2020; A Year We Would Not Soon Forget

January 20, 2017 was my first post to my blog; www.harrislisa72.com. Life & Times Of  “The Tuckers”. ‘Living with severe depression and anxiety. Raising a child with cerebral palsy. The ups and downs of life; the rain and the sunshine’. A form of therapy that brought me through many very dark days. And here I am, January 2, 2021; posting again. Never in my life did I think this blog would last for years and would eventually be published into a book. And may I go further and say, books (two at the least). I can always dream; dreams do come true. This, I feel, will be a cause to pause from writing about my illness. As therapeutic as blogging has been for me, it has also been exhausting and draining; I’ve been misunderstood, stigmatized, traumatized and ridiculed. But that came with no surprise to me; it’s what having a mental illness does to a person. But I still had to write the truth, no matter what. What was meant to start out as therapy for myself, also became a means to help others, through my own experiences with a mental illness. I learned that, much like everything in life, we cannot change the world; nor did I think I could. But I did think I could help one person at a time. And if that meant putting my heart and soul into my writing (raw & honest) then I was willing to do so.  If it meant helping someone else, to save one life, then I was successful in what I set out to do.

In 2012, I had my last relapse, and was told by my doctor that I would not be going back to work; if ever. And here I am in 2021, still fighting my disabling, crippling, tormenting illness; an illness that has left me fighting for that one ‘good day’. But inside this physical body a war is still raging against my mental health. Over the past few years, life has introduced many triggers, many uphill climbs, many times when I just had to crawl. But I fight with what I have and there are times when that may not be much. But I fight!

When I look back over the past year, and wonder how I survived, I really am in awe that I am doing as well as I am. The year was filled with much sadness, loss, sickness, discouragement and I could go on, but what amazes me the most, is that we are still fighting; fighting against all odds.

When Lauren was diagnosed with Spastic Quadriplegic Cerebral Palsy in 2014, we knew we were going to encounter many challenges and obstacles; but we had no idea just how many; it was one thing after another, there was no end. We were told, when she was around one year old, that her vision was affected, they just couldn’t tell us just how much she was seeing. Being the naïve parents we were, we just  thought,  when she gets a little older she’ll just need glasses and that’ll take care of her vision. We were so wrong again.  When she was referred to the CNIB (Canadian National Institute for the Blind), we were literary in shock. We realized then that Lauren’s vision was not going to be corrected with a pair of glasses. My God, how were we going to get through this? How were we going to accept this? Sometimes you just don’t have a choice. Then she was referred to APSEA (Atlantic Provinces Education Authority) in March 2020. Their findings were what led to her being diagnosed with CVI (Cortical Visual Impairment). This has more to do with how the brain is interpreting what the eye is seeing. There is no cure per se. With intervention, improvement is possible, but not a lot of hope, in my opinion.

The year, 2020, began with Lisa’s surgery on March 16. This surgery was supposedly a routine surgery that would only require an overnight stay in the hospital. However, due to complications resulting from the surgery, Lisa was rushed back into the OR for emergency , life-saving surgery on March 17. This surgery resulted in  her being put in ICU on a ventilator, fighting for her life.

And if that weren’t  bad enough, the hospital was now on lockdown due to the worldwide pandemic of the Covid19 virus. Lisa had to experience this all alone because there were no visitors allowed in the hospital;  not even her distraught husband. You talk about an hell on earth, and that was exactly what we were experiencing. Lisa stayed in the hospital for eight days. Once released, we thought we were on the road to recovery; so we thought. To make a long story short, within five months Lisa was back in the hospital from August 23- September 3, due to more complications from that first surgery back in March 16, 2020; a nightmare for us all, especially our two children, Logan & Lauren.

Then, once Lisa was back home and settled in again, she had to find the courage to tell me that my sweet niece, Tonya, had suddenly passed away. Shock, grief and bereavement totally shot me down! The feeling of disbelief consumed my mind. How could this be? She was so young! Our whole family was lost in a sea of grief. A part of all of us was missing; that piece of your heart that you hold close to you, had now gone to Heaven.

It seemed like the year could not get any worse, but the pandemic was sweeping the world! Schools were closed for the remainder of the school year. Lisa was pretty much out of commission; what was supposed to initially be a six week recovery period, ended up to be a full year for recovery. And, here we were with a child that had CP, requiring 24/7 care; care that we had to provide on our own.  All the while, we continued to try to give our nine year old little boy as normal a life as possible.  In spite of it all, he was a trooper and we are so proud of him.

I had to believe that God was in the midst of all this chaos, because this was something we could not handle in our human strength. I prayed for God’s strength, comfort and protection to make it through these most trying times. He was and is faithful!                                                                                                                         

 

The Year I Died

In 2012 someone died. That someone was me. Something changed that year that I have fought to resurrect, fought to bring that person back to life; to resuscitate. It’s now 2020 and I’m still trying to find that person who died. My spirit died, my enthusiasm, my zest for life died. Some days are worse then others but this week as left me feeling numb, no motivation; I’m still missing me. And I don’t like the one that’s left behind.

The new me is in a constant struggle to survive. The fighting as left me exhausted, tired and numb. I find it so hard to feel happiness, especially since that’s all I want. I believe happiness is something you shouldn’t have to fight for but should come naturally. And after all these years I thought I would be at a much better place of improvement with my mental health. But it’s like I’m still fighting to keep me alive. Still fighting to resuscitate that lifeless me.

I remember back in 2012, my wife Lisa, described me as a ‘walking corpse’. I’m sure I’ve improved pass that acute stage but it’s been a battle I fought every day. How much can one person fight and how long can a person fight before they come to a breaking point? That’s the question I’ve asked myself during the pass few weeks.

This year as brought many challenges and obstacles for everyone. The worldwide Covid19 pandemic itself as added so much stress and anxiety to us all. But for us, those living with a mental illness, this pandemic as been a trigger and frightening experience and many have found it hard to cope. I’ve certainly had my moments that’s for sure. At times when my wife Lisa was hospitalized for three surgeries in less then a year. Then Lauren with her already comprised immune system was hospitalized for cerebral palsy related issues. And our son, Logan, was thrown around in all this chaos and turmoil; a strong but worried little boy, dealing with issues that no little boy should not have to face.

So in the midst of a world that was so frightening, unpredictable and isolated, I felt the pressure of having to survive. There were days I thought I would crumble but I knew I had to be resurrected to get through this yet another life changing crisis. I knew that if I crumbled we were doomed and I could not let it happen. I was reminded of the safety regulations repeated by a flight attendant on an airline prior to take off. And it was advice that I had to use during this very stressful time. The flight attendant would say, ‘In the event of a drop in cabin pressure; air masks will be released from above your heads. If you are travelling with infants, small children, seniors or anyone requiring assistance with their mask; put on your own mask FIRST!’ And that’s what I had to do, put on my own mask first and  then I would be equipped to help those that were in my care. I was resuscitated once again.

Maybe the year to come will be my year to be resurrected. The year I come back to life! For everyone’s sake, I need to return, I need to be there for my family, in every way. I pray for strength, wisdom and endurance to press on, to never give up. To live again!

 

 

 

 

 

Trusting God When Life Doesn’t Make Sense

How many times have I asked the question; ‘This just doesn’t make sense God?’ Why is this happening to me, to us? What is it you are trying to teach me? What is your purpose? No good can come from this, can it? I have travelled a long, hard road to get where I am today and even today, I stumble and fall, but I know I have to get up again. For the most part, I have learned to let go and to just trust God. Now, is that easy to do? Not at all, it is something I have yet to master, but everyday I’m learning. Taking your life, your family and just giving it all over to God is the hardest thing in the world to do; especially when you have a personality like mine, whereby I have to be in control of my life at all times.

But then trouble comes, life changes and you find yourself totally out of control, life is happening and you are not pulling the strings. Your perfectly controlled world falls apart. And you realize you are not in control at all! It is just terrifying. But yet God is speaking, in that still small voice; ‘trust me even when it’s not making sense!’

I guess you can say it all started back in March 23, 2008, when my Dad died. Why God? It didn’t make sense. I had not come to the place in my relationship with God, that my Dad did. He was diagnosed with stage four liver cancer and was given weeks to live. Our world, our family was loosing the one thing that held us all together. It made no sense! But Dad didn’t look at it like that, to him it made total sense. Either way he looked at it, he was not going to loose this battle. His faith and trust in God was unmovable. He said, ‘I have two options; I will walk out of this hospital an healed man or I will walk those streets of gold and find everlasting peace (paraphrased).’ Well he didn’t loose his battle with cancer, he is now present with the Lord; cancer free! It now makes total sense; death as lost it’s sting. Death is not the end, but the beginning.

Then on July 8, 2008 trouble knocked on our door once again. This is a door I did not want to open, it made no sense. After my Dad’s passing, Lisa and I decided that we wanted to have a baby, maybe even a boy; to carry on the ‘Tucker’ name, a legacy that my father would have been so proud of. So over the next few months we became pregnant and to make a long story short, only to be told at the ER that our baby didn’t make it after a ruptured ectopic pregnancy. The moment the doctor spoke those words, ‘our baby didn’t make it’; our world fell apart and God this did not make sense! How could it? Our baby was gone! We felt totally empty, alone, in shock and filled with grief.

After months of grieving the loss of our baby, we decided to try again. This time it did ‘not’ happen. But why not? This made no sense! We were told our only hope would be IVF; In Vitro Fertilization. So being so determined; IVF it was. And once the procedure was complete, we were pregnant again. On March 14,2011 we were blessed with a bouncing baby boy, Logan Kennedy Tucker. He’s now eight years old and hasn’t stopped bouncing since, thank God!

Life was going fairly smoothly and we were enjoying the privilege of being parents. But then around six months after Logan’s birth, trouble knocks again. There is no truer verse of scripture then the one found in John 16:33, ‘ In this world you will have trouble.’ Little did I realize just how much. I started having symptoms of depression; couldn’t sleep, loss of appetite, anxious, sadness, uncontrollable emotion, lost of interest in things I once loved to do, isolation. Before long I was in the depths of despair, a total mental and physical shut down. Why is this happening now? I should be happy, life was at it’s best; I had it all. This just doesn’t make sense. I was diagnosed with severe chronic depression and anxiety disorder. Talk about loosing control of your life, it was totally out of control. I could not work anymore and loss my will to live, I hit rock bottom and could not climb my way back to the life I had. God this doesn’t make sense. God I’m talking to you! Are you listening?

Then in the midst of all my darkness, God sent us an angel of light, a miracle, no IVF, a beautiful baby girl, Lauren Kennedy Tucker, born March 31,2013. I wasn’t improving by no means, as a last resort ECT (Electroconvulsive therapy) was my only option, my only hope. But much to my dismay, I did not respond to the treatment. Only getting worse, our lives were spinning out of control. God this doesn’t make sense.

Just when I thought life couldn’t get any tougher. On Lauren’s First birthday, she was diagnosed with spastic quadriplegic cerebral palsy. God this is not happening, this is making no sense. Here was a father struggling for his life and now our angel was given this life altering diagnosis. We were heartbroken and life once again was spinning out of control. We had control over nothing and when I say nothing, I mean nothing; we were at the mercy of God. We lost everything we owned. Now God, how am I supposed to trust you? But were there any alternatives, any better options? No, we were at the mercy of God, He was all we had and I realized later that He was all we needed. I had to learn to put my total trust in a God, who at the time, I could not feel or see. But that’s where faith comes in and I had to believe that my creator was in control and knows best. Isaiah 55:8-9 says, ‘For my thoughts are not your thoughts, neither are your ways my ways, saith the Lord. For as the heavens are higher than the earth, so are my ways higher than your ways, and my thoughts than your thoughts.’ I had to come to a point where I realized that I was the created, but He was my Creator and He was in control, even when I wasn’t. Trust, I had to trust!

I have had much trouble, not unlike any of you who are reading this, no one is exempt. I felt like Job’s wife in Job2:9 when she said, ‘curse God, and die’. But Job said in Job 13:15 , ‘Though He slay me, yet will I trust in Him.’ Many times I have felt like God had slayed me, God had forsaken me but I will still trust Him! God is not the problem but the answer. He is God, He knows what He’s doing, He’s in control and He loves us unconditionally. In my troubles He is refining me and teaching me what it is to trust Him even when it doesn’t make sense.

 

ASHAMED

It’s been weeks and I have written nothing. Not because I didn’t want to but because I couldn’t. I couldn’t lift that pen and start letting my pain flow onto the paper. I was ashamed of how I was feeling, ashamed that my depression swept over me like constant grief. I was like someone grieving over death and my grief was not getting any easier. So rather then writing about my depression/grief, I tried to hide it on the inside. I had shared my illness in countless blogs before and here I  am years later and still struggling. I was ashamed, ashamed that I can’t beat this beast within my prisoned mind. But then I realized, that’s why I have to write, to enlighten those reading, just what living with depression is like. It’s not always something that is here today and gone tomorrow. No, mine as lasted a lifetime. A lifetime of fighting, a lifetime of being ashamed.

I have had moments when I thought that shame was gone, times when I felt I had nothing to be ashamed of. But depression is not that forgiving, it will remind me over and over again. It will remind me until it as me beaten down so far, that all I want to do is hide it and suffer in silence. Well, once again here I am, fighting back! Fighting back with the little bit of fight that I have left in me.

My very good friend reminded me of just how brave someone is, that is fighting a mental illness. It’s in the words of this poem by Lana Rafaela;

I Think It’s Brave

I think it’s brave that you get up

in the morning even if your soul is weary

and your bones ache for a rest.

I think it’s brave that you keep on living

even if you don’t know how to anymore.

I think it’s brave that you push

away the waves rolling in every day

and you decide to fight.

I know there are days when you

feel like giving up but I think it’s brave

that you never do.

But there are some moments when I do give up. Moments when I just can’t fight anymore. Moments when hidden away behind closed doors; I just loose it and cry out to God, ‘I just can’t do this anymore’. I guess in some way, God reaches down and pulls me to my feet and says, ‘Now go fight, I am with you.’ And I do!

It seems the headlines almost everyday is filled with issues pertaining to mental illness. One such headline I read recently stated, ‘Pastor and Mental Health Advocate Jarrid Wilson Dies by Suicide’. (Notice they didn’t say, ‘committed suicide’, committed implies you performed an illegal act, for instance; you commit murder). Jarrid suffered from depression and often posted on social media about his own battles with the mental illness. His wife posted on Instagram; ‘ No more pain, my Jerry, no more struggle. You are made complete and you are finally free’. Prior to his passing he wrote a post encouraging followers to remember that even though loving Jesus doesn’t cure illnesses such as depression, PTSD or anxiety, Jesus does offer companionship and comfort. He confides that he had dealt with ‘severe depression throughout most of his life and contemplated suicide on multiple occasions.’ In his summer blog post, Jarrid challenged the idea some Christians have that those who die by suicide are condemned to hell.’

I’m quoting from an article published by Christianity Today. ‘Christians wouldn’t tell someone with a physical illness like cancer they are going to hell because of their diagnosis, he noted. Neither should they assume it of people with mental illnesses, which can lead many people to do things they wouldn’t otherwise do if they didn’t struggle.’

“Those who say suicide automatically leads to hell obviously don’t understand the totality of mental health issues in today’s world, let alone understand the basic theology behind compassion and God’s all consuming grace,’ he said.

We must do better at educating people on things they have a hard time wrapping their heads around. And mental health is definitely a topic  Christians around the world must yearn to better understand.’ It’s then we will be less quick to judge and swifter to be the arms of Jesus, showing compassion and tenderness without prejudice.

I am so thankful for the gift that God as bestowed upon me to be a mental health advocate. Having a first hand experience with mental illness myself has given me the drive, the passion, the compassion, the determination to break down the walls of stigma and judgement that is still so prevalent in our world today. This gift as not come without its consequences, misconceptions, losses, misunderstandings, isolation and hurts. But I believe that’s what Jesus was referring to when He said, ‘If anyone desires to come after Me, let him deny himself, and take up his cross daily, and follow Me (Luke 9:23).’ To follow Jesus was going to cost us something; the cross was not going to be easy to carry. This was not going to be a road of ease, feel good or prosperity path.

And so today I am still struggling, I still hurt, I still feel pain, I still have days that I can’t go on but I do. And for those of you who know exactly what I’m talking about; I pray for God’s grace and healing for all of us. Let’s go on, we can do this!

The Seasons Come And Go

Winter as finally passed and Spring is so desperately trying to unfold. With Spring comes that feeling of new life, new beginnings, fresh hope and a warmth that inspires the soul. The cold, chilly winter season as reluctantly become another memory in time. Much as happened; good and bad. But yet we have survived another season; another season of life.

I can’t honestly say that the past several months hasn’t come without it’s tough times. It’s been rough on all of us, to say our life is simple, would be an understatement. Living with mental illness and cerebral palsy would be enough to send any family’s life into a whirlwind. And lots of days that’s what it feels like; you are living in a whirlwind. Where life is spinning out of control and you’re fighting to hold the pieces together. Some days you may feel like you’re winning and other days like you are loosing the fight.

With my mental illness, I must say it’s still an everyday struggle but most days now, I feel it’s a struggle that I am winning. I guess it’s like someone who has diabetes, they still have it but they have it under control. And for me with my depression and anxiety, I feel on most days I have it under control.  But each day still requires a lot of self talk, keeping my thoughts from becoming distorted and unrealistic, trying to keep life as ‘normal’ as possible and live in the moment. Is this easy to do? No, not at all but if I am going to beat this living hell, then this is what I have to do on a daily bases, if I am going to survive; I can never let my guard down. And maybe with this new season of Spring may come new life, new hope and new beginnings for all of us.

Lauren has certainly had her share of pain, hurt and uncertainties. The cold winter months have found her spending most of it in bed, recovering from two major hip surgeries, that can only be described as horrific. No child should have to suffer what this child as endured and will still have to endure in the months to come. Her first hip surgery was performed in May 2018, the second was done September 2018. It’s now April 2019 and it’s only now that I can say that she is bouncing back from her ordeals. She as missed majority of her school year in kindergarten. We are now in the process of gradually introducing her back into the school setting, which as to be done slowly, cautiously and at her own pace, due to her high levels of anxiety. But she is doing fairly well and her school as been so accommodating during this transition period and for that we are so thankful.

Life for us as parents of a disabled child will never be the same again. And I don’t say that in a selfish way but in a realistic way. I know that the only parents that will truly understand what I mean; are parents that are privileged to have a disabled child. Lauren may be six years of age but right now we still have a six year old baby. We do the exact same things for her now as when she was a baby. Except now it’s harder because she as grown to be a big girl, who requires constant lifting. And the 24/7 care doesn’t end and doesn’t get any easier.

I believe that life for all of us at this season of Lauren’s life is a little tougher. Lauren is so aware, so intelligent and so full of questions; questions that we don’t always know how to answer. For instance, yesterday we were going outside and out of nowhere she asked, “Daddy why do I have to be in a wheelchair?” I’m sorry but I wish that no child would ever have to ask that question. She’s realizing now, more then ever, especially since she’s gone back to school; that not all kid’s are in wheelchairs. So she’s wondering and asking, why am I in a wheelchair? It was only recently she asked Lisa, “Mommy, when you were a little girl, were you in a wheelchair?” How can we live without having a broken heart? There will always be moments like these when our hearts are torn from our bodies. And just one more heart wrenching moment, when she asked me while we were just lying in her bed, “Daddy did you see me when I done a cartwheel?” And I lied and said, “Yes my angel and that was the best cartwheel I have ever seen in my life”.

Nature may have four distinct seasons; Fall, Winter, Spring and Summer. All of which will come and go at it’s own designated times. Much like the seasons of life. Right now I am at a different season in my mental health then I was last year at this time. And right now Lauren is at a different season of her cerebral palsy and we have discovered that those seasons are forever evolving and changing. We just have to learn to adjust to each individual season and to learn to find warmth in the coldness, sunshine in the rain, new life amidst the dying dreams. Healing and hope when the season as gone.

 

 

 

 

 

His Love Has No Limit

I believe it’s when I’m in the most pain, that God uses me the most. My pain triggers my brain to unleash what’s imprisoned in my mind. Some thoughts are impossible to describe by my pen, they have to be lived and felt in order to fully comprehend the pain they bring to one’s life. I am not referring here to the feeling of down-in-the-dumps kind of pain.

When major/clinical depression hits, and it can hit at any moment, without warning; one’s ‘self’ can disappear into the depression, you loose who you really are. Your personality is dissolved with your tears, your soul is destroyed by it’s flames, your being is no more. You exist, nothing more then a robot, you go through the motions. But you search and long for that ‘you’, the one that you once knew. The one that you felt love towards, now you hate what you have become. Not that I have become a monster but quite the opposite. There are times when it seems as though someone came into my space and turned the lights off; I was in complete darkness. That was the acute stage of this illness.

Today I still have this illness and struggle with it everyday. Not unlike someone with any other incurable illness have to struggle with theirs on a day to day bases. I still have days when I find it hard to even do the small tasks that need to be done, but I do them. I now know my limits and only do what I can with what I have. There are still days when sadness overflows me like a flood. And days when my strength and drive is at it’s lowest.

But having said all of that, I believe, and no I’m not getting all religious on you and no it’s not my illness or my medication talking, I am totally of a sound and sane mind. But I am going to tell you that the only way I have survived this illness thus far is through the constant presence of my Heavenly Father. On days when I am not doing so well, I hold onto His hand a little tighter. And when I was at the acute stage of my illness, when I could not hold on; then it was those days that He literally carried me. There is no other explanation. Nothing! The medical field can only do so much and then no more.

But then the Great Physician steps in. And that’s why I’m still here today, to tell you there is hope in Jesus. He is not my last resort but my only hope! And He can be yours too. No matter what you are struggling with today, no matter what your addiction is, no matter your illness, no matter your pain. It doesn’t matter how hopeless you feel, how far down you may be. Jesus can and will raise you up again! There is only one answer, when you feel you have exhausted all resources, He is ‘still’ there.

I want to leave with you a portion of a song that sums up this blog and reinforces what I’m trying to say:

His love has no limit, His grace has no measure, His pow’r has no boundary known onto men; For out of His infinite riches in Jesus, He giveth, and giveth, and giveth again.                                                           When we have exhausted our store of endurance, When our strength has failed ere the day is half done; When we reach the end of our hoarded resources, Our Father’s full giving is only begun.

I pray today that this blog as reached the ears of the hurting, to the heart that is broken, to the soul that is helpless; may you find peace and healing in the one that loves you unconditionally. He loves you just as you are, no matter what. And if He’s not your Saviour today, it’s not too late. He loves you just as you are; broken, tired, hopeless and lost. Ephesians 2:8 “For by grace are you saved through faith, and that not of yourselves; it is the gift of God”.

 

 

To Just Belong

We live in a Society today where people’s greatest need is to just belong. Society dictates a standard that we all strive to achieve. That could be what we think the perfect father/mother is or should be, to achieve financial security, to having the white picket fence and house, the largest truck, coolest car, nicest clothes, social status and the list goes on. The longer the list, the more stress and pressure it imposes on us to strive to be that person. But we can try to achieve all that society imposes on us but we will always fall short of what we think we should be.

The need to have that material gain, social status and that perfect life is a recipe for disaster. What happens when all of ‘that’ comes falling down around us. Our white picket fence falls down, our neighbor gets a nicer car then ours, or worse, we come home one day and our spouse wants a divorce. It can get worse; what do you do when your child/children or yourself get sick , you loose your house through bankruptcy and the beautiful clothes you bought become too small; your physical appearance is shot. Living in our world it’s inevitable that we will have trouble, things won’t always go as planned. No one has that perfect life that society and social media try so desperately to portray.

Let’s be real; life is not perfect!  What happens when death knocks on our door? And it will, that we can be sure of. Are we ready to face the most devastating and cruelest part of life; that being death. I think sometimes we need to take our heads out of the sand and be real, let’s be realistic; our bubble is going to burst sooner or later.

What do we do then? When the bottom falls out of our make-believe world. Will we be able to stand on our own two feet? How will we cope? I believe we have to build our lives on a solid foundation and when the winds blow, the storm comes, the waves crashes up against us, the fire consumes us to ashes; then we are ready to face anything that life throws at us. But I believe we have to build our house on ‘the rock’ (the parable of Jesus found in Matthew 7:25); the rock Christ Jesus. “And  the rain descended, and the floods came, and the winds blew, and beat upon that house; and it fell not; for it was founded upon a rock”.

What are you building your life on today? Will it stand against the storms of life? Or will you be washed away by the waves? Consumed by the storm! I have personally experienced my share of storms, but I’m still standing. Maybe because I chose to build on a firm foundation. It doesn’t matter if we do; we will still face storms, they will try to beat us down, wash us away, destroy us but God as promised to pick us up, to bring us through our storms; we are promised that He is with us, even ‘in’ the storm. We are never alone and He will meet our greatest need that Society can never meet; and that is our need to just belong. Isaiah 43:1 ‘Fear not, for I have redeemed you; I have called you by name, you are mine’.

So what are you searching for? Have you been disillusioned by life and Society’s expectations?  Do you feel you don’t belong, you don’t fit in? Mother Teresa once stated, ‘The biggest disease today is not leprosy or tuberculosis but rather the feeling of not belonging’. But let me encourage you today and encourage myself; we do belong, we do have a purpose, we are a somebody. You are loved! You belong!

 

Lord Help Us To Believe

Lauren asked Mommy, ‘Mommy are you sure Jesus is going to make me better?’ Wow, how do you answer that truthfully? What we want and what we pray for isn’t always what we get. Sometimes God’s way isn’t our way. Our timing sometimes is way off, we expect answers right away, but I believe that’s not the way it always works. And trusting God when your five years old little girl is in pain and can’t walk is very hard to understand and accept.

You see, Lauren as been in bed now for months, she is gradually improving but very slowly. She is so intelligent and because she is, there is nothing she doesn’t analyze. Therefore after all this time she as spent in bed and having so much pain and discomfort, she’s starting to question God. Everyone keeps telling her that Jesus is going to make her better. So she, being no different then ourselves, asks the question, ‘Mommy are you sure Jesus is going to make me better?’ Are we giving her false hope and unrealistic goals? Is she beginning to realize that I’ve been in pain and discomfort for so long and Jesus hasn’t made me better? Maybe He never will, maybe this is her life.

And I’m beginning to believe that maybe what we are telling her isn’t what God wants at all. It’s what we want and oh we want it so desperately. There is nothing I would want more then for her pain to end and she could just get up and walk. But is this what God wants? I don’t know, my thoughts are not God’s thoughts. I am trying so hard to believe and trust, when things aren’t looking that great. I believe that miracles can still happen and that God is our greatest option. But the reality is we are tired, worn down, worried, anxious and helpless. There are days when we feel we are sinking, our ship is going down, when we have no other alternative but to keep looking for that light, that beam of hope, it’s there somewhere, still shining; but the fog is so thick with life’s trials and tribulations that it’s so hard to see. We need a miracle, if not for healing, then for strength, hope and wisdom to endure, to overcome, to do what we have to do.

A family cannot experience what we are and it not affect the whole family unit. It’s tough on all of us and we struggle to keep us together. All four of us have experienced so much trauma in our lives, so much unforeseen change, that some days it’s near impossible just to focus on getting through that day. But we try to take it one day at a time and that’s not easy when the decisions you make today, could drastically affect tomorrow. We have to believe that there is someone greater, an higher power that is watching over us. Lord help us to believe.

The Seasons of Life

It’s Fall, one of the most beautiful, scenic seasons of all. The bright, vivid colors of leaves as they hold on tightly to the trees; not wanting to fall off. The cool, fresh, clean air of the wind whispers the ghostly sounds of Halloween. Winter is fast approaching with it’s chilly winds, sparkling blankets of snow and all the trees are laden by the weight of the white, sugar-like powder on it’s branches. The seasons come and go, we have no say in when and where, much like the seasons of our lives. Life is built around seasons; some cold and sad, some warm and happy, others filled with uncertainty and unpredictability but this one thing we know; they will come and then they will go. Nothing last forever, not even the seasons of life.

Today is Halloween, ironically you can feel the airy, ghostly feeling of the season, as I glance out my window at the grey, silent atmosphere. With nothing but the sounds of black crows screaming in the distant air. I wonder what they are saying? ‘Hurry winter is coming’! Or maybe, ‘Halloween is here, watch for the ghosts and witches flying overhead’.

Logan is gone to school, overflowing with excitement and wonderment of what the day will bring. Halloween is here and all the excitement it allows for kids, even the kid in all of us. Logan decided to be ‘pikachu’ from pokemon. And of course so did Lauren (her’s is a girly pikachu) but sadly, Lauren can’t get out this year. Right now she is still confined to her bed and only gets out when it is absolutely necessary and that is always against her will because when she moves she is in so much pain and fear. But we will try to put her costume and give her a form of Halloween. It fills us with so much sadness but we will make it as special as we can for her sake; sometimes the seasons of life are not very fair or kind.

Maybe the next season, things will be better. It is so easy to loose hope and faith when your season of life is a boisterous winter storm. But maybe, just one day, our season will change to the bright, sunny days of summer. And from the wise words of my father, ‘Tomorrow will be better’. I will cling to that hope and believe in his wisdom, that things will get better.

The Day After

My eyes opened and I knew I had to face this day. How am I going to do this? Exhaustion consumed my body before my feet touched the floor. But I knew I had to begin somehow. I felt empty, lonely;  I have to write, there is healing for me through writing. Expressing my thoughts on paper, clears my head, helps the hurt flow through to my pen. This hurt is going to take time, I know it’s not going away in an instant. For how do you say good bye to your best friend and expect not to hurt even when you know it’s not really good bye but see ya later buddy!

It’s that period in between that you wonder how you’re going to cope. I have to believe there is life after death, that there is more to life then this. If not, what’s the point? I have to have faith and trust in something or someone bigger. Which will lead me once again on a path to find answers. Questions that I really already know the answers to. But today I need confirmation and thus my journey down life’s path begins once again.

If my path leads me to the ‘Big Bang Theory’ then it’s there I will certainly find no hope. We live, we die, the END! I can’t accept that, I cannot live my life with no hope. It would be like I were nonexistent. There would be no purpose, a life lost in the wind. I really don’t like this ‘path’; it’s cold and hopeless. I think I’ll turn around and take a path that leads to hope.

This path is much brighter, I see light, bright beams of hope. I think I’ll take this ‘path’ which leads to a Creator; a God that is all knowing, all powerful and everywhere present. A God that loves us and gives us so much hope and purpose and love; for ‘God is Love'(1 John 4:8). For He promises us in 1Thessalonians 4:13,14 “But I would not have you to be ignorant, brethren, concerning them which are asleep(died, passed away), that ye sorrow not, even as others which have no hope. For if we believe that Jesus died and rose again, even so them also which sleep in Jesus will God bring with Him”. 4:16 “For the Lord himself shall descend from Heaven with a shout, with the voice of the archangel, and with the trump of God: and the dead in Christ shall rise first” 4:17 “Then we which are alive and remain shall be caught up together with them in the clouds, to meet the Lord in the air; and so shall we ever be with the Lord”. Wow, what amazing promises of God. There is no greater hope then this, death is not the end but the beginning! Cancer did not win and will not win, if we die in Christ we will never lose our battle with cancer, it’s then we are cancer free, we have won! To quote my father on his deathbed, “Either way I will win! I will be healed and go home or die and go to my heavenly home”. Where we read in 2 Timothy 4:8, “Henceforth there is laid up for me a crown of righteousness, which the Lord, the righteous judge, shall give me on that day; and not me only, but unto all them also that love His appearing”. Amazing!

Do you love His appearing? Do you believe in the return of Jesus? Do you believe in Him? Do you believe in John 3:16 “For God so loved the world that He gave His only begotten Son, that whosoever believeth in Him should not perish but have everlasting life”. That is the gospel in a nutshell, its that simple! Billy Graham once said, ‘that once you heard the gospel message once; your life would be forever changed; whether you accept it or not, you will still be changed’. Because if you do not accept Him, you now have the knowledge of the gospel and will be forever etched into your mind. I’m loving this ‘path’ I chose.

The song says, “But until then, my heart will go on singing, until then with joy I’ll carry on, until the day my eyes behold that City, until the day God calls me Home”.

But for now, God didn’t leave us helpless, alone or rejected. He promised to walk this path with us, to never leave us or forsake us. He promised us strength for every step of the way; ‘Isaiah 40:31 But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run and not be weary; and they shall walk, and not faint’. So when life’s losses, troubles, illnesses and tribulations weigh us down to the point of exhaustion, we have the promise that we wait on Him, He will renew our strength again! I am overwhelmed by the mercies and promises of God. Now this is Hope!

“All is well with my soul, He is God in control, I know not all His plans, but I know I’m in His hands.” I want to end this blog with a verse from 1 Corinthians 13:13 “And now these three remain; faith, hope, and love: but the greatest of these is love.”