A Day In The Life of My Mental Illness

 

 

 

 

 

I am so sick and tired of mental illness! I hate it! And I’m sure you must be tired of reading about my mental illness. Why do I do this? Why do I feel the need to blog? Why can’t someone else who’s probably a better writer, more qualified, more gifted, take up the torch. This week as been rough (what else is new lol); I took up my pen several times to write something. But there was nothing, I felt numb, blank, empty, nothing left to give, nothing left to share. The battle with my illness had left me powerless and speechless. I had nothing left to share that could possibly help someone else, I felt I needed someone to help me.

You see when you have been given a diagnoses such has mine, it is something that’s not going away; there is no cure. Just like cancer (and I am not comparing, they are two totally different illnesses) but in some ways they are alike. My ‘cancer’ as killed and destroyed who I am, it eats away at your soul, your self, your being and your will. It leaves you with the haunting fear of a relapse.

So this past week as awakened my somewhat sleeping monster. Before my eyes are opened to face the day; my mind is busy with crippling nightmares. Nightmares of being on a locked down unit on an hospital ward, not a prison ward. A prisoner not a patient. I will forever be traumatized by those evil days of hospitalization. Traumatized by the reality of knowing that I am treatment resistant and I have exhausted all available treatments. My dreams will not let me forget this mesmerizing reality. Then there’s the memories (of what memory I have left of that time) of ECT. In my dreams I’m awakened before the treatment is complete and I’m strapped to the bed and no one will free me. Then morning comes and I realize I’m safe, safe from my dreams but never safe from my reality.

I have to take control of my thoughts as soon as my eyes are open, if not, they could easily spiral out of control to a point of being extremely overwhelmed and panic could easily take over. But thankfully I am still able, to some extent, control my own thoughts. With a mental illness there are not just the mental symptoms but also the physical symptoms. There are times when panic attacks (and thankfully right now are pretty much under control) but I still experience related symptoms such as an extreme rise in body temperature and feelings of mild fear and panic. It’s my goal to keep them from escalating into a full blown panic attack; which I never want to experience again. So I start my day as if every things okay.

All day, every day, my physical body feels triple it’s weight, there’s an heaviness that never goes away. It may fluctuate but never leaves. Then there’s the rising tides of emotion that you just want to cry. Most times you don’t even know why; you just do.  Then you don’t  want to start because if you do, it just won’t stop. But sometimes I believe your emotions can be used for your good; a form of release. To admit this makes me feel weak but the truth is; God gave us emotions for a reason. Many times in the Bible, Jesus is recorded as being emotional; ‘Jesus wept.’ If Jesus can cry, and He’s the Son of God; then so can I. Because someone doesn’t shed tears, doesn’t make them any stronger then someone who does ( but if the truth were known; everyone cries). I remember my Dad being a very emotional man, especially when he talked of spiritual things and the faithfulness of God. And because of that I respect him, and admire his compassion for others; he had a big heart that made him a very strong, wise and gentle man. I hope to be just half the man he was, he left me with a great legacy that I hope I will live up to and make him proud. And when we meet again, I hope he can look at me and say, ‘See, I told you, you could do it’. But right now, today, I feel I can’t do it. But I will, somehow find my way.

By the time half my day is done; fatigue sets in, not just tired but exhausted. I fight it as long as I can but there are times when I just give in and have no choice but take a nap. And of course that makes me feel guilty, I’m not suppose to sleep in the middle of the day. But sometimes I just have to listen to my body and rest.

It’s my prayer everyday to just be able to have a day when I feel free and not be held captive by my mind. To just enjoy life, my wife and children without being dictated by my mind of what I can or cannot do. I get angry, angry at myself, angry at not being able to rid myself of this illness. I just want to live, not just to survive.

Not everyone who has a mental illness experience what I am experiencing. Every person is different and their journey may not be at all comparable to mine. If you are reading this and you experience a mental illness (mine being Major Depression and Anxiety Disorder), I hope that you cannot relate to what I am saying because I would not want to wish this on my worse enemy (I hope I have no enemies). I may be treatment resistant but that doesn’t mean that you are or will be. I pray that you will respond to your treatment successfully and are able to live a normal, functioning life. And although I may not be responding well to treatment, I am responding to a certain extent; just not to the point where I would like to be. But I will not give up hope, I will fight to the end!

 

My Recovering Journey of Faith

I am a recovering mentally ill person; no I didn’t say I was a recovered mentally ill person.  Just like an alcoholic can never say, “I am recovered, but I am a recovering alcoholic”. I believe the same is true for someone who has a medically diagnosed mental disorder. I can never say I was fully recovered, yes there were times when I was fully, functioning, ‘normal’ person but my illness has been a lifetime journey. It’s almost like you go into remission, but for me, I had many relaspes throughout my lifetime. Some mild, some severe and some in between. But all a fighting battle.

This recovering journey is never linear.. What I mean by that is my symptoms and mood are never on a straight plain. It’s more like a roller coaster, there are many ups and downs, you are never on a level plain. Some days you could be doing fairly well and others you could be ready to jump out of your skin. Just last week my illness overwhelmed me with feelings of exhaustion and my brain was overcrowded with unwanted thoughts that I had no control over. But today I’m feeling a little more empowered and start my uphill climb once again.

This journey is rarely a walk in the park, it’s more like climbing Mount Everest. Some days you are weak has a rat and more days you feel like you can climb; one step at a time. But the encouraging thing is; you are moving, even if it is in baby steps. It’s like the saying, ‘You can eat an elephant, one mouthful at a time.’ And so you can climb this “Mountain of Depression and Anxiety”, one footstep at a time. If you are reading this and you are saying, ‘but I can’t do this anymore, I am just too exhausted.’ Trust me; “YOU CAN”! You are stronger then you think.

Where is my strength coming from, where is your strength going to come from? I remember when I had my last relapse; I searched for healing, my wellness, my escape from this hellish disease from without. I was searching for someone or something to “make” me better. But that never happened, I was at a dead end, I had tried EVERYTHING. But it wasn’t until I searched within myself that I found a strength that I didn’t know existed. But I still take it one day at a time, that’s all we have. Yesterday is gone (so don’t dwell on it) and we are not promised tomorrow (so don’t worry about it). Live in the moment, it’s what we have.

My treatment/therapy now consist of medication (which I know is crucial to my mental health), learning to accept my limitations (my new normal), having structure in my day (a routine), limiting stress as much as I can (sometimes that’s hard to do given my life circumstances), always having a ‘project’ (painting, cleaning, reading, singing, etc.) and one of my favorite of all is; writing my blogs (amazing therapy). All of these elements help me cope with each day and creates a sense of who I am. I am NOT my illness, there is so much more to me then my disorder; so I refuse to be defined by depression and anxiety.

After so many years of searching for the truth of who I really am; I believe I have finally found it. There is so much more to us and to me then this physical and mental body. There is a spiritual component that we have to tap into to find real strength, real courage, and the real you, the real me. And I believe this can only come from an omniscient (all knowing), omnipotent (all powerful), and omnipresent (everywhere present) spiritual power. And there is only one person I know that possesses all three; God Our Father. He has been and still is my greatest source of strength and peace. On days when I was at my lowest, He was and is still my greatest source of stability, my rock, and my hope.

So you see, my recovering journey of faith, starts by placing my entire life into His hands. That’s hard to do because I thought I could do it on my own, what a joke that was. There are some things in life that we have no control over and have to be left with God, He is in control. So now I put my total trust and confidence in someone who is greater then I am. It sure takes a load off me and makes my journey a little easier.

My Outlook On Life After My Last Severe Relapse Of A Total Mental Breakdown.

How has my traumatic experience affected my overall perception of life? It has certainly changed it in a more positive way. I now look at life has being a gift each day because at any moment our lives can change without any notice. A life altering traumatic experience can change our lives forever or death can come knocking on our door; we are not meant to live forever, that’s life. After experiencing  both traumas; I now perceive life to be something that is totally out of our control. It’s a day by day experience that we should never take for granted.

Having survived my worse nightmare, when I really thought I was never going to make it; but I did. I am totally thankful , grateful, and amazed at where I am today. I am now at a more functioning level to a point, stronger and very insightful.

I am also very aware of the pain that this illness can inflict on a person. It’s a pain that is so overwhelming and intense, that you feel well never end. You think there is no light left but  gradually the light comes back on and life once again can become a little brighter.Sunny days start to become sunny again, because when you are at the acute stage of your illness, all you see is the fog. It’s not a weakness but a painful illness. I now live in the moment; not in the past, nor in the future. The past is over and done with and we are not promised tomorrow, only today.

I am now a champion fighter for mental health, I’m not saying I have all the answers and I’m definitely not saying I’m cured but I now am an advocate for mental health and mental ill persons. Without having gone through this traumatic illness I would never have been able to do what I do today. So in some ways I am thankful (a very big price to pay) but when someone says, they are depressed, suffering from anxiety, living in darkness, not wanting to live anymore; I can honestly say, ‘I can relate’. I know what you are going through, you are not alone! It took me five years to be able to say I am thankful for what I went through and there are still some days that I am not thankful. Days when I am reminded of all I’ve lost that being; relationships, materialism, confidence, self-worth, my purpose, time, memories. Now it’s all about finding my new normal.

Do I like my new normal, to be honest and truthful; not really.  I didn’t choose to move from a place I called home and was quite content; St.John’s. I didn’t choose to give up my profession. I didn’t choose much of anything, my illness dictated it. I certainly didn’t choose to put my family; especially my wife and two children through this trauma. Never in a million years would I have thought I’d be living in Bay Roberts (not that there’s anything wrong with it). I was quite content right where I was. But gradually now , with time, patience, a shift in thinking; I’m doing okay and becoming more content.

I will never be the person I was before my breakdown, but that doesn’t mean my life is over. I am so filled with gratitude to where God has brought me; He really does have a sense of humour (I don’t always think it’s funny lol). But I am so glad and thankful that He brought me out of the pit of despair.

My perception of life has certainly changed. I certainly won’t ever take life for granted and I will always believe there is an higher power. There has to be; there’s more to life then ‘this’. We were never meant to walk this journey of life alone, even from creation God was present. This is one battle that you/I cannot fight alone. You have to search for that power/strength within you, that being God. We ourselves work in the natural  but with God we work in the supernatural.

The Do’s and Dont’s of Depression and Anxiety

Sitting at Robin’s waiting for a call from the Garage to come pick up the van. One of the most difficult things for me to do is just sit here and relax. An hint of panic sets in and is telling me to run, get out but I don’t listen. I am now in control of my thoughts not the other way around, like it use to be when I was in the acute stage of my illness. So I choose to sit and write instead. I have learned so much on this journey, so I thought I would share some do’s and dont’s of major depression and anxiety.

Let’s start with the do’s that helped me along my journey.First, make up your mind that you are going to get better, be determined that this will not last forever. That you will beat this and set your mind to this and don’t settle for nothing less. Be strong even when you feel weak! Repeat to yourself every day, “I am going to get better; one day, one hour, one minute at a time”.

A must for recovery is we must reach out for support. We are not meant to walk this road of life alone, we cannot survive in isolation. It is human nature to crave love, acceptance and understanding from others.

Thirdly, we must do our best to care for our physical body. “Healthy body, healthy mind”. Eating well would be the first step. For me this was the last thing I wanted to do, I lost my appetite completely. But I knew if I was going to get well, I had to eat. So I forced myself to eat small portions but often. And gradually, over time my appetite got much better. Then getting a restful night sleep is very important to healing our minds. I went through periods where I couldn’t sleep at all (my doctor did prescribe a sleeping pill for those times), then there were times when all I wanted to do was sleep. It was those times that I pushed myself out of bed and move, just move. Exercise would play a part in getting well; but who wanted to exercise when they didn’t have the energy or willpower to move. But I started with baby steps, my first walk lasted for five minutes and that seemed overwhelming but I did it and gradually I worked up to now, a year later, walking forty-five minutes too one hour. So take care of yourself physically so you can heal mentally.

Create structure in your life. Start with little things. For example, make your bed every morning, wash dishes, do laundry, etc. Then move to the outside world; go to the Post Office, grocery store, library, the park, etc. Before long you will have developed a life of structure and purpose.

Lastly, remind yourself, whenever needed, that, “this too shall pass”. Whatever you are experiencing right now, no matter how bad; it will not last. Nothing lasts forever.

Then there are the dont’s of dealing with depression and anxiety. The pain and despair you feel is unbearable, you look for relief where ever you can find it. Some in positive ways but some turn to negative alternatives by self medicating. You turn to drugs and alcohol but this can only lead to worsening of your symptoms. And the benefits (if any) are only short term; a band-aid solution.

A second “don’t” is, do not isolate. It is very often common for people suffering from this illness to hide from everyone; to go into seclusion. Not wanting to associate with family or friends, this will never work toward your healing. We are pack animals and we need the interaction of others to survive.

At the acute stage of your illness it is best not to make any major decisions. Such things as selling/buying an house, getting married/divorced, moving to a new city or changing jobs. You are in no frame of mind to make such decisions, so wait until you are in the recovery stage and feeling much better and your brain is more alert/aware.

Fourthly, do not neglect your physical needs. When you are so preoccupied with your mental state, it is so easy to forget your physical needs; eating habits, exercise, sleep, etc. Your mental well being, solely depends on your physical state, both depend on each other for survival.

Then the last “don’t” is a one that I struggle with everyday. That is,don’t ask the question; “When Will This End?”. Everyone is different and no one knows the answer to this question, so don’t ask! Live one day at a time, never dwell on the past and never look too far in the future. Live in the moment!

Those are just some thoughts I have learned over time. I hope this will give you some guidance and assurance that; “this too shall pass”. Life will get better, there is a light at the end of the tunnel. Just wait and see!

“Be Anxious For Nothing…”

Anxiety is a natural emotion that everyone feels at sometime or another. We can feel nervous when faced with an everyday problem; work related, school test or making important decisions.

But when referring to an anxiety disorder this is completely different than everyday anxiousness. Most anxiety disorders can cause such distress that it interferes with our ability to lead a normal life. This type of disorder is a serious mental illness which can be very disabling. Some types of anxiety disorders include; panic disorder(panic attacks), social anxiety disorder, phobias, generalized anxiety disorder.

Panic disorder or panic attacks are one of the most frightening experiences of my illness. It’s a feeling of terror that can strike at anytime and anywhere with no warning. Some symptoms include; shortness of breath, sweating, chest pain, fear and an overwhelming of you’re going to lose “it”.

As part of my anxiety disorder I experienced a social phobia. This was where I had an overwhelming fear of going into a public building or setting. This really interfered with our social life because I found it very difficult to go to restaurants, malls, stores, movie theatres or anywhere outside the comfort zone of my own house.

People with an anxiety disorder usually experience some form of phobia or phobias. These are intense fears of heights, flying, enclosed spaces or congested gatherings are some examples.

Generalized anxiety disorder is described as excessive, unrealistic worry and tension, even if there’s little or nothing to provoke the anxiety.

When diagnosed with anxiety disorder along with major depression; I was experiencing all types of anxiety symptoms. When experiencing both illnesses at the same time, this makes it very difficult to treat both illnesses. But with time and various treatments it is possible to eleviate or lessen the severity of the symptoms. Treatments include; medication, psychotherapy, cognitive-behaviour therapy, dietary and lifestyle changes and relaxation therapy. All of which have helped me to a certain degree but not always readily available, especially when needed the most. Wait times could be up to six months; not all that encouraging when you are feeling your life is being weighed in the balance! But for me there was no quick fix. Just learning to manage and cope with my symptoms on a daily bases was all I could do. And gradually with time my symptoms became more bearable.

The ironic thing about my illness is that one illness(major depression) is fighting or conflicting with the other(anxiety disorder). Therefore my life as become a total roller coaster ride; without the fun!