Tag: hope

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Fill My Cup

Today is one of those days when I feel like I’m running on empty. Just like a car, if we don’t refuel it, it will run out of gas and be of no use. So what do we do when our car is empty? We take it to the gas station and fill it up.

Well today I’m on empty, the challenges and responsibilities of life have left me empty. It seems there’s never a reprieve, a time when I can just breathe.

With Mom’s passing, time as not healed my wounds. It seems the more time passes the more I miss her and the reality hits me that she’s no longer with me. The telephone calls every day have ended, just hearing her voice is gone. So I call out to God; be my comfort today.

I’m guessing that most people wouldn’t admit to having a down day. And that’s okay, but for me I like to be real and by doing so to help others. We live in such a world that expects perfection, a ‘me’ society, a cookie cutter mentality of what we are supposed to feel, think and act. I guess I was never drawn into that way of thinking. I am who I am, nothing or no one more, just me. Sometimes maybe it would have been easier if I just went along with the status quo. But I didn’t always chose the path most travelled. Many times I made my own path, I found my own way.

Living with a mental illness can so easily drain you to a point of exhaustion. Every day is a struggle, some less then others. But lots of days I feel like I’m running on empty. Many days I just have to stop and refuel, to breathe.

And then there’s a caregivers life; that means 24/7, 365 days year. I’m not complaining; I would do it all over again if I had to. But I can’t say it’s an easy life, it’s tough, challenging, isolating and exhausting. I love Lauren more then life itself and that’s why I gave up my own life for her. But what I gained was far above anything I could ever imagine. John 15:13 says, “Greater love hath no man than this, that a man lay down his life for his friends”(his daughter, his family).

So it’s those days when I’m running on empty, when it seems humanly impossible to keep going. But it’s those days that I have learned to look to an higher power. To a strength that is not my own, to a God that is in the driver’s seat of my car. I’ve been singing this song all morning and it sums up what I’m trying to say. The words of the song are “my” words, my prayer for today. He is faithful!

Like the woman at the well I was seeking, for things that could not satisfy. And then I heard my Saviour speaking, “Draw from My well that never shall run dry”.

Fill my cup, Lord. I lift it up, Lord. Come and quench this thirsting if my soul. Bread of Heaven, feed me ‘til I want no more. Fill my cup, fill it up and make me whole.

There are millions in this world who are craving the pleasures, earthly things of gold. But none can match the wondrous treasure that I find in Jesus Christ my Lord.

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Lauren’s Next Journey

“When a train goes through a tunnel and it gets dark, you don’t throw away the ticket and jump off. You sit still and trust the engineer” Little did I realize when I posted this quote by Corrie Ten Boom, to my Facebook page, that it wouldn’t be long after that my trust would be put to the test. Trust isn’t something that I do easily. To trust is to put your firm belief in the reliability, truth, ability, or strength of someone or something, now that is not easy to do.                                                                                                                                                                                                          A good example of trust would be; when we go for surgery and  are about to be put to sleep, you have no choice but to put your full trust into the medical team that they will do everything humanly possible to perform a successful surgery. Are we guaranteed beyond a shadow of a doubt that everything will go fine? No we are not! But we have to trust that it will. So we have to willfully surrender our very lives to the medical professionals and hope that all will go well. TRUST!

Just after I posted that quote, Lisa’s phone rang. Now it’s been months that we have been waiting for a call from the Shriners Hospital for Children in Montreal. The purpose of this call would be to notify us of a time when Lauren’s surgery would be taking place. The surgery itself would be the first of two, the other which would depend on the success of the first and would be done at a later date. This first surgery would be a trial surgery to determine if a baclofen pump would be suitable for Lauren. The actual baclofen pump implantation is a surgical procedure performed to permanently implant a pump that delivers baclofen to the spinal fluid to treat Lauren’s severe spasticity and dystonia that is refractory to oral medication in Lauren’s case.

I knew by the look on Lisa’s face, what this call was all about. As much as we were anticipating this call, you can never prepare yourself for it. We knew that this was just the beginning of another long journey that we so didn’t want to put Lauren through again. The call confirmed that Lauren’s surgery would take place on June 7th. You see, Lauren has already endured more pain in her short life, then most adults experience in a lifetime. Where is the fairness in this? Why do we have to expose her to this trauma once again? Why can’t God just release her of this horrible disease? Didn’t He say, “Suffer the little children to come to me and forbid them not…”? So many whys! Not a lot of answers. I believe we are well into our right to question. Who in their right mind would want to expose their child to pain?

But yet there are no other alternatives, no other choices! So we are left to, TRUST! Trust that the medical field know what is best for Lauren and that God knows best. Both of which require us to surrender our trust and faith into someone outside ourselves. Placing Lauren’s life into the hands of someone else other then our self. Now, that my friend,  is not easy to do. Being a Christian doesn’t make that decision any easier, doesn’t mean that we can’t question, and have concerns and worries. After all, we are human and God totally understands. Jesus himself questioned God when He said, ‘My God, my God, why have you forsaken me?’ WHY?

In spite of our human weakness, we realize we have to trust, once again, into an higher power.  For without trusting, what are we left with? Nothing, no hope, nothing. So we will trust and pray that everything goes well and this surgery will give Lauren a little better quality of life. It’s all we can ask for.

 

 

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Make Me An Instrument

I sit in my office desperately trying to catch my thoughts as they race around my head in a halo of madness. Fighting this war of the mind seems like there is no end. Suffering from clinical depression and major anxiety has left me in survival mode, trying to make sense of my broken mind; and yes, it’s broken. It took me a long time to come to this realization, that it’s okay, I’m not a lunatic, I’m just ill. On days that I’m feeling I’m losing this fight, to remind myself that I need to be kind to myself. Just as I would if I had a physical illness because at it’s most fundamental, depression is a physical illness. It’s an illness that affects an organ of my body called the brain and it’s ability to work properly, just as diabetes is a problem with the organ of the body that we call the pancreas. And when I look at it in that light, it makes me feel more ‘normal’ and my depression is an illness; not a character flaw or a personal defect.

My heart goes out to all those who are suffering from this horrible illness. Especially those who have little or no support and those who are suffering in silence who are ashamed to tell someone, in fear that they would be looked upon as weak. This is not an illness of weakness but of constant torment that physically drains your body to a point of exhaustion. So let’s stop looking at ourselves has weak and realize we are strong and courageous because if we weren’t, we would never survive.

I know this illness steals from us the mere glimmer of hope, light and joy; the fundamental aspects of what life is made of.  If we lose hope, we are left with nothing, if we cannot see the light we are left in darkness and if we lose our joy, we will drown in sadness. Today I want to encourage those who are walking this road of discouragement caused by depression and anxiety that there is hope, there is light, there is joy…. there as to be!

And lastly I would like to leave you with this prayer by Saint Francis called; “Peace Prayer Of Saint Francis”. It is my prayer too, may it be the prayer of all our hearts;

Lord, make me  an instrument of peace :

Where there is hatred, let me sow love;

where there is injury, pardon;

where there is doubt, faith;

where there is despair, hope;

where there is darkness, light;

where there is sadness, joy.

O divine Master, grant that I

may not so much seek

to be consoled as to console,

to be understood as to understand,

to be loved as to love.

For it is in giving that we receive,

it is in pardoning that we are pardoned,

and it is in dying that we are born to eternal life.

AMEN.

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Today is a ‘GOOD’ Day

Ten years have flown by since my mental breakdown in 2012. And for those years I cannot recall having what I could say was a ‘good’ day. Everyday was a struggle, everyday a fight, everyday a battle to just survive.

The past couple of months had me in a frenzy, I was in a state of panic, a fear that I was getting worse or even on the brink of a relapse. I knew I had done everything possible to keep my mental health at a functioning level but I realized I was loosing this war once again.  And I was heading back to hell but I was determined never to go there again.

So I took matters into my own hands and realized what I had to do at this point to prevent a relapse. I wasted no time in making an appointment to see my doctor. I sat in her office and unleashed my bent up emotions and talked to her about every thought that was causing my brain to race like an hamster on a spinning wheel; running but going nowhere. She listened with an undivided attention, soaking in every word. She was listening!

Once I was done my ‘speech’ and looked at her with the eyes of a dying puppy; she knew I needed help, I was desperate. My heavy eyes told a story of horror and hopelessness. But she reassured me that it was going to be okay, that there was hope. Her advice to me was to first start by increasing my mirtazapine, which I had no objection to. Nothing else was working for me and I was totally helpless, drowning in a sea of despair. But this was going to be my first plan of attack; to increase one of my medications.

Two weeks went by, I felt nothing, no change either way. I knew deep down that this wasn’t working. After a little over three weeks I could take it no more, something else had to be done. Once again I made a virtual appointment to talk to my doctor again. She knew before I could even tell  her that this wasn’t the answer. The next tool from her toolbox was to add another antidepressant (Abilify) to my already existing maxed out Effexor; I was at the maximum dose that a patient could take. So she decided to cautiously try me on a very low dosage (2mg) of Abilify. I hung up the phone and prayed to God to please let this one give me at least a little relief; a little was better then none at all.

To my amazement and optimistic anticipation, I felt something that I haven’t felt in years. I was and still am afraid to get my hopes up, to be hopeful because I have had my hopes shattered so many times over the past years. I will take this one day at a time. If I get a good day here and a good day there, then I’ll take it.  Anything is better then what I had lived with for the past ten years. But this medication seems different, almost like nothing I experienced before. It has settled my racing mind, maybe even giving me a feeling of hopefulness. But deep down I’m scared, scared that this is not going to last, that it is all just wishful thinking. But I  pray I’m wrong and this medication really is going to be my miracle, my light in the darkness, my sunshine in the rain.

Even if this reprieve doesn’t last, I will remember this short but amazing sense of freedom from my mind, even if it’s only for a few weeks. My heart is filled with so much gratitude and thankfulness that my cup overflows. Is my days of fighting this horrible illness over? I don’t know but today I’m having a ‘GOOD’ day and as the tears flow down my face, for once they are tears of joy. Like any illness, we are never guaranteed a complete cure; there is always the fear of it’s ugly return. But for today I’m having a ‘good’ day!

 

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Being Strong

Darkness falls around me like a shroud. It’s not the darkness I fear but the night. My dreams are haunted by the never ending trauma of my past. But yet I sleep to escape the torment of the day, a reprieve from reality. My nightmares devour my only since of peace. Maybe, just maybe, tonight will be different; peace and calm will flood my mind leaving no space for terror. How I long for peace of mind, the end to my battlefield, the never ending struggle to just survive. Depression and anxiety has stolen anything that resembles a ‘normal’ life. It is my deepest longing to just be okay, to just feel ‘normal’ for once, to love life.

Morning comes again bringing with it the light of a new day. But I know today will be a struggle, most days are, some worse then others. I know this all sounds horrible and who would want to read such depressing and hopeless accounts of a day in the life of a struggling mentally ill person. But it is what it is! Try living with it for day in and day out. Not much fun believe me. I guess when I say mentally ill, many people conjure up ideas of a ravenous lunatic, an out of control insane person. But depression/anxiety is probably the exact opposite. Depression for me can be compared to being in a constant state of grief, that never really goes away. And this so interferes with the function of life’s everyday tasks and stresses. Life as to move on but it’s like I’m always trying to play catch up, but I never really do.

I can’t remember how many times I’ve said I’m fine just because I didn’t want to burden others with just how I was really feeling. Ashamed to admit to the truth of how I really felt. So everyday I fight, fight to be okay. But I’m tired, tired of being strong when really I’m not strong at all. The ‘cover’ to my book may look great on the outside but on the inside it’s ripped and torn. So like the old saying goes, ‘Never judge a book by it’s cover’. Afraid that if I open the cover, the pages of my heart would fall out for all the world to see, and if they saw maybe they would judge me and consider it all weakness. When all along I know it can’t be weakness, I ‘know’ it’s not weakness but my mind tells me it is. And everyday I tell myself, over and over again, that it’s not what I feel but what I know. I cannot live my life by feelings but what I know to be the truth. And to live with this hellish disorder of the brain; I have to be strong in order to survive.

Tomorrow may be a ‘good’ day and by a good day I am not defining it by those who do not suffer from a mental illness, there’s no comparison. I live my life by hope, hoping that tomorrow will be a good day. If I lost my will to hope, I would have nothing left but an empty well of darkness. So I will press on, I will not quit the fight, even when overwhelming fatigue and exhaustion have left me lifeless; I will not give in. I will fight for my life. To those who are struggling and feel like you have no hope, take it from me, if I can do it, then so can you. I believe in you!

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Define Depression

Over the past few years I have written enough blogs on the subject of depression and anxiety to fill a book, and yet I still feel I haven’t adequately defined it. I guess the only real way to understand what depression is, is to experience it for yourself and you really don’t want to do that. It differs from one person to the other and ranges from mild to major symptoms. We really can’t compare my experience with mental illness to someone else’s.

I have used many analogies to try and define what it felt like to live with depression and anxiety on a daily basis. They all give you a better understanding of this illness. I wanted to share a post that popped up on my newsfeed today, it was quite interesting, so I thought I’d share it with you.

This is so true for someone who suffers from major depression. Your body is so exhausted and tired of fighting the raging thoughts in your head, that all your head wants is to die. The never ending torture makes life not worth living; well that’s what your distorted mind is telling you.

But there is hope and it’s not rocket science; you can take control of your thoughts to a certain degree, at least to a place where life doesn’t seem so unbearable as you thought. Thoughts are just that; thoughts. They cannot harm you unless you allow them to, you don’t always have to believe every thought that comes into your head. When you are fighting this mental illness, your mind is producing thoughts that are distorted and untrue; so don’t always believe your own mind. Your best defence is to realize which thoughts are distorted and which are not; not always easy to do but you can do it. It could save your life! Talk to yourself, tell yourself you are going to get through this, it will not last forever. Be gentle with yourself, do whatever it takes to get well and only you know what that is. Go for a short walk not a marathon, listen to some of your favourite music, take a nap if you need it and don’t feel guilty about doing so or just watch a funny tv show. Or just sing in the shower or bath. These are the little things and that’s where you have to start; baby steps.

With the holly, jolly season approaching it can throw us for a loop. Christmas can bring up so many different feelings and emotions; all not jolly and bright! I really have an hard time during Christmas, it’s expected of us to be an Hallmark fantasy movie; where all is merry and bright. But when you suffer from a mental illness, that is so far from how you are really feeling, maybe even quite the opposite. And with that comes much guilt, shame, anger toward yourself for not feeling the spirit of Christmas that is so expected of you. But if you are just not feeling it, that’s okay, just do what you can and that’s all is required.

I may never see the day when I am totally free of this hateful illness but there’s one thing I know and that is; I WILL NEVER LOSE HOPE! Hope is what gets me through the day, hope is what gets me out of bed, hope is what pushes me to enjoy life as best I can while fighting this horrible illness. And you can to, I believe in you , life is worth living; no matter what our broken mind is telling us.

 

 

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Because He Lives I Can Face Today

I awakened with that ever abiding voice of depression. I pushed myself out of bed, not because I was lazy and didn’t want to get out but I was paralyzed, disabled by my broken mind. The thoughts of facing the day scared me to death. How can I do this again?  Can’t this just stop, can’t I just live a ‘normal’ life for a change. I dragged myself to the kitchen table with my caffeine fix in my hand and threw myself onto the chair. My head was in a total fog. I looked at my wife and said, “Can’t I just have one good day?’ But I knew it wasn’t going to be today. To wake up every morning and have this overwhelming weight of the world on my shoulders, I was exhausted even before my day began.

We just celebrated the Easter season, a time of victory, joy and celebration for the Christian. A time when Jesus provided for all humanity the only way to the Father, that being the shedding of His blood. Romans 10:9 ‘If thou shalt confess with thy mouth the Lord Jesus, and shall believe in thine heart that God hath raised Him from the dead, thou shalt be saved.’ Having a mental illness has taken away the ability for me to fully experience the joyous feeling of the resurrection but I have learned that I now live by what I ‘know’, not what I ‘feel’. 2 Timothy 1:12 ‘For I ‘KNOW’ whom I have believed and am persuaded that He is able to keep that which I have committed unto Him against that day’.

It’s very difficult for me to sing the song, ‘Because He lives I can face tomorrow. Because He lives all fear is gone.’ I would be lying if I said there were times that I am not fearful. Because there are times I am fearful.  I’m fearful of my mental illness and what it can do to me and my family, the fear of a total relapse of my illness, the fear of Lauren’s ever changing health, not knowing what tomorrow is going to bring forth. But I try not to let my thoughts go to tomorrow. I live one day at a time and this morning the thought came to me and it’s pertaining to this song, ‘Because He Lives.’ But for me , who lives with a broken mind, I can say with confidence, ‘Because He lives I can face today’. We are not promised tomorrow so I try not to go there but live today; one minute, one hour, one day at a time. This I know to be true!

I know there are so many out there who feel they can’t go on, life is too much, God wouldn’t have anything to do with me. Don’t believe that, God takes us just as we are, in our brokenness , our messed up minds, our addictions, our broken marriages, our hurts, our abuse, our fears; He takes us just as we are. When we feel we’re a nobody, a nothing, useless, ugly, unlovable human being; He loves us. We are never alone, even when we feel God is nowhere to be found (I know the feeling, I won’t lie), He is right there, standing somewhere in the shadows you’ll find Jesus. He’s the one who always cares and understands. When others have turned their backs on us and we feel all alone, He is there. “Never will I leave you, never will I forsake you”.

You may ask, ‘why do I bring God into the picture when it comes to my mental illness?’ Because I believe the first step to any level of recovery is, we have to admit to ourselves that we have an illness and that we are powerless over it. This is one battle that we cannot fight alone. That is why we need to turn to a Power greater then ourselves, to help us survive this hellish illness. Much like the second step in the AA Program for alcohol addiction. As with any other chronic or terminal illness, we need to turn to a spiritual power that is able to strengthen and walk us through our journey. It’s then we realize that we are not in control, in our own strength we could never make it. Let’s just put things into perspective; when we know we have no where else to turn and we are at a dead end; I believe we quickly realize who we have to turn to. And guess what? He’s there waiting; waiting for you! God is not he enemy, He’s the answer. No matter where you’ve been, no matter what you’ve done, God loves you!

In spite of my constant fight to survive this battlefield in my mind, I still live my best life with what I have and not dwell on what I don’t have. Hoping that today will be a better day and one day I will find peace again, peace of mind.

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I’m Just Tired

I’ve stated before in previous blogs that writing is therapy, there is a sense of unloading your mind of your ugly thoughts. So if that’s the case, I better start writing because my mind is in a scary place. I want to run, run for my life but where would that bring me? At a dead end! I need to write not just for me but for those who don’t have a voice, those who are screaming in silence. I write to help others understand to some degree; the horrors of this disease and to emphasize that this is a disease, an illness. And that it’s a very dangerous one at that and should never be taken lightly.

Those who suffer from depression, anxiety, panic attacks and other mental illness know all too well the disabling and crippling effects of this illness. Mental illness has the power to destroy and kill lives. And that is why medical attention is a must to survive this illness. Medication and other therapies may not be a cure but they certainly aid in coping with a mental illness and give hope to an illness that seems hopeless. An illness that destroys your will to live. That would be the most important statement that I could write that would sum up this illness called depression. It’s so important I think I need to repeat it again, ‘An illness that destroys your will to live.’ I know because I have been there many times.

Now here I am in the middle of a second wave of covid-19; a province in lockdown, a province in panic, a province in uncertainty. And here I am fighting to get through each day, with a virus that is playing havoc on my mind. My mental illness doesn’t do well in the best of times but throw a pandemic into my already out of control world and it makes for some really rough days. Try has I must to carry on, to live a normal life as possible. And so many days I fail, I just can’t rise above this illness, some days it wins. Days when fatigue takes over, tired of fighting, days when you just don’t want to participate in life anymore. Just getting through the day is a gigantic accomplishment. No matter how hard you try to be positive, to be happy, to live; you cannot force what is not there. I came across this quote today and it really sums up the kind of day I was having. “When people ask, ‘are you okay?’ And you say, ‘I’m just tired’. Yeah. Tired of trying, tired of hoping, tired of coping, tired of existing, tired of breathing, tired of living. I’m just done.”

Yet deep down inside I know I’m not done. Tomorrow will be a better day. I will keep trying, I will keep hoping, I will keep coping, I will keep existing, I will keep breathing, I will keep living. I will not give up. I cannot give up. I will find a way. Although today my depression told me otherwise but I will not listen, I will turn a deaf ear and keep fighting. No matter how rough the day, no matter the burden that I bare, the weight that I carry, I will not give up. Please help me God!

The reality of this illness is there is no cure. I cannot change that  no more then a person with cancer can change their illness. But we fight to live the best life we can with what we have. And many times that just doesn’t seem like very much. Days when it takes all that is within us to just move, days when we just want to hide from the world; when we feel so inadequate, impatient and lost. Sometimes I know I’m too hard on myself, when really I should give myself a little credit. I am a survivor and so are you! 

 

 

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Covid19 And My Mental Health

Will the ‘restrictions’ of Covid19 kill me before Covid19 does? Don’t get me wrong I know we have to abide by these restrictions and they are put in place for our good, for our protection. And I will follow these restrictions for myself and also for the safety of others.

But having said that, coming from someone who suffers from a mental illness; how am I going to survive? Because right now I have days where I feel I am loosing the battle. Every restriction that is in place are restrictions that trigger my depression and anxiety. I believe this pandemic is difficult even for someone who has good mental health. But those who suffer mental illness; this caged, confined, imprisoned pandemic, would make one worry and wonder if you can survive this hellish existence.

I have no problem in wearing a facemask, I believe it’s the selfless thing to do; if it makes us a little uncomfortable, I think we can tolerate that, especially if it meant protecting someone who is autoimmune comprised or vulnerable. Sometimes we just have to do the right thing and wear a mask, if not for ourselves, then do it for others. I know there are some who just cannot wear a mask because of medical reasons and therefore they have a medical exemption from their doctor. I do believe these people should really limit their outings around others. One for their own protection and two, for the protection of everyone else. To my disbelief there are still those who just blatantly refuse to wear it. Their reasoning; they just don’t want to live their life in ‘fear’. I think sometimes we need a little healthy fear and abide by the restrictions that the Health Care Professionals put in place for our protection. I believe that someone who refuses to wear a mask are just being selfish, careless and inconsiderate of others. I certainly don’t feel that all those who are wearing a mask are living in fear but they just have a lot of common sense. So I will ‘suck it up’ and wear my mask without complaint, it’s the least I can do.

I know right now the media, example ‘Bell Let’s Talk’, are encouraging those who are finding the stress and anxiety of the  pandemic is affecting their mental health and they are finding life very difficult. And I totally agree, talking is great therapy and is certainly a means to help each other through these tough days. But I guess there are sometimes, exceptions to every rule. Just yesterday, I was having a really tough day, how I was feeling was unexplainable but it was not good. I was desperately fighting to just cope, to just survive the day. And talking to someone was the last thing I wanted to do; I just wanted to close the door on everyone and just crawl inside myself. I know this was not right but talking wasn’t on the top of my list of coping. So, don’t do as I do but do as I say and talk to someone!

I believe the most trigger provoking restriction of this whole pandemic is, social distancing/living in a bubble.  Not being able to spend time with friends and not having a social life is just killing me. The things that once I took for granted, I now crave to do. Just being able to go to the grocery store and smile at the passing customers or stopping and having a chat to a friend we just bumped into. And then just not being able to hug those we meet. Those little things aren’t little anymore, they play havoc on our mental health, even when we don’t realize they are. But for me, getting out, socializing, interacting with others, sharing with others, were all therapy for my mental health. Those were things I desperately craved to help bring me through my dark days. But because of this pandemic I am very limited to what I can do.

We are so blessed here in Newfoundland and Labrador compared to others parts of Canada and the World. But we certainly can’t afford to let our guard down. It’s because of our abiding to the restrictions of Covid19, that I believe have helped to flatten the curve and keep our numbers down. So thanks to our Government and Health Care Professionals for doing such an amazing job. I believe our protection and well being were their top priority and they have to be commended.

One day, hopefully, we will be able to look back on this nightmare and thank God that it did not kill us but we survived. My heart goes out to the tens of thousands that have died because of this deadly virus; worldwide. To those we will never forget, to the families who are still grieving their loss, beyond sad! Even to this very day, we are far from being home free! Still this pandemic sweeps through the earth and taking thousands of lives with it. One day, just one day, maybe just CA one day, we will be free again. I believe we will never be the same again, in this generation, but we will learn once again to live a ‘New Normal’.