“Oh Me Nerves”!

How many times have I heard the phrase, “Bad Nerves”, in my lifetime? Is that something like an ingrown toenail? Maybe its the flu or diarrhea? Sorry but I’m real, not here to win any popularity contest, say it like I see it. That phrase to me is an insult, that minimizes the reality of someone suffering from depression and/or anxiety. It takes away from the actual seriousness and pain of this illness and suggest a far lesser degree of intensity. Oh, they just got ‘bad nerves’! That may have worked fifty years ago but not today.

This disorder needs to be taken more serious and may I suggest that the medical field would do the same. If this were the case, we would see far less suicides which stands now worldwide at, “one suicide every forty seconds”. That blows my mind; no pun intended.

One problem is; why are people so reluctant to take medication for this illness? I believe in part it’s the shame and stigma that goes with this illness. If I take medication I must be weak. Why can’t I fight this illness myself? It’s like all other illnesses that require medication. Would I tell someone to stop taking their insulin because they can beat diabetes on their own? Off course I wouldn’t. Then why are people so quick to tell someone; you don’t need medication, you can do this on your own. I’m sorry people but medication can and will help this illness if the correct drug is found for you. Every individual is different and what medication may work for one person may not work for the other. But that doesn’t mean you can’t find the correct one and find the one that’s right for you. Never give up!

Then there’s the timeline people put on this illness. I didn’t know there was a certain amount of time allocated for recovery or improvement.Every person suffering from this illness recover (and I use this word loosely) at different degrees and some take longer than others to reach a functioning level again. One cannot put a time limit on this illness, it’s a one day, one hour, one minute process. And to be truthful I don’t know if anyone is ever fully recovered from this disease. It’s like cancer, once you have it there’s always the fear of it’s return. But we live in hopes that we can live a happy, functioning life again. Right now I am functioning but not at a level where I want to be; I will never give up, even if it kills me. I will die from trying to beat this disease. I can’t and won’t accept that this is the best I’ll ever be; I will be better.

I also believe the Church Community need to take this illness more seriously and be held somewhat responsible for sending mentally ill people to an hellish grave. I know this may sound harsh but if it gets us talking and searching for God’s direction, then I have accomplished what I sat out to do. Churches are scared to death to even touch this topic, so they do nothing at all. But are quick to judge the fate of one who has lost the battle with this illness. Let’s leave that to God, for it is not our place to judge. And because I have this illness doesn’t mean that God is going to take it all away.He can but because He doesn’t, it doesn’t mean He’s left us alone and we are less in His eyes. The bible says, ‘I am the apple of His eye”.

This has been a long five years battling this cancer-like illness. It has eaten away at who I was and I may never get that person back again. But I will certainly be the best person I can be with what I have left. It has stolen so many lost moments with my wife and children and for that I will forever hate this illness. Try has hard as I must, I know I still have to fight to live in the present moment. For those who are reading this and can relate, I pray that the God of love, mercy and grace will look down upon us and pull us out of this horrible pit. And for those who are reading this and don’t get it, that’s ok, be thankful that you have not had to experience this nightmare. But may God awake you from your slumber and open your eyes to those around you who are suffering in silence, maybe in your own family. May He open your minds to get a glimpse into what this illness really is.

Call it what you may; Bad Nerves or Major Depression and Anxiety Disorder. The truth remains, many are suffering this horrible disease who are looking for someone to “just take them seriously”.

Finding the Light

After several visits to my physcritrist, after my latest severe relapse about 5 years ago; he started talking about filling out the papers to apply for Canada Pension Disability. What was he talking about? This is a doctor not a social worker. Why would I be needing that anyways? Give me a few months and I’d be back on my feet, as good as new. But he knew the difference, he knew my history and knew the severity of this breakdown. I would not be going back to work anytime soon, if ever.

You talk about panic sitting in, like the waves of the ocean come flowing over me. This is not the case, he doesn’t know what he’s talking about I thought. But now five years later and still not back to work; I guess he did know what he was talking about. Why couldn’t he be wrong, just this once; for my sake, for my families sake?

If there ever was a time when I needed to work; it would be now. With two children and my wife off work on sick leave. But knowing in my mind that this would be the last thing I could do on this earth. As bad as I want to and need to, I would not be able to.

So the question remains; which could change my life tremendously is; is there a cure for my illness, major depression and anxiety disorder? I am now speaking for myself and my diagnosis (not for anyone else because everyone’s illness is different. In reality there is no cure for my illness. Looking at my outward appearance at present, one would think that I am in full recovery. Oh I wish that were the case. There is nothing I would pray for more (other then Lauren’s healing) than to be fully recovered. But people look at me and say, “but you look so good”. And I say, “thank-you” but what you see is not what you get. For on the inside my struggle, my war still rages; on a lesser scale but none the less, still there.

I will compare my illness to that of a diabetic. You have diabetes, you keep it under control, but there is no cure. You maintain your levels on a day to day basis. So it is with my illness, I take it one day at a time and that’s all I can ask for. Dr Douglas Bloch, well known author and psychiatrist says this,”Depression is a relapsing condition, we cannot cure it but we can manage the symptoms”.

Just as with other genetic transferred illnesses, mine was passed on to me at birth. I always knew from a young age, that there was something not right. That’s why at sixteen I had a mental breakdown and suffered other relapses throughout my lifetime. I don’t remember too many times when I was not on an antidepressant. It plagued me my whole life. It was like taming a lion, sometimes it would settle down but other times it came forth in full fury.

So, for now I have to keep my symptoms under control. And watch for warning signs such as; loss of appetite, disruption in sleep patterns, feelings like you are losing control, withdrawing or isolating from others and feelings of hopelessness. If these start to surface than I know something’s wrong.

I wish I didn’t have to be honest and real about my illness; I wish I could paint a prettier picture and say, yes there is a cure but I believe that would be like saying,”there’s a cure for cancer”. Truth to be told, in the recesses of my mind loomes the ugly reality of this disease. If you are one of the lucky ones who feel have beaten or cured from this illness, then I am happy for you; very happy! But for the majority of us we have to accept the fact that this illness is not going away totally. Just like my heart disease, mitral valve prolapse; ain’t going away. Or Lauren’s cerebral palsy; ain’t going away. But without a miraculous healing, we will live life above our illness and not be defined by them. Lauren is a typical four year old little girl who has dreams and aspirations just like any other little girl. Maybe with a few more challenges and obstacles, she will rise above it and “shine her light.”
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And has with my own illness, I will rise above it and shine the light. Amidst all the stigma, misinformed persons, people with “perfect” mental health, people who have all the answers, an illness that is so misunderstood and unexplainable; I will be the light for others. After all the blogs I’ve written, I feel I have only scratched the surface. We will find a cure, we will find the light.

By accepting the fact that there is no cure for my illness, doesn’t mean that I have given up or given in to this illness or have loss all hope. It just means I am not in denial anymore, it is what it is. Just like someone having cancer, you don’t want to believe it or accept it but in the process you finally realize the harsh truth and reality. We never loose hope, no matter what the diagnosis or prognosis. The energy and strength we put into fighting the reality of our illness, we can now put into fighting the illness itself. And that’s when the light starts to shine, glimmers of hope, a speckle of light at the end of the tunnel, it’s then we find “the light”.

The Biggest Threat To My Mental Health

The rain is coming down in buckets or is it raining cats and dogs? Either way; it’s raining. And just like life, the sun doesn’t always shine, there has to be some rain sometimes. Eventually the rain will end and the sun will shine again; that is one thing we are guaranteed in life, nothing last forever. So it is with my illness, I have days when it’s pouring rain but then there are days when the sun shines again. There will come a reprieve, a calm. It’s my belief that for a lot of us, this illness never fully goes away; but that doesn’t mean we can’t have sunshine in our lives. There are several threats that impedes this ray of sunshine from shining.

The expectations that society has put on mental health is one such threat. We are expected to put on a pretty face, a smile, and pretend everything is ok, so others won’t be exposed to our illness. And in so doing it will alleviate them of their uncomfortable, social phobia of mental illness. I swear some people think this illness is contagious. Trust me it’s not. Society needs to realize this is an illness just like any other illness, certainly not a threat, we just want to be accepted and not treated has a second class citizen but as a human being that is suffering on the inside. But in a way that you cannot see because it’s not a physical illness but oh so real on the inside. A pain that you cannot see.

Let’s attack the Government again; like its going to do some good. I’m not being a pessimist but a realist. I think one of the last things on the “to do list” of our Government is to invest in the growing epidemic of mental illness. My heart goes out to all those who are suffering with no help available.Therefore I consider the Government a very big threat to my mental health and I hold them accountable for lack of treatment, support and availability of humane facilities.

And of course stigma isn’t a word that’s going away anytime soon, when it comes to mental health. The minute the words itself, “mental illness” is mentioned; the red flags go up. It is one of the most stigmatized issues in our society and that is really too bad. It is only when we speak out and began talking about and educating society on this issue will these walls of stigma come down. I’m certainly open to talking about my mental illness. I just hope it’s doing some good and not falling on deaf ears. Because if the walls of stigma did come down, even somewhat, it would certainly help in diminishing the threat against mental illness. And one less thing that we as sufferers would have to deal with. And would be able to concentrate on getting well again.

But the greatest threat against my mental illness is; “Myself”! For me and I am only speaking for myself, that sometimes I was my greatest threat. I put too much trust in others and hoping for someone or something to make me well. When really I needed to search within myself; I had and have more strength and wisdom then I realized. I was afraid of what others thought of me if they knew I had a mental illness. Big deal what someone else thinks, they are not walking in my shoes. What really matters is what I think of myself. And yes there are/were times when my self confidence, my self worth and my sense of belonging was very low. But gradually over time, I realize, I am no different then anyone else out there. We all have our struggles, failures and insecurities. And me having a mental illness, doesn’t make me any less of a person then someone who doesn’t. I’ve begun to realize that I can’t look at myself as being different but unique, equal and not a threat to my own well being.

So, from now on, I will hold my head up high, walk with confidence and not be ashamed of my mental illness. I will shout it from the mountain tops and before long others will follow and not be threatened by anyone or anything.

Monique

Inside My Broken Mind

It’s evening, my high point of the day; evenings seem to give my mind a little reprieve. I feel like a minister preparing for his sermon. What can I say that would help someone today? What can I say that would help myself today? My search for healing and peace are never ending.

I compare my mind to that of an hamster on a hamster wheel; always moving but getting no where. Thoughts enter your mind that we have no power over. What we have to realize is that; that’s all they are, thoughts and nothing more. Taking control of these thoughts and realizing that they can’t harm us is the first step to recovery.

While these thoughts are controlling our mind, we have to concentrate on our breathing, that distracts us from our thoughts, which are usually dark and ugly. It is a never ending nightmare. Yet we long for night time and sleep to escape our nightmare. Sleep is our only escape.

We watch everyone around us, living life as if all is well, but in reality we know it’s not. We want the world to stop and let us get onboard. We’ve fallen off and can’t get back on. We are swimming in an ocean of pain, trying to keep our head above water and hopefully one day will learn to swim like everyone else. But right now we are drowning; drowning in our own thoughts.

Everyone experiences depression differently. But during my major episode, the world looked dark, what was beautiful; looked ugly. The simplest task seemed impossible. I felt I was slowly dying while watching everyone else play, laugh and smile. Those things felt impossible for me, that I was not worth any of them.

Depression is utterly isolating. You hide inside your head, knowing that no one can see what’s going on inside. You live in a world of your own, afraid to come out. An overwhelming fear of your own life and mind.

Everything seems meaningless, including previous accomplishments and what had given life meaning. Anything that made you feel a sense of self-worth, self confidence or self value; just vanishes. But over time, with a lot of hard work, you can find meaning again. It’s difficult to describe all of this in a way that someone who’s never experienced it can make sense of it, because it never always made sense to me.

My depression manifested itself through uncontrollable emotion. But a better way of describing it is a constant feeling of numbness. You felt nothing!

When you wake up, you don’t want to get out of bed; life just seems too big, too unbearable. All you feel is sadness. You wish you could sleep all day and never wake up, where dreams are better than life (the life inside your head). Sleep was an escape from reality. But I have taught my brain that reality is not that bad and I can get through each day (one day at a time).

Now I try to stay outside my mind, not always listen to what my mind is saying. But enjoy the things that I do have around me and be thankful for the little things. This takes time and practice but it’s what you have to do if you are going to survive this “battlefield of the mind”.

Relapse Prevention

Depression like addiction is an ongoing  chronic condition that is subject to repeated episodes. My first episode was when I was only sixteen , I remember very little about this time. I do remember I spent most of my time asleep and could not function. Totally shut down. I also remember going to the doctor and have him send me home with no help whatsoever. He just said, “there is no medications available for teenagers or youth. There was no help, I had to sink or swim and I was sinking fast; drowning in my own despair!

Recovery from depression is not a one time event, it is an ongoing process. Getting out of depression happens in two stages; 1. You have to get out of hell, 2. You have to stay out of hell. The best way to prevent a relapse is to closely monitor your own feelings and mood.

The beginning stage of a relapse is disruption of sleep, appetite change, more tired, worrying, apathetic, etc. Being aware of these early signs and nipping them in the bud, before they escalate into something worse is a must.

The second stage of a relapse is called “beginning of a crisis” when things are shutting down. When symptoms are interfering with your everyday  functioning. Reach out for support; call your doctor, your therapist  or anyone you know that can help you through this. This stage is my greatest fear because you feel like you are loosing control again. And you are heading back to that ugly place where you never want to go again. This stage doesn’t necessarily mean that’s where you’re headed. It’s your body and mind saying, “you come first, take care of yourself”. Before you ever get to stage three you need to be proactive.

This is stage three where you don’t want to be ever again. But if you do, don’t loose hope! You will get through this; you’ve done this before.  This is where you can’t function anymore, you become disabled; a full blown relapse. It’s here you may need to go back in the hospital. Or have someone  to take care of you at home. But you will pull through this again. Just don’t give up the fight,never loose hope.

Throughout my lifetime I have had many second stage relapses or episodes as I would call them. Where I became very depressed and required  medical attention. A visit to my doctor usually to tweek my medication and in a few months I’m doing fairly well again. Most of those times I am still at a functioning level. I ran my own business for about 28 years. Take a few days off,here and there, and do a lot of self-talk, family and friends support and pray.

My last episode was a full blown relapse where I was hospitalized, various treatments, medications and a period of time when I didn’t want to fight anymore; I just wanted to die. It as taken me four years to crawl out of this abyss. To say the least this as been a battlefield of the mind. I have fought with every ounce of strength I have.

These pass few days have been very fearful for me; it’s my greatest fear in life that I would relapse. I’ve been doing fairly well for the last few months. But this week as been rough, I am feeling more emotional than usual, uneasy, a feeling that you know inside that something is just not right. You have to push yourself more than usual.  I’m hoping that it’s a trigger that I’m facing and not a full blown relapse. You see our dog, Brady, passed away a few days ago and maybe what  I’m feeling is grief and loneliness. He was not “just” a dog, he was a part of our family for twelve years. So I pray to God, in all His mercy, that He will not put me through a relapse ever again. And that I will overcome this battle once again! Maybe this is just a bump in the road.

Depression is a Choice! Words Matter!

Be careful the words you say…. they could kill!

The Bob’s of the world are out there and they believe that we have a choice. We choose to be depressed. I am so tired of hearing this and then there’s ‘be strong’. Are you trying to say I am weak? I’m sick! How can you be depressed, you have everything going for you? You have a beautiful wife, beautiful kids, a nice house, etc.. What’s your problem? I don’t have a problem, I have an illness. If I won the lottery today, it would not make any difference to my mental health; that’s not the way depression works.

We are not talking about someone who is down because their cat died or a down day; feeling a bit blue. Everybody have days like that but what I’m talking about is a neurological, biological, chemical issue with their brain and they don’t know what’s going on, they are scared to death. The last thing you need is someone minimizing, misunderstanding and misjudging you.

The thing about clinical/major depression is people on the outside cannot see it. You don’t wear it on your chest (you probably should, then people might get it). You wear a smile on your face and put on a fascade that you could win an Academy Award. That person appears great and then they kill themselves. But they looked and seemed fine the last time I saw them! We can fake it to the bitter end  if we think we have to. We don’t wear our depression on our skin like a rash. To preserve our pride, dignity, our ego; to hide from the Bob’s. Don’t listen to these people who think they have all the answers; the Bob’s of the world, they will always be. But don’t take it personally.

Let me paint you a dark picture Bob. You might walk around self righteous, in your “good” mental state and say something ignorant to a friend or family member (who is suffering from depression), that you make them feel so embarrassed, ashamed, so unworthy of their illness, insecure that they are not stable like you, that they might go and kill themselves. You might have killed someone; that’s what ‘words’ can do.

So if you don’t know what you’re talking about; shut up! I know we have the well do’ers who think they’re helping by saying certain things like; ‘be strong’, ‘think positive’, ‘you don’t have anything to be depressed about. You’ve been blessed if you have not been clinically depressed or dealt with major depression, anxiety or suicidal thoughts. But we are not that fortunate. So saying something hurtful (maybe not intentionally meaning too) but you say it anyway; can push that person over the edge. So be careful what you say, is it really going to do some good or will it harm someone, think before you speak. Some of us don’t have that luxury of choosing to be well, it just happens and out of our control.

We all need to look out to each other, we all matter, each life matters. The people that are depressed, didn’t ask to be depressed. If you have nothing nice to say, say nothing at all. And pray, pray you never get depressed. If I could pass this illness over to you for just one moment; you would never say something insensitive, mean, ignorant, cold ever again.

So overlook the “Bob’s” of the world. You matter, what you feel is real. Embrace the people that understand and truly care. You’re going to be ok! Don’t listen to the Bob’s of the world but listen to your own heart. And to the Bob’s of the world; SHUT UP! WORDS MATTER!

The Cold, Hard Truth About Mental Illness, Depression and Suicide

  1. II thank God for social media because it gives me a voice, a means to tell my story to others who need to hear it.

Up until recently, I thought that society had come a long way when it comes to the way people look at mental  illness and suicide. I thought the walls of stigma and ignorance (not knowing) had come down somewhat. And maybe they have to a certain point but we have such a long way to go.

You may ask, why would you go on such a public forum and talk about something so stigmatised and controversial? A topic many would not even talk about because of fear and shame. Well, I have nothing to fear, nothing to be ashamed of and if I can help save the life of one person; it would make it all worth while. So I speak out once again!

To the person who is suffering in silence, you are not alone. There is hope and peace to be found again. I struggle with this everyday, but I see light through the cracks, glimmers of hope in the depths of despair. We can and will; ‘rise again’!

I don’t get up in the morning and say, “I think I’ll have a crappy day today, that would be so much fun”. NO! I awake with panic, a flow of an hot sensation all through my body, accompanied by fear. I get up and struggle through most of the day, hoping this will be a “good day”. It is not “a choice” as some would say or think. Your broken mind is misfiring and happy thoughts don’t come naturally. The chemical imbalance in your brain causes you to see darkness, hopelessness, helplessness and constant negative thoughts that a “normal” brain would not feel. Don’t get excited and think you’re normal – there is no such thing; we all have something, none of us are perfect.

Then there’s the “myth” that it’s the devil making you feel this way. Well let’s not give the devil so much credit! This is not a spiritual battle going on in my head, no more then someone with cancer fighting a spiritual battle, they are fighting an illness and so are people with a mental diagnosis. Yes, I believe as sin entered the world, so did sickness. It’s far beyond my mental ability to understand the “WHY?” I don’t know why God allows this to happen, why I’m sick, why some die by  suicide, why some have cancer and the list goes on. But God’s ways are not our ways and His thoughts are not our thoughts. We cannot see the big picture because our thinking is so small compared to that of an all knowing God. And that’s where I leave it; to God! It’s not for me to say or judge, that’s His department. I just need to trust that He knows best.

Then there’s suicide. What? You are going to talk about suicide? Yes, indeed I am. The ancient myths, lies, opinions and beliefs about suicide are sickening and primitive. It’s time to open our mouths (we use it for everything else) and our eyes, minds, and hearts. I am/was borderline suicidal, when I was at the acute stage of my illness. I prayed to God to just let me die and end all this pain and torment. I could not come to do it myself, not that I’m any stronger then the next person but I believe God as another plan for me and that’s why I’m still here. To be an advocate, a voice; to help others and their caregivers and to give insight on what this illness really is all about. Some statements that I have heard over the years are: 1. If they took their own life, they must be going to hell. 2. That is such a selfish thing to do. 3. They could not have thought about their family and the impact it would have on them. These statements would definitely come from someone who has no idea, no knowledge about the illness and never walked in their shoes.

First of all, the pain and torment that this illness brings is unbearable and you feel the only escape, the only way out is suicide. You see no hope, only a dark tunnel with no light at the end. You get so desperate and so tired of fighting, until all your strength is gone; you have nothing left but flesh and bones, no ability to reason. Thus death is your only way to find peace. Also this is not a selfish act or cowardly way out as some would say but quite the opposite. It is a way to relieve your caregivers of the burden you have brought into their lives. It’s a way to free them of the worry, pain and suffering you have afflicted on them. So you are convinced that they would be better off without you. You are doing them a favour. For those of you who have suffered a lost of a loved one, know now that they are finally at peace and they did this to free themselves and you of this horrible, horrific disease. Do not be ashamed or angry; it was their illness that made them do this. The real person that they were, is now at peace with the angels and are watching over you from afar.

I hope in some small way I have shed some light on this so misunderstood and complicated disease. May we all find compassion, love and forgiveness and  look at mental illness in an whole new light. And may we never be quick to pass judgement on anyone suffering with a mental illness, until we’ve walked a mile in their shoes. May God open our minds and hearts to be our “brothers keeper”.