Tag: Cure

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Lord Help Us To Believe

Lauren asked Mommy, ‘Mommy are you sure Jesus is going to make me better?’ Wow, how do you answer that truthfully? What we want and what we pray for isn’t always what we get. Sometimes God’s way isn’t our way. Our timing sometimes is way off, we expect answers right away, but I believe that’s not the way it always works. And trusting God when your five years old little girl is in pain and can’t walk is very hard to understand and accept.

You see, Lauren as been in bed now for months, she is gradually improving but very slowly. She is so intelligent and because she is, there is nothing she doesn’t analyze. Therefore after all this time she as spent in bed and having so much pain and discomfort, she’s starting to question God. Everyone keeps telling her that Jesus is going to make her better. So she, being no different then ourselves, asks the question, ‘Mommy are you sure Jesus is going to make me better?’ Are we giving her false hope and unrealistic goals? Is she beginning to realize that I’ve been in pain and discomfort for so long and Jesus hasn’t made me better? Maybe He never will, maybe this is her life.

And I’m beginning to believe that maybe what we are telling her isn’t what God wants at all. It’s what we want and oh we want it so desperately. There is nothing I would want more then for her pain to end and she could just get up and walk. But is this what God wants? I don’t know, my thoughts are not God’s thoughts. I am trying so hard to believe and trust, when things aren’t looking that great. I believe that miracles can still happen and that God is our greatest option. But the reality is we are tired, worn down, worried, anxious and helpless. There are days when we feel we are sinking, our ship is going down, when we have no other alternative but to keep looking for that light, that beam of hope, it’s there somewhere, still shining; but the fog is so thick with life’s trials and tribulations that it’s so hard to see. We need a miracle, if not for healing, then for strength, hope and wisdom to endure, to overcome, to do what we have to do.

A family cannot experience what we are and it not affect the whole family unit. It’s tough on all of us and we struggle to keep us together. All four of us have experienced so much trauma in our lives, so much unforeseen change, that some days it’s near impossible just to focus on getting through that day. But we try to take it one day at a time and that’s not easy when the decisions you make today, could drastically affect tomorrow. We have to believe that there is someone greater, an higher power that is watching over us. Lord help us to believe.

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A Mental Breakdown

It’s been practically six years since I had my last total mental breakdown. I have no problems admitting to that; if I had an heart attack I would have no trouble talking about it. My brain is an organ of the body just has my heart is and things can go wrong with any organ in our bodies. And neither should flaw our character. It just so happened that mine was my brain. The journey that I have traveled as certainly not been an easy one, a one that requires much strength, courage and fight. And to you who are out there who know what I’m talking about through your own experience with a mental illness, can truly relate.

So you may ask, it’s six years, what’s new? If I really told you, you’d be sorry for asking. But I will try to give you some insight into what’s going on with my mental health at this stage of the game.

I wish I could say things are great and I’ve never felt better but that would be lying and I want to be real. When the reality of this disorder is; there is no cure, but the most the medical field can do is to manage the symptoms and to hopefully restore me to a functioning level. I guess that’s where I am today; at a place where I can somewhat function in the real world but still requires medical support, much like many other illnesses. The mental health clinicians and physicians use a scale called the GAF- Global Assessment of Functioning. It’s a numeric scale to rate subjectively the social, occupational and psychological functioning of an individual, ex.: how well one is meeting various problems-in-living. Scores range from 100(extremely high functioning) to 1(severely impaired). So using this scale I can say when I first became ill, at my acute stage, I was probably a one. Today I am around 60 on the scale. Doing much better, but not back to my outgoing, risk taking, ambitious, creative self. It’s here I believe society has the misconception of what a ‘mental breakdown’ is. I wasn’t going around like a ravishing lunatic, has probably most would think. No, I was the complete opposite; I was stripped of everything I was. My being was gone, my will to live was gone, my strength was gone, my personality was gone; I was reduced to nothing. But a soul crying out to be free of this hell that I was captured in. A soul just crying out for help. That’s what a mental breakdown is, so don’t judge; if you have a brain, you are not exempt!

My illness as still stolen so much from me that I will probably never get back to where I was. I still have extreme problems with concentration, mental fatigue, loosing my train of thought and being able to be quick and alert with my thought process. And no matter how hard I try, it just sometimes isn’t there and that can be very frustrating. But I work with it and just by blogging I believe I stimulate my brain to do amazing things, thanks to God.

My last visit to my physician I was basically told this is as good as it gets. We have tried everything available and for me that’s very discouraging. No I didn’t get a death sentence but for someone who lives this illness everyday of their lives, then that is what it seems like. And because my brain isn’t always able to analyze or reason my sometimes troubled thoughts, I find it harder to cope. But I live each day as best I can, with what I have. But my illness will not control my life! I believe by openly talking about it; I take back the power. By  keeping silent I believe you are admitting to yourself that you are weak, ashamed, you are worthless. hopeless and a nobody. But in reality you are courageous, strong, worthy and a somebody. You can be a VICTOR; not a victim. A winner not a loser, YOU MATTER! I MATTER!

For the past six years, that works out to be 2,190 days, I have gotten out of bed and said, ‘God , please just let me have one ‘good’ day.’  A day with no pain, fear or sadness; just a day where I can just enjoy my family and not be enslaved by this illness. I live in hopes that one morning I will awake and it’s gone but maybe that morning won’t come until I see my Maker, face to face. But for each day until then I pray for strength, sunshine and hope to flood my life. And may I always walk with my head held high, my hand outstretched to someone else in need and my heart filled with God’s love and compassion.

 

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Depression, I Hate You!

Depression, I hate you!                                                                                                                         Why can’t you just leave me alone?                                                                                             Why don’t you ever go away?

I hate that when I’m sad, people mistaken it for anger                                                        When really I’m so sad that I can’t find my happy                                                                  Where have you gone?                                                                                                                        I miss you so much.

I am angry                                                                                                                                                   Angry at depression                                                                                                                             Angry at what it has done to my life

You have stolen from me                                                                                                                     I hate the way you twist and distort my thoughts                                                                 You fill my head with ugliness.

I hate that there’s no cure                                                                                                                  But I need to escape this hell so desperately                                                                           Even though I try,                                                                                                                                   I fight every day;                                                                                                                                     every single day!

Depression, I hate you!                                                                                                                         You steal, you lie                                                                                                                                     You cover up the good and I can’t find it.

Give me back my life                                                                                                                             My days I have lost                                                                                                                                  The years I have lost                                                                                                                            I have missed so much                                                                                                                       And I hate you because I can never get it back.

Give me back the person I want to be                                                                                          The person I was before you destroyed me                                                                             Before you changed who I am.

I am so exhausted and tired                                                                                                              That makes me impatient with others and with me                                                             That’s not fair!

Depression, I am angry                                                                                                                        I am tired, I am sad                                                                                                                                 I hate you,                                                                                                                                                    I hate you,                                                                                                                                                 I  HATE YOU!!!!!

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Lauren’s Journey Of Hope

Its Laurens’ fourth visit to the Children’s Shriners Hospital in Montreal. This visit is filled with worry, uncertainty, apprehension but also with hope. This visit is off to a bad start already because Lauren now has two dislocated hips and that concerns us very much. The rhizotomy surgery that we are hoping for Lauren to have (which right now is her only hope of walking or having some form of mobility) is right now looking very bleak because the surgery requires the patient to have two good hips and that is not Lauren’s case.

The day began with my alarm arousing me out of my sleep into reality. Lauren and I go and make sure Mommy and Bruddy are out of bed; we don’t want to leave anybody ‘Home Alone’. Everybody gets ready and off we go in our van to the St.John’s Airport. It’s kind of icy but the road is okay.

We had a 5-6 hour stop over in Halifax which made for a very long day. But to brighten our day; Aunt Mary, Rochelle and Ben came to visit us at the airport which was so nice to see them again.

Now we’re off to Montreal, Sissy is going strong (no nap yet today), Bruddy is sleeping soundly.

We have arrived in Montreal and had a very, well deserved rest/sleep at our Hotel. Morning came too soon, the uncertainty of what the day could/will bring is overwhelming. But off we go to the Hospital.

X-rays are done first, she was really good. Then the orthopedic surgeon, Dr Canten, came to talk to us. I just hate being kicked in the guts and our hopes being crushed at the same time. She told us Lauren will need both hips reconstructed at separate times. Can’t do both together, she would lose too much blood and too stressing on her body. Then she said, ‘rhizotomy’ was  not an option at all. This was not what we wanted to hear. How can we has parents accept that the one hope of her walking is taken from us? We just felt like leaving and coming home but of course we can’t do that, maybe the day will get better.

Now  it’s off to the 2nd floor for Occupational Therapy and Physio Therapy. Well that was a waste of time. Lauren did not cooperate and just cried through the whole thing. No fault of her’s, she was just exhausted and scared and so were we. They certainly didn’t get a true picture of the real Lauren.

We were receiving some very bad vibes, we knew this was not going in our favour; call it parent intuition. We reluctantly moved to assessment room #1, where we would meet with Dr. Farmer…..he held all the cards. He spoke words we did not want to hear, this is not the way it was supposed to go. Before anything else could be done for Lauren, she has to begin another new medication for dystonia ( clubbing and twisting of her hands, etc). Left and right hip and pelvic reconstructive surgeries done at separate times. Then a baclofen   pump to be surgically placed under the skin, which will help reduce some spasticity. The rhizotomy surgery was certainly not on the top list of options.( I had to stop writing here, I could not see the keyboard for tears. Am I dreaming or is this reality? Are we talking about my little girl, so innocent, so fragile. She doesn’t deserve this, her life is just beginning. Where’s the fairness? God help us to make sense of it all).

This was a lot of information to analyze and accept. So we just couldn’t take anymore and asked if it were okay to go back to our Hotel, which we did.

Now we are back on the ‘Rock’, feeling no further ahead then when we started. How can we put Lauren through this horrible chain of surgeries? Most parents are devastated when their child falls and scratches their knee. And then bad enough are the surgeries but with the hip surgeries she will have to be placed in body casts. In this case, ignorance would be bliss, but we know all to well what a body casts involves.

It’s confirmed today that Lauren’s first hip surgery will be done on March 28th. New medication, artene, for dystonia, will begin next week.

Our hearts are heavy as we try to keep our chins up and shoulders back. Bottom line is Lauren’s life will revolve around surgeries and procedures trying to fight an ugly condition that bears the name Cerebral Palsy.

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I Know A Man Who Can!

I have written numerous blogs before, but none as important, open and personal has what this one is. I will bear my soul because I believe that’s what you need to hear and see. We are not defined by our education, ethnicity, culture, our career, or our family. What defines us, is our soul; “the spiritual part of a human being”. We all have one,whether we believe we do or not doesn’t matter. We have a soul, deep down within us.

Our soul is that space within us that is always searching, always longing. Forever empty if not filled by the one who created us in the first place. Psalm 139:13 “For you created my inmost being; you knit me together in my mother’s womb”. My illness lead me to this inmost search. Not a search for earthly meaning but a much deeper search and longing for God. That search didn’t find me instantaneously healed but led me to a deeper, inmost filling of God. I had to separate and come to realize that my illness had nothing to do with my soul. I was not fighting a spiritual battle, but because I was so sick and finding no hope of ever recovering. That no human being or earthly matter could make me well; then I had to turn my search inward rather then without.

It’s when we turn inward that we find the true meaning of life and take our focus off things that really don’t matter. I now realize that there is more to life then my illness, I can live inspite of it. My life doesn’t depend on what I have, what I do, where I go or what I feel. My life depends on what I have within; my love, my compassion, my humbleness and selflessness. If I had a Phd education, it would not make me any happier or change my illness. If I had a multi million dollar bank account; would not change my illness and make me well. If I had all the possessions that money could buy, it would still not bring me happiness or health.

So now I realize I have to build my life on something more solid, something more secure. I had to return to the one who created me, who promised in Jeremiah 29:11 “For I know the plans I have for you,”declares the Lord,”plans to prosper you and not to harm you, plans to give you hope and a future”. I don’t know what those plans are and right now I am scared to death of the future but I know and trust that He knows what He’s doing.

Our lives right now are filled with so much uncertainty and turmoil. My own illness fills our lives with so much insecurity and fear, that for the most of us, we would have given up a long time ago. The stress and conflict that mental illness brings into our marriage and family life can easily tear us apart. But we are struggling to stay together. Then there’s the awesome care, uncertainty, overwhelming responsibility of Lauren with her cerebral palsy. So much that people, unless they have a child with a disability, can never imagine the sacrifices one had to make. Lauren requires 24/7 care and this we, for the most part, provide ourselves. We do sacrifice each other because one of us as to sleep with Lauren every night for various reasons pertaining to her safety, comfort and care. So it is very difficult/impossible for us to spend time together as a couple. I am not complaining but stating the reality of what is. Then we try to provide for Logan a “normal life” and to protect him as much as possible from the circumstances around him, which are far from normal. And lastly, Lisa as had to leave work because of the heavy load that she carries everyday. It has affected her health in a detrimental way; that she can no longer work.

I don’t tell this for no other reason then to help someone else, that are going through similar circumstances in their lives. It is amazing what we can face in life and still survive. But no man, humanly possible could do this alone or find the answers in this world but I know a Man who can! And that’s how we have survived thus far. When we felt there was no one that could help us, we needed someone more than a human hand. That’s when we were forced to look elsewhere, we tried everything else and life was out of hand. We turned to the Man who can;

“I can’t take a heart that’s broken
Make it over again
But I know a Man who can

Some call Him Savior,
the Redeemer of all men
I call Him Jesus
For He’s my dearest friend.

If you feel no one can help you
And your life is out of hand
Well, I know a man who can”.

So now every morning I go to my heavenly “Father” and rely on His strength to get me through the day. For He promised me in Isaiah 40:31 “But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint”

That’s where my strength comes from! I don’t apologize for being too open and I am so privileged to be able to introduce you to the man who can!

Afterthought:
Many may say, how can you say that God is with you, when He hasn’t healed you and you still struggle every day? It doesn’t matter, I’m better off with God in this storm, then I am without Him and being in this storm alone. He’s still in my ship. God is still God no matter what we are going through, He’s in control! All I have to do is trust!

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The Reality Of My Diagnosis

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“There is no cure for your illness”, were the dreaded words I hear roaming around in the back of my head; coming from my doctor’s mouth. I just wanted to duct tape his mouth, so I wouldn’t hear the reality of what he was saying. But he wouldn’t stop; “We can get you back to a functioning level and that’s the best we could do. What did that mean, “A functioning level”? Sounded like a death sentence to me at the time. You mean I have to live with this for the rest of my life? Funny question to ask considering I had really already been living with mental illness (on a smaller scale) all my life. Was this my reality?

My horror really started when I was sixteen and in high school. It was midterm exams and I was feeling very anxious,worried and full of panic. Then one day I just collapsed. I couldn’t function anymore; I gave up on life. My days were spent asleep, whether in bed or on the sofa. I remember going to the doctor and receiving no help whatsoever. “We can’t give antidepressants to teenagers”,were his words and sent me home to fight this raging war all alone. Very few back then, knew much about depression and anxiety, let alone knowing how to deal with it. I felt I was left to die alone. My friends from school didn’t come near, maybe they thought I was contagious. My only support was my family and I am so thankful for that. Over time I gradually got a little better each day. In the 80’s we were so uneducated about mental illness and the walls of stigma were so high. It was almost if you ignored it long enough it would go away. But all through my life, I know now, I battled depression and anxiety. And I can openly speak the words and not have to hide in shame.

When I was “formally” diagnosed just three years ago; that I suffer from major depression and anxiety disorder. Does that make me feel any better? Somewhat. Now I have a name on what I’ve been battling most of my life. My nightmare now became a reality. I realize now I have a disability. Not a one confined to a wheelchair but a one that confined me to my broken mind.

Now it’s learning how to accept my disability and learn to live with my “thorn in the flesh”. I have come such a long way, my doctor says, I am now in the recovery stage of illness. But then I think, how can I be in recovery when there is no cure? Well, I have to get back to a functioning level and learn to control my symptoms and not the other way around. Learning to be the best that I can be and teaching my brain that it’s going to be ok. That is what recovery is all about; learning to live with my challenges and obstacles despite my illness. The reality is that, just like any other disability, I will have to find a different path that leads to a somewhat “normal” life.

It might appear that all I am saying is negative, but that is the reality of this illness. Negativity and depression coexist. It’s finding the positivity in this illness that leads you to the road to recovery. It’s finding the sunshine that’s hiding behind the clouds. Because I have a mental illness doesn’t mean I still can’t have meaning and purpose in my life. I am not my illness. Vitor Frankl in his book eluded to this when he said, “that life holds a potential meaning under any conditions, even the most miserable ones. I therefore felt responsible for writing down what I had gone through, for I thought it might be helpful to people who are prone to despair.” He wrote this after being freed from his hellish existence in a Nazi concentration camp. So I too, feel I have to write the truth about my illness, even if it is negative because that is the truth of my hellish existence; when I was trapped in my “concentration camp”. The memories of those most awful days will probably always be trapped inside my mind, but that’s all they are; memories and they can’t harm or hurt me anymore. It’s my life mission to free myself and others from the depths of despair that this illness brings.

The reality right at this moment in time is that I am not cured. I am doing a lot better. Because I am not fully recovered doesn’t mean that others can’t and it doesn’t mean that I will never be cured. But the reality remains; I am certainly not where I need to be. I still have a few more baby steps to make before I can walk. And that is REALITY; whether I like it or not. The reality is; this illness sucks!