, her life is just beginning. Where’s the fairness? God help us to make sense of it all).

This was a lot of information to analyze and accept. So we just couldn’t take anymore and asked if it were okay to go back to our Hotel, which we did.

Now we are back on the ‘Rock’, feeling no further ahead then when we started. How can we put Lauren through this horrible chain of surgeries? Most parents are devastated when their child falls and scratches their knee. And then bad enough are the surgeries but with the hip surgeries she will have to be placed in body casts. In this case, ignorance would be bliss, but we know all to well what a body casts involves.

It’s confirmed today that Lauren’s first hip surgery will be done on March 28th. New medication, artene, for dystonia, will begin next week.

Our hearts are heavy as we try to keep our chins up and shoulders back. Bottom line is Lauren’s life will revolve around surgeries and procedures trying to fight an ugly condition that bears the name Cerebral Palsy.

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SUICIDE

                                                         The most hushed word in the English language, I believe, is the word; SUICIDE! Why are we has a Society so afraid to discuss or even speak the word? It’s almost looked upon has a curse word, a bad word, even when spoken it should be whispered. But after reading this blog I hope our thinking, understanding and compassion toward suicide will take on an whole new perspective and we will see it in an whole new light.

Suicide brings up many questions but few answers. It is my intention to give some of my insight, my opinions into this silent killer. It is my hope that through this blog I may encourage someone that is contemplating suicide to think twice, give yourself another chance, you are worth it, there is hope, someone will listen if you would just reach out.

I have to admit this is not easy for me to do. I would rather not talk about it either, if I had a choice, but what good would that do? My whole purpose in blogging is to help others who are surrounded by this darkness and torment; therefore I have to speak out. It’s our only hope of finding the light and making the sun to shine again.  I remember so vividly when I was at the acute stage of my illness, when there was no hope in sight; all I wanted to do was die and end this hellish existence for everyone concerned.

“Committed Suicide”! Committed brings to mind something bad someone did willfully. It is not my belief that someone who dies of suicide does so willfully. As defined by Google, the word, ‘commit’ means ‘to perpetrate or carry out a mistake, crime or immortal act. You ‘commit’ a crime. Therefore this is a term I try not to use when referring to suicide. Rather than say, ‘someone committed suicide’, it’s more appropriate to say, ‘died from suicide’. Someone who died from suicide did not willfully choose to take their life; if they felt they had a choice they  would choose life. They have reached the point where nothing makes sense anymore. Having no life at all is better than the life they have. Your distorted thinking convinces you; your life is worthless and everyone would be better off without you. You are so exhausted from fighting this battlefield in your mind, that you just can’t fight anymore. When my Dad was dying, some of his last words were, ‘I just want peace’. Dad found that peace from his fight with cancer and is now at rest; no more fighting. The same is true for someone fighting a mental illness, they just want peace. Your voice of reason is gone.

                                                        You may be asking, ” why would you want to talk about suicide so openly and publicly?” And I would ask, ‘Why not?” This is one of the most alarming epidemics facing our society today. And you want me to be quiet about it? I don’t think so! God is at work here! The statistics speak for themselves. “In 2009 there were 3,890 suicides in Canada”. According to the World Health Organization, “Close to 800,000 people die to suicide every year. That works out to be around one person every 40 seconds”.’ In 2015 there were an estimated 788,000 suicide deaths worldwide’. In 2017 this statistic is growing at an alarming rate and will only keep growing. And that is why we have such an alarming drug and alcohol abuse problem in our society today. People will turn to anything to dumb the pain. They are afraid to talk about the way they are really feeling, due to the shame this illness brings, people will think you’re weak, the stigma, the ignorance of not knowing or not understanding this illness; forces many to suffer in silence. And to that person who is suffering in silence, I would say, ‘you are not alone’. There is hope and peace to be found again. I struggle with this everyday, but I see light through the cracks, glimmers of hope in the depths of despair. We can and will get through this.

If you are someone who have lost a loved one through suicide; there are never going to be enough words for me to help you understand, to take away the pain, to make sense of it all, to dry your tears or to help heal your broken heart. But let’s begin by saying, ‘this is not your fault, there is nothing that you could have done or didn’t do’. Your loved one was very, very ill and I believe something in their brain went terribly wrong and therefore at the point of ending there life; they felt no hope, no way of escape, they wanted to unburden their loved ones of the misery that their illness had brought to their family. Know now that they are finally at PEACE and they did this to free themselves and you of this horrible, horrific disease. Do not be ashamed or angry; it was their illness that forced them to do this. But rest assured they are now, FINALLY, at PEACE.

I believe that society has come  a long way, when it comes to the way people look at mental illness/suicide. The walls of stigma and ignorance (not knowing) have somewhat come down. But we still have a long way to go. If you are wondering, well what can I do? My answer would be to educate yourself on what mental illness is, have a better understanding, an open mind and to forget some of the myths, lies, primitive ideas that we have been raised to believe surrounding mental illness and suicide. For example, years ago suicide victims were automatically sent to hell and their bodies would not be buried in a consecrated Church cemetery but were buried on the outside. Now how primitive, self righteous, judgemental and disgraceful can a culture and society be, in order to do such a thing. May God forgive them “for they know not what they do.” Thankfully we have moved forward and have respect for all the deceased; for God is our eternal judge.

One of the best things we can do for someone who is contemplating suicide is to LISTEN.  Listen and show you care, reassure them that it’s going to be okay. Sometimes the best advice we can give, is as little as possible. Sometimes when we have all the right motives in mind and we mean well; we can say exactly what someone that is suicidal does not want to hear. So…listen, love, and never leave that person alone; be there for them. And suggest that maybe they visit a mental health professional or their family doctor, but never without their consent, no surprises. Just be there….

I believe with our limited mental health care in NL the church needs to play a role in helping victims and their families in dealing with suicide and mental illness. To begin that process the Church needs to make its stand on just what they believe concerning mental illness and especially suicide. But the church’s stand on suicide is certainly not clearly defined as of today. If it were it would certainly help in the grieving process for those who  have lost a loved one through suicide. Some Churches have taught that a suicide victim was/is automatically going to hell. It is my belief that it is not clearly stated in scripture the fate of a suicide victim, and therefore we are not in a place to make such a statement. I conclude therefore that the fate of any soul, whether death by suicide or death from any illness, can “only” be decided by God. As believers it is not our responsibility to play judge and jury. But instead, our calling is to bring comfort, mercy, and love to all those affected by suicide and leave the rest to God.

Today I consider myself an advocate for mental illness. I am not a medical professional, nor do I have all the answers but my lifetime with a mental illness has given me experience, wisdom and knowledge that I would have never obtained otherwise. I have insight into what this illness can do, how it affects the individual themselves,their families and their caregivers. This illness can destroy marriages, friendships, relationships and lives. It is my prayer that I could be used to help others , bring healing to the hurting and restoration to the broken. I am a vessel that’s broken, but daily I am putting the pieces back together and you can too.

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My Recovering Journey of Faith

I am a recovering mentally ill person; no I didn’t say I was a recovered mentally ill person.  Just like an alcoholic can never say, “I am recovered, but I am a recovering alcoholic”. I believe the same is true for someone who has a medically diagnosed mental disorder. I can never say I was fully recovered, yes there were times when I was fully, functioning, ‘normal’ person but my illness has been a lifetime journey. It’s almost like you go into remission, but for me, I had many relaspes throughout my lifetime. Some mild, some severe and some in between. But all a fighting battle.

This recovering journey is never linear.. What I mean by that is my symptoms and mood are never on a straight plain. It’s more like a roller coaster, there are many ups and downs, you are never on a level plain. Some days you could be doing fairly well and others you could be ready to jump out of your skin. Just last week my illness overwhelmed me with feelings of exhaustion and my brain was overcrowded with unwanted thoughts that I had no control over. But today I’m feeling a little more empowered and start my uphill climb once again.

This journey is rarely a walk in the park, it’s more like climbing Mount Everest. Some days you are weak has a rat and more days you feel like you can climb; one step at a time. But the encouraging thing is; you are moving, even if it is in baby steps. It’s like the saying, ‘You can eat an elephant, one mouthful at a time.’ And so you can climb this “Mountain of Depression and Anxiety”, one footstep at a time. If you are reading this and you are saying, ‘but I can’t do this anymore, I am just too exhausted.’ Trust me; “YOU CAN”! You are stronger then you think.

Where is my strength coming from, where is your strength going to come from? I remember when I had my last relapse; I searched for healing, my wellness, my escape from this hellish disease from without. I was searching for someone or something to “make” me better. But that never happened, I was at a dead end, I had tried EVERYTHING. But it wasn’t until I searched within myself that I found a strength that I didn’t know existed. But I still take it one day at a time, that’s all we have. Yesterday is gone (so don’t dwell on it) and we are not promised tomorrow (so don’t worry about it). Live in the moment, it’s what we have.

My treatment/therapy now consist of medication (which I know is crucial to my mental health), learning to accept my limitations (my new normal), having structure in my day (a routine), limiting stress as much as I can (sometimes that’s hard to do given my life circumstances), always having a ‘project’ (painting, cleaning, reading, singing, etc.) and one of my favorite of all is; writing my blogs (amazing therapy). All of these elements help me cope with each day and creates a sense of who I am. I am NOT my illness, there is so much more to me then my disorder; so I refuse to be defined by depression and anxiety.

After so many years of searching for the truth of who I really am; I believe I have finally found it. There is so much more to us and to me then this physical and mental body. There is a spiritual component that we have to tap into to find real strength, real courage, and the real you, the real me. And I believe this can only come from an omniscient (all knowing), omnipotent (all powerful), and omnipresent (everywhere present) spiritual power. And there is only one person I know that possesses all three; God Our Father. He has been and still is my greatest source of strength and peace. On days when I was at my lowest, He was and is still my greatest source of stability, my rock, and my hope.

So you see, my recovering journey of faith, starts by placing my entire life into His hands. That’s hard to do because I thought I could do it on my own, what a joke that was. There are some things in life that we have no control over and have to be left with God, He is in control. So now I put my total trust and confidence in someone who is greater then I am. It sure takes a load off me and makes my journey a little easier.