Category: Life

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Fill My Cup

Today is one of those days when I feel like I’m running on empty. Just like a car, if we don’t refuel it, it will run out of gas and be of no use. So what do we do when our car is empty? We take it to the gas station and fill it up.

Well today I’m on empty, the challenges and responsibilities of life have left me empty. It seems there’s never a reprieve, a time when I can just breathe.

With Mom’s passing, time as not healed my wounds. It seems the more time passes the more I miss her and the reality hits me that she’s no longer with me. The telephone calls every day have ended, just hearing her voice is gone. So I call out to God; be my comfort today.

I’m guessing that most people wouldn’t admit to having a down day. And that’s okay, but for me I like to be real and by doing so to help others. We live in such a world that expects perfection, a ‘me’ society, a cookie cutter mentality of what we are supposed to feel, think and act. I guess I was never drawn into that way of thinking. I am who I am, nothing or no one more, just me. Sometimes maybe it would have been easier if I just went along with the status quo. But I didn’t always chose the path most travelled. Many times I made my own path, I found my own way.

Living with a mental illness can so easily drain you to a point of exhaustion. Every day is a struggle, some less then others. But lots of days I feel like I’m running on empty. Many days I just have to stop and refuel, to breathe.

And then there’s a caregivers life; that means 24/7, 365 days year. I’m not complaining; I would do it all over again if I had to. But I can’t say it’s an easy life, it’s tough, challenging, isolating and exhausting. I love Lauren more then life itself and that’s why I gave up my own life for her. But what I gained was far above anything I could ever imagine. John 15:13 says, “Greater love hath no man than this, that a man lay down his life for his friends”(his daughter, his family).

So it’s those days when I’m running on empty, when it seems humanly impossible to keep going. But it’s those days that I have learned to look to an higher power. To a strength that is not my own, to a God that is in the driver’s seat of my car. I’ve been singing this song all morning and it sums up what I’m trying to say. The words of the song are “my” words, my prayer for today. He is faithful!

Like the woman at the well I was seeking, for things that could not satisfy. And then I heard my Saviour speaking, “Draw from My well that never shall run dry”.

Fill my cup, Lord. I lift it up, Lord. Come and quench this thirsting if my soul. Bread of Heaven, feed me ‘til I want no more. Fill my cup, fill it up and make me whole.

There are millions in this world who are craving the pleasures, earthly things of gold. But none can match the wondrous treasure that I find in Jesus Christ my Lord.

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Mental Illness; the Joy Killer

I’m angry, there, I said it! Maybe angry is a bit of an harsh word but I can’t think of another that sums up how I’m feeling. This has been one of those days when I’ve needed to write but every time I attempted to, I couldn’t. I know if I started writing, I would never stop.

The thoughts and emotions were anything but joyous. I’m angry, angry at me for being me, I hate what mental illness has done to me; it kills my joy and leaves me empty. I need to fight back but I’m so exhausted. And then life itself has been more then any human being should have to deal with. We have fought two near death experiences where Lisa was intubated in order to save her life. This trauma has left us with scars that well last a lifetime. Then I lost my Mom, I loved her more then life itself. We only get one Mom and she’s gone; no second chances. It’s so hard to grieve when you have many other responsibilities that demand your every moment. And then two of our very good friends passed away, it seemed like death was all around us and we were losing those we loved much too soon.

To say the least; 2023 was not without its challenges, hurts, disappointments and pain. Then to top it off, Lauren had two major surgeries in Montreal. Surgeries that we struggled with for so long; were we doing the right thing? Was this in the best interest for Lauren? But what other choices did we have? None! This was early summer and now it’s the end of the year and we have faced so much disappointment. Right now discouragement invades our thoughts, we see little improvement and still so many uncertainties and yes we worry; with good reason.

Again today I was reminded of just how imprisoned I felt. Lisa had to attend our friend’s funeral alone because one of us had to stay home with the kids. It seems we can do very little as a couple. We are caregivers 24/7, 365 days a year. I’m not complaining, I’m just stating the facts; the reality of the life of caregivers. It’s tough!

I thought by now that things would have gotten a little easier but today just proved me wrong. It felt like my world was crumbling all around me and there was nothing I could do to stop it. And that reality stirred up some very unpleasant emotions within me. It made me feel once again that we were so isolated and that feeling of being alone in a very busy, big world just overwhelmed me once again.

I find it very difficult to look the other way and ignore the state of the world. The war in Gaza, the homeland of the birthplace of our Saviour, is left in ruin and war rages on with no, “Peace on Earth”. No cease fire for the Christmas Season. I believe there’s not much that I can do but I can pray for peace, we can all pray for peace.

In spite of all this turmoil within my own world and the world abroad; I still have to find peace and hope in that baby that was born in Bethlehem all those years ago. He is still in control, He still calms our storms or sometimes He just calms His child.

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Where Is God In All This Suffering?

Ever since our return from Montreal, after Lauren’s surgery, I have experienced an overwhelming sense of depression that I can’t seem to shake. Depression is so disabling, so cruel, so unexplainable, so isolating. But yet I have suffered so many years with this crippling disorder. So often I have asked the question. “Where is God in all this suffering?” In this blog I’d like to answer this question to the best of my ability, to try and make sense to suffering. Especially when it comes to such a loving God.

To begin with I need to clarify that I don’t have the answer, not really, I can’t speak for God; God is all knowing, He is omniscient. Who am I? I am mortal – I am subject to death. I am not equal to God, God is sovereign; He is supreme, He has power over all things. Isaiah 55:8-9 sums it up best, “For  my thoughts are not your thoughts, neither are your ways my ways, declares the Lord. As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts.” Therefore I can only speak about what my own thoughts and experiences are when it comes to this subject.

With my own illness I could never understand what good could come of this. It done more harm than good from what I could see. And then there was so much in this world that I couldn’t understand. For example, world hunger, wars, earthquakes, floods, poverty, homelessness, cancer, disease, suicide, the loss of a child, the death of a spouse and the list could go on. Was God the blame or the answer to all of this chaos and unfairness? I think we need to remember that we live in a fallen world, and we experience the effects of the fall. One of those effects is injustice and seemingly senseless suffering and unfairness. But as Christians we know that in this life we will have suffering and experience pain. John 16:33 “I have told you these things, so that in me you may have peace. In this world you will have trouble.” But also we must remember that this life is not the end but the beginning of everlasting life for those who believe. Revelation 21;4 “He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away.’

Sometimes I just have to remember that I don’t always have to know the why to my suffering. Sometimes I just have to trust and let God do the rest. Romans 8:18&28, “I consider that our present sufferings are not worth comparing with the glory that will be revealed in us. And we know that in ALL things God works for the good of those who love Him.”

There is one thing I have learned in all this suffering is that it has allowed me to help others who are experiencing similar situations. 2 Corinthians 1;3-4 says, “Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles/’sufferings’, so that we can comfort those in any trouble with the comfort we ourselves receive from God.”

I hope I have in some small way helped you to better understand why we sometimes suffer and experience loss. God definitely comforts us in our pain, suffering and loss. Hebrews 4:15 “For we have not an high priest which cannot be touched with the feelings of our infirmities; but was in all points tempted like as we are, yet without sin.” Again God says in 2 Kings 20:5 “I have heard your prayer; I have seen your tears.” So when we are in the midst of despair, grief, pain and loneliness; God sees us, God hears us, God loves us!

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When Life Gets Tough

The morning arrives as I sit on my bed with my thoughts. Not always a good place for me to be; alone with my thoughts. In reality, I do have a lot to think about, to process, life is tough. Sometimes I wonder where the strength comes from, it’s certainly not my own, if it were I would have given up a long time ago. But I have to believe there is someone greater then I am, someone who watches over us, especially in the storm, especially in the tough times.

I feel I have to reiterate some of the storms that we have encountered and are still experiencing to this present day. I don’t share this for no other reason then to encourage those who are experiencing their own tough times and to show us just how resilient we really are. Even in times when we think we are going to crumble beneath the load. “We can do ALL things through Him who strengthens us.” And that is the extent of my preaching, enough said, that verse from Philippians 4:13 says it all.

The morning began with me feeling totally exhausted, not just tired but exhausted. Life has certainly sucked every ounce of energy from my body it seems. And it seemed that there was no amount of sleep that could alleviate my exhaustion. Then to add “insult to injury”, I started to scroll down through Facebook, big mistake in the best of times. Facebook can be a blessing at times but then it can also be a curse. And this morning it lead me down a path that I should not have taken. Not that I am envious or jealous but all I saw were everyone enjoying summer, travelling, leisure, relaxing, etc. Really the way summer should be. But I wasn’t feeling it. How could I when we were experiencing the complete opposite? And no I am not throwing a ‘pity party’, I am saying it like it is, it’s our reality. We have experienced more sickness, uncertainty, struggles and hardships then I care to remember. I have certainly been forced to look to God to try and make sense of it all, to find the purpose. And believe you me, I had to look deep. Trying to find the light in the darkness, the calm in the storm. In my human thinking I could make no sense of anything. Why was Lauren born with Cerebral Palsy? Why did I have to struggle every day with a depressive disorder? Why did Lisa have to endure four life threatening experiences? Why did life have to be so tough? Why? Why? Why?

The whys are just too many today and there are going to be days like that for all of us I’m sure. In my finite mind and my mortal being I will probably never know all the answers to life’s whys. The song says, “We’ll talk it over in the by and by. I’ll ask the reasons, He’ll tell me why, when we talk it over in the by and by.”

So I guess I will trust and wait. 1 Cor. 15:53 “For this corruptible must put on incorruption and this mortal must put on immortality.” So on that day when Christ returns, we shall be changed and then I won’t need to ask the reason why, this mortal will become immortal and we shall be like Him. So if you have questions that you have no answers to, trust that He knows and we will to on His return. 1 Thess. 4:16-17 “For the Lord Himself will come down from Heaven, with a loud command, with the voice of the archangel and with the trumpet call of God, and the dead in Christ will rise first. After that, we who are still alive and are left will be caught up together with them in the clouds to meet the Lord in the air. And so we will be with the Lord forever. What an amazing hope that we have.

I said I wasn’t going to preach and I am not really, I am not a preacher. I am someone who finds much hope, peace and encouragement in the promises of Jesus. It is what gives me the strength to go on; even when life gets tough.

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Lauren’s Continuing Journey

July 3, 2023. Yesterday was quite the busy day but a successful one. Lauren’s Fundraiser Market may have been a lot of work but I think it was worth it. Sometimes you do what you have to do in order to make it. It was pretty exhausting just the same, especially having to leave for Montreal the next morning. But here we are, boarded our plane, waiting for takeoff.

Lauren’s journey begins. It was only a few weeks ago that we were in Montreal for Lauren’s trial surgery for her baclofen pump, which was quite successful. So now we are going back to have the pump permanently placed inside her abdomen. It’s bitter sweet really, we hate having to put her through yet another surgery but we know that this surgery will give her a better quality of life, less pain, less spasticity and better function overall.

The journey itself; from getting here to there, is very difficult on all of us. But I guess you do what you have to do, it’s not like we have a choice and really we would do whatever it takes to protect both our children. So it’s, Montreal here we come, for about the millionth time it seems.

July 6,2023. Here we are sitting in the waiting room of The Sick Kids Hospital in Montreal. Lauren just went into the OR for what’s to be a 3 hrs and twenty minutes surgery. The worry, anxiety and a million different emotions run through your mind. There are no words to really describe how you feel, you just wait.

It’s 12:50 pm, Dr Farmer just returned from the OR and came to the waiting room to speak to us. You literally freeze for a moment in time. The surgery went well and he was very pleased. What a relief! Now we are waiting for her to get settled into recovery and then we can see her. Needless to say, we can’t wait.

My cellphone notifies me of a text. It’s the recovery room, telling us that Lauren is now ready to see us. She’s still asleep when we get there. Only a few minutes later and she starts to move her eyes and she’s awake! Oh my, I wish I could trade places with her; I would. So hard to watch her lying flat on her back once again. But she really is a trooper; courageous and brave, a warrior princess for sure. So now the next leg of her journey begins…..

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My Mental Health Update

It seems like forever since I wrote about my mental health/illness/disorder. I guess that there’s so much else going on that there as been little time to write. But today I’m sitting on a flight to Montreal with not much else to do. So I guess this time gives me the opportunity to do a little mental health update.

Most days I must say are fairly well, I have certainly improved since moving to CBS. Not that life as gotten any easier but I think I’m at a different stage of my recovery. Notice I said, ‘recovery’ not cure. I know my diagnosis is a chronic, clinical depression and anxiety disorder to which there is no cure. By recovery I am referring to a more functioning level whereby I am in more control of my illness then it is in control of me. I guess you could say the tables have turned to some degree. This has certainly not happened overnight but over months of hard work, therapy and self discipline. I have had to work intensely in every area of my life; physically, emotionally, mentally, spiritually and psychologically. Finding a balance in life and not forgetting about my own self care. Sometimes in our lives we forget to take care of ourselves when we are so busy taking care of everyone else. This is not at all being selfish but realizing that in order to take care of others we have to take care of ourselves first.

It was probably about a year since I had a panic attack, what I would call a full blown panic attack; the kind that frightens you to death. It happened on our last trip to Montreal, during Lauren’s trial baclofen surgery. I was abruptly awakened from my sleep at about 5am by shear panic, the kind that puts you into a fight or flight response and I was in flight mode. I just wanted to run but run where I had no idea. I tried to talk myself through it but it was not working, which only made the attack to escalate. I knew I had to do something and fast, so I jumped into a cold shower. And believe it or not, it really did redirect my thoughts and reduced my panic tremendously. But thankfully I have not had another one since that night. And that’s the scary thing about panic attacks; you never know when one can strike and how long it can last.

Right now I am so thankful that I am doing as well as I am. And I will take what I can get and enjoy the good days to the fullest, live in the moment as best I can, the past is gone and the future is not here.

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Lauren’s Next Journey

“When a train goes through a tunnel and it gets dark, you don’t throw away the ticket and jump off. You sit still and trust the engineer” Little did I realize when I posted this quote by Corrie Ten Boom, to my Facebook page, that it wouldn’t be long after that my trust would be put to the test. Trust isn’t something that I do easily. To trust is to put your firm belief in the reliability, truth, ability, or strength of someone or something, now that is not easy to do.                                                                                                                                                                                                          A good example of trust would be; when we go for surgery and  are about to be put to sleep, you have no choice but to put your full trust into the medical team that they will do everything humanly possible to perform a successful surgery. Are we guaranteed beyond a shadow of a doubt that everything will go fine? No we are not! But we have to trust that it will. So we have to willfully surrender our very lives to the medical professionals and hope that all will go well. TRUST!

Just after I posted that quote, Lisa’s phone rang. Now it’s been months that we have been waiting for a call from the Shriners Hospital for Children in Montreal. The purpose of this call would be to notify us of a time when Lauren’s surgery would be taking place. The surgery itself would be the first of two, the other which would depend on the success of the first and would be done at a later date. This first surgery would be a trial surgery to determine if a baclofen pump would be suitable for Lauren. The actual baclofen pump implantation is a surgical procedure performed to permanently implant a pump that delivers baclofen to the spinal fluid to treat Lauren’s severe spasticity and dystonia that is refractory to oral medication in Lauren’s case.

I knew by the look on Lisa’s face, what this call was all about. As much as we were anticipating this call, you can never prepare yourself for it. We knew that this was just the beginning of another long journey that we so didn’t want to put Lauren through again. The call confirmed that Lauren’s surgery would take place on June 7th. You see, Lauren has already endured more pain in her short life, then most adults experience in a lifetime. Where is the fairness in this? Why do we have to expose her to this trauma once again? Why can’t God just release her of this horrible disease? Didn’t He say, “Suffer the little children to come to me and forbid them not…”? So many whys! Not a lot of answers. I believe we are well into our right to question. Who in their right mind would want to expose their child to pain?

But yet there are no other alternatives, no other choices! So we are left to, TRUST! Trust that the medical field know what is best for Lauren and that God knows best. Both of which require us to surrender our trust and faith into someone outside ourselves. Placing Lauren’s life into the hands of someone else other then our self. Now, that my friend,  is not easy to do. Being a Christian doesn’t make that decision any easier, doesn’t mean that we can’t question, and have concerns and worries. After all, we are human and God totally understands. Jesus himself questioned God when He said, ‘My God, my God, why have you forsaken me?’ WHY?

In spite of our human weakness, we realize we have to trust, once again, into an higher power.  For without trusting, what are we left with? Nothing, no hope, nothing. So we will trust and pray that everything goes well and this surgery will give Lauren a little better quality of life. It’s all we can ask for.

 

 

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Make Me An Instrument

I sit in my office desperately trying to catch my thoughts as they race around my head in a halo of madness. Fighting this war of the mind seems like there is no end. Suffering from clinical depression and major anxiety has left me in survival mode, trying to make sense of my broken mind; and yes, it’s broken. It took me a long time to come to this realization, that it’s okay, I’m not a lunatic, I’m just ill. On days that I’m feeling I’m losing this fight, to remind myself that I need to be kind to myself. Just as I would if I had a physical illness because at it’s most fundamental, depression is a physical illness. It’s an illness that affects an organ of my body called the brain and it’s ability to work properly, just as diabetes is a problem with the organ of the body that we call the pancreas. And when I look at it in that light, it makes me feel more ‘normal’ and my depression is an illness; not a character flaw or a personal defect.

My heart goes out to all those who are suffering from this horrible illness. Especially those who have little or no support and those who are suffering in silence who are ashamed to tell someone, in fear that they would be looked upon as weak. This is not an illness of weakness but of constant torment that physically drains your body to a point of exhaustion. So let’s stop looking at ourselves has weak and realize we are strong and courageous because if we weren’t, we would never survive.

I know this illness steals from us the mere glimmer of hope, light and joy; the fundamental aspects of what life is made of.  If we lose hope, we are left with nothing, if we cannot see the light we are left in darkness and if we lose our joy, we will drown in sadness. Today I want to encourage those who are walking this road of discouragement caused by depression and anxiety that there is hope, there is light, there is joy…. there as to be!

And lastly I would like to leave you with this prayer by Saint Francis called; “Peace Prayer Of Saint Francis”. It is my prayer too, may it be the prayer of all our hearts;

Lord, make me  an instrument of peace :

Where there is hatred, let me sow love;

where there is injury, pardon;

where there is doubt, faith;

where there is despair, hope;

where there is darkness, light;

where there is sadness, joy.

O divine Master, grant that I

may not so much seek

to be consoled as to console,

to be understood as to understand,

to be loved as to love.

For it is in giving that we receive,

it is in pardoning that we are pardoned,

and it is in dying that we are born to eternal life.

AMEN.

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Start All Over Again

It seems like summer is flying by and before long the kids will all be back to that hateful word they call, “school”. But having said that, both Logan and Lauren just love school and are anticipating going back, I think Lauren loved it so much that she would have skipped summer holidays altogether. Now as their parents, I think we are kind of looking forward to getting back into a routine and a scheduled daily practice. Whatever the case, before we know it Fall will be on the horizon. Maybe one of the most beautiful seasons of the year with it’s exquisite array of earth tone colours blanketing the landscape all around us.

For now, let’s stay in the summer season and not wish away the time. I certainly wouldn’t do that, I wish summer could last forever. This has been one of the better summers I had in a long time, mentally speaking, not saying that it hasn’t had it’s share of struggles and challenges. The Spring and early Summer for me was a tough time, my mental health wasn’t what I would call great; I was fighting just to be okay. It got to a point where I knew I had to do something medically or if not I was spiralling downward into that dark hole of despair. As I already alluded to this in my previous blog, my doctor did prescribe 2mg of Abilify to my already existing regimen of medication.And to my amazement I believe it has helped me in a way that I have more energy, I now want to do things, I don’t have that hopeless and helpless feeling of utter grief. Don’t get me wrong, I’m not doing any cartwheels but neither am I nonfunctioning; there are some things that I now can do that I couldn’t do before. And sometimes it’s those little things that matter the most, the things that most people probably take for granted. But for someone like myself who suffers from chronic depression and anxiety, every little thing matters so much. The reason being, that in a moment all of that could change. But that is why I live in the moment or at least I desperately try to. I try not to dwell on the past or the future but I live for the moment because really that is all we are guaranteed and all that we really have.

Having a predisposed genetic mental illness leaves you with that fear that you are not totally in control of your own mental health. Yes, you can do everything right, everything that is medically available to you, everything that you know that could improve your mental health but there are no guarantees. Although I’m feeling okay right now (I didn’t say perfect or great or cured); I’m okay. But down in the recesses of my mind lurks that ever present monster, just waiting to pounce, waiting to devour you and leave you mentally drained and exhausted.

I live with that fear every day, does that fear always win? No, but on bad days, days that I have no control over; I lose my battle. But then I start all over again. And that’s what I have to do; start all over again! Never give up, never give in! Fight!

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Today is a ‘GOOD’ Day

Ten years have flown by since my mental breakdown in 2012. And for those years I cannot recall having what I could say was a ‘good’ day. Everyday was a struggle, everyday a fight, everyday a battle to just survive.

The past couple of months had me in a frenzy, I was in a state of panic, a fear that I was getting worse or even on the brink of a relapse. I knew I had done everything possible to keep my mental health at a functioning level but I realized I was loosing this war once again.  And I was heading back to hell but I was determined never to go there again.

So I took matters into my own hands and realized what I had to do at this point to prevent a relapse. I wasted no time in making an appointment to see my doctor. I sat in her office and unleashed my bent up emotions and talked to her about every thought that was causing my brain to race like an hamster on a spinning wheel; running but going nowhere. She listened with an undivided attention, soaking in every word. She was listening!

Once I was done my ‘speech’ and looked at her with the eyes of a dying puppy; she knew I needed help, I was desperate. My heavy eyes told a story of horror and hopelessness. But she reassured me that it was going to be okay, that there was hope. Her advice to me was to first start by increasing my mirtazapine, which I had no objection to. Nothing else was working for me and I was totally helpless, drowning in a sea of despair. But this was going to be my first plan of attack; to increase one of my medications.

Two weeks went by, I felt nothing, no change either way. I knew deep down that this wasn’t working. After a little over three weeks I could take it no more, something else had to be done. Once again I made a virtual appointment to talk to my doctor again. She knew before I could even tell  her that this wasn’t the answer. The next tool from her toolbox was to add another antidepressant (Abilify) to my already existing maxed out Effexor; I was at the maximum dose that a patient could take. So she decided to cautiously try me on a very low dosage (2mg) of Abilify. I hung up the phone and prayed to God to please let this one give me at least a little relief; a little was better then none at all.

To my amazement and optimistic anticipation, I felt something that I haven’t felt in years. I was and still am afraid to get my hopes up, to be hopeful because I have had my hopes shattered so many times over the past years. I will take this one day at a time. If I get a good day here and a good day there, then I’ll take it.  Anything is better then what I had lived with for the past ten years. But this medication seems different, almost like nothing I experienced before. It has settled my racing mind, maybe even giving me a feeling of hopefulness. But deep down I’m scared, scared that this is not going to last, that it is all just wishful thinking. But I  pray I’m wrong and this medication really is going to be my miracle, my light in the darkness, my sunshine in the rain.

Even if this reprieve doesn’t last, I will remember this short but amazing sense of freedom from my mind, even if it’s only for a few weeks. My heart is filled with so much gratitude and thankfulness that my cup overflows. Is my days of fighting this horrible illness over? I don’t know but today I’m having a ‘GOOD’ day and as the tears flow down my face, for once they are tears of joy. Like any illness, we are never guaranteed a complete cure; there is always the fear of it’s ugly return. But for today I’m having a ‘good’ day!