Lauren’s Continuing Journey

July 3, 2023. Yesterday was quite the busy day but a successful one. Lauren’s Fundraiser Market may have been a lot of work but I think it was worth it. Sometimes you do what you have to do in order to make it. It was pretty exhausting just the same, especially having to leave for Montreal the next morning. But here we are, boarded our plane, waiting for takeoff.

Lauren’s journey begins. It was only a few weeks ago that we were in Montreal for Lauren’s trial surgery for her baclofen pump, which was quite successful. So now we are going back to have the pump permanently placed inside her abdomen. It’s bitter sweet really, we hate having to put her through yet another surgery but we know that this surgery will give her a better quality of life, less pain, less spasticity and better function overall.

The journey itself; from getting here to there, is very difficult on all of us. But I guess you do what you have to do, it’s not like we have a choice and really we would do whatever it takes to protect both our children. So it’s, Montreal here we come, for about the millionth time it seems.

July 6,2023. Here we are sitting in the waiting room of The Sick Kids Hospital in Montreal. Lauren just went into the OR for what’s to be a 3 hrs and twenty minutes surgery. The worry, anxiety and a million different emotions run through your mind. There are no words to really describe how you feel, you just wait.

It’s 12:50 pm, Dr Farmer just returned from the OR and came to the waiting room to speak to us. You literally freeze for a moment in time. The surgery went well and he was very pleased. What a relief! Now we are waiting for her to get settled into recovery and then we can see her. Needless to say, we can’t wait.

My cellphone notifies me of a text. It’s the recovery room, telling us that Lauren is now ready to see us. She’s still asleep when we get there. Only a few minutes later and she starts to move her eyes and she’s awake! Oh my, I wish I could trade places with her; I would. So hard to watch her lying flat on her back once again. But she really is a trooper; courageous and brave, a warrior princess for sure. So now the next leg of her journey begins…..

My Mental Health Update

It seems like forever since I wrote about my mental health/illness/disorder. I guess that there’s so much else going on that there as been little time to write. But today I’m sitting on a flight to Montreal with not much else to do. So I guess this time gives me the opportunity to do a little mental health update.

Most days I must say are fairly well, I have certainly improved since moving to CBS. Not that life as gotten any easier but I think I’m at a different stage of my recovery. Notice I said, ‘recovery’ not cure. I know my diagnosis is a chronic, clinical depression and anxiety disorder to which there is no cure. By recovery I am referring to a more functioning level whereby I am in more control of my illness then it is in control of me. I guess you could say the tables have turned to some degree. This has certainly not happened overnight but over months of hard work, therapy and self discipline. I have had to work intensely in every area of my life; physically, emotionally, mentally, spiritually and psychologically. Finding a balance in life and not forgetting about my own self care. Sometimes in our lives we forget to take care of ourselves when we are so busy taking care of everyone else. This is not at all being selfish but realizing that in order to take care of others we have to take care of ourselves first.

It was probably about a year since I had a panic attack, what I would call a full blown panic attack; the kind that frightens you to death. It happened on our last trip to Montreal, during Lauren’s trial baclofen surgery. I was abruptly awakened from my sleep at about 5am by shear panic, the kind that puts you into a fight or flight response and I was in flight mode. I just wanted to run but run where I had no idea. I tried to talk myself through it but it was not working, which only made the attack to escalate. I knew I had to do something and fast, so I jumped into a cold shower. And believe it or not, it really did redirect my thoughts and reduced my panic tremendously. But thankfully I have not had another one since that night. And that’s the scary thing about panic attacks; you never know when one can strike and how long it can last.

Right now I am so thankful that I am doing as well as I am. And I will take what I can get and enjoy the good days to the fullest, live in the moment as best I can, the past is gone and the future is not here.