Month: March 2018

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Where Did My ‘Normal’ Go?

For those of you who live a ‘normal’ life (and I say that a little sarcastically); I envy you! I would love just to feel ‘normal’ again. Just to be able to live life without an overwhelming since of despair. I remember what ‘normal’ felt like; I would jump out of bed (no thought, just jump), coffee tasted different, the sun was brighter, the clouds were gone, simple tasks I could do and not even have to think about it. But when you have a mental illness, nothing seems ‘normal’ anymore. Every tasks fills you with panic and fear; you have no strength left to do the things you once so much enjoyed, now they’ve become a burden. Things  that once brought you enjoyment bring emptiness. I fight everyday to bring back that ‘normal’. Where did it go? By ‘normal’ I don’t mean perfect, just free to live life with some enjoyment.

This horrifying illness as stolen my ‘normal’, my life, my will to go on at times.But yet there’s nothing I want more then just live. I have so much to live for but my depression consumes my life and leaves me with very little strength left to fight. And when you are exhausted and tired of living this existence; your patience is gone, your will to keep fighting is gone, your will to live is gone, your ability to be ‘normal’ is gone.

But how do I get it back? How do I go on? Especially when you have fought for so long to get your ‘normal’ back. I have to believe in myself that tomorrow is going to be better, never give up hope. Hope is the greatest antidepressant, without it I would not survive. Also my faith in God, even when God feels so far away, I know He is walking beside me and I’m sure some days He’s carrying me. Then there are days when I feel like Jesus did when He was in the Garden of Gethsemane, when He said.’My God why have you forsaken me’. There are times when I feel all alone. In an overpopulated world, in an overcrowded room; I still feel alone.

The part of this illness (Major Depression and Anxiety Disorder) that isolates me the most is that, for the most part, majority of people do not understand this illness. And I’m not blaming them, it’s just the way it is. I hope my writings have opened their eyes, minds, and hearts. May they realize this is not an illness of choice; but an illness of pain and suffering. But because they can’t see the pain and suffering doesn’t mean it’s not there. Support for many sufferers is definitely a big issue. Many are ashamed and afraid to ask for help from family and friends; afraid that they will be judged, stigmatized and misunderstood. And sadly to say, many people still don’t ‘get it’. Asking for help from the medical field is often not what we expected (I’ll save that for another blog).

So, yes I long to find my ‘normal’ again, I really miss it. But for now I’ll try to keep my head above water. When I say, ‘normal’, I use that word very loosely because there is no such thing as normal. It’s like using the word ‘perfect’, nothing is ‘perfect’. Let’s just say a somewhat healthy, functioning life would be nice. And to have a support system that understands, sometimes that means just allowing you to not be okay but accepts that in you, not having all the answers but a shoulder to lean on. Because sometimes what we need the most are not always words, but someone to just listen.

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Lauren’s Chair

There is something quite surreal about ordering a wheelchair for your child. You sit matter of factly as you choose colours and options. Lauren chose hot pink and purple. You see, to her, this is just like any other normal that she knows. And let’s face it, she makes even a wheelchair look cute! I hold back pinned up emotion and smile my teethy smile as we ‘design’ Lauren’s next form of mobility. Two years ago when we purchased her Kimba stroller chair, we had hoped that by the time she outgrew it, she’d be at least taking steps. Not so…
So, we applaud as she ‘test drives’ a couple suggested options and finally agree that the ‘Zippy’ is our choice. There is an hot pink zippy in Lauren’s future and for her, I have to keep smiling big, clapping loudly; fighting back my heartbreak as I continue to pretend that it’s all ok. Maybe one day, I’ll love her hot pink chair, but for now I must focus on its precious cargo that would have no mobility otherwise. It sure is a lot to process and it’s a coming to terms with reality. One step at a time..

Written by Mommy

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A Day In The Life of My Mental Illness

 

 

 

 

 

I am so sick and tired of mental illness! I hate it! And I’m sure you must be tired of reading about my mental illness. Why do I do this? Why do I feel the need to blog? Why can’t someone else who’s probably a better writer, more qualified, more gifted, take up the torch. This week as been rough (what else is new lol); I took up my pen several times to write something. But there was nothing, I felt numb, blank, empty, nothing left to give, nothing left to share. The battle with my illness had left me powerless and speechless. I had nothing left to share that could possibly help someone else, I felt I needed someone to help me.

You see when you have been given a diagnoses such has mine, it is something that’s not going away; there is no cure. Just like cancer (and I am not comparing, they are two totally different illnesses) but in some ways they are alike. My ‘cancer’ as killed and destroyed who I am, it eats away at your soul, your self, your being and your will. It leaves you with the haunting fear of a relapse.

So this past week as awakened my somewhat sleeping monster. Before my eyes are opened to face the day; my mind is busy with crippling nightmares. Nightmares of being on a locked down unit on an hospital ward, not a prison ward. A prisoner not a patient. I will forever be traumatized by those evil days of hospitalization. Traumatized by the reality of knowing that I am treatment resistant and I have exhausted all available treatments. My dreams will not let me forget this mesmerizing reality. Then there’s the memories (of what memory I have left of that time) of ECT. In my dreams I’m awakened before the treatment is complete and I’m strapped to the bed and no one will free me. Then morning comes and I realize I’m safe, safe from my dreams but never safe from my reality.

I have to take control of my thoughts as soon as my eyes are open, if not, they could easily spiral out of control to a point of being extremely overwhelmed and panic could easily take over. But thankfully I am still able, to some extent, control my own thoughts. With a mental illness there are not just the mental symptoms but also the physical symptoms. There are times when panic attacks (and thankfully right now are pretty much under control) but I still experience related symptoms such as an extreme rise in body temperature and feelings of mild fear and panic. It’s my goal to keep them from escalating into a full blown panic attack; which I never want to experience again. So I start my day as if every things okay.

All day, every day, my physical body feels triple it’s weight, there’s an heaviness that never goes away. It may fluctuate but never leaves. Then there’s the rising tides of emotion that you just want to cry. Most times you don’t even know why; you just do.  Then you don’t  want to start because if you do, it just won’t stop. But sometimes I believe your emotions can be used for your good; a form of release. To admit this makes me feel weak but the truth is; God gave us emotions for a reason. Many times in the Bible, Jesus is recorded as being emotional; ‘Jesus wept.’ If Jesus can cry, and He’s the Son of God; then so can I. Because someone doesn’t shed tears, doesn’t make them any stronger then someone who does ( but if the truth were known; everyone cries). I remember my Dad being a very emotional man, especially when he talked of spiritual things and the faithfulness of God. And because of that I respect him, and admire his compassion for others; he had a big heart that made him a very strong, wise and gentle man. I hope to be just half the man he was, he left me with a great legacy that I hope I will live up to and make him proud. And when we meet again, I hope he can look at me and say, ‘See, I told you, you could do it’. But right now, today, I feel I can’t do it. But I will, somehow find my way.

By the time half my day is done; fatigue sets in, not just tired but exhausted. I fight it as long as I can but there are times when I just give in and have no choice but take a nap. And of course that makes me feel guilty, I’m not suppose to sleep in the middle of the day. But sometimes I just have to listen to my body and rest.

It’s my prayer everyday to just be able to have a day when I feel free and not be held captive by my mind. To just enjoy life, my wife and children without being dictated by my mind of what I can or cannot do. I get angry, angry at myself, angry at not being able to rid myself of this illness. I just want to live, not just to survive.

Not everyone who has a mental illness experience what I am experiencing. Every person is different and their journey may not be at all comparable to mine. If you are reading this and you experience a mental illness (mine being Major Depression and Anxiety Disorder), I hope that you cannot relate to what I am saying because I would not want to wish this on my worse enemy (I hope I have no enemies). I may be treatment resistant but that doesn’t mean that you are or will be. I pray that you will respond to your treatment successfully and are able to live a normal, functioning life. And although I may not be responding well to treatment, I am responding to a certain extent; just not to the point where I would like to be. But I will not give up hope, I will fight to the end!

 

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Hope In An Hopeless Situation

                                                         The days turn into months, the months into years and yet here I am still searching for that escape to freedom. Freedom from my own mind. My brain still captured and in bondage of that thing I call Depression. Some weeks seem like freedom is in sight, then that darkness overshadows me again. Giving up would be so easy to do, but where would that get me? So everyday I fight for my life and maybe just one day my fight will end  and my miracle will come. I sat in my doctors office just this week, drowning in a pool of tears;’ I’m just exhausted and tired of fighting’. As he looked helplessly into my dying eyes. My eyes told a story that never could be written. But hope is what keeps me alive, what keeps me moving, what pushes me to never give up.

After 2-3 years of trying practically every type of antidepressant and anti-anxiety medication on the market, every cocktail of drugs, psychotherapy, mindfulness therapy, talk therapy, acupuncture, inpatient assessments, a two month outpatient program at St. Clares Hospital, ECT- Electro Convulsive Therapy and I’m sure the list can go on. It was FINALLY decided that I was treatment resistant; no form of therapy was working. Is there any wonder I could become discouraged and lose hope? But despite everything, I make  the best of every day and try to live above my illness and circumstances.

I still believe that somehow, I am going to overcome this horrible existence that this illness as brought upon me. Treatment resistant or not, I am going to beat this! ‘I will look to the hills from whence cometh my help, my help comes from the Lord who made the Heavens and the Earth’. Its in those moments when I feel I can’t go on, when I have nothing left to fight with; that I have no choices left but to turn to God. It’s those times I find  hope, strength, peace and courage to go on. Many times over the pass few years I had to say, ‘Jesus take the Wheel’ (a song by Carrie Underwood). I can’t do this anymore, Jesus you take my wheel!

Just this week, I was at a very desperate place, a very dark place. I decided to do a little research of my own and see if there was something I was missing; I came across an article (two really, one pertaining to the other) that looked really interesting and hopeful, it was called Trans Cranial Magnetic Stimulation. Then of course I realized it wasn’t available in NL….surprise! But I thought that maybe I would share it with you and make this treatment more aware. And maybe one day, it could become available here; now that’s faith. Check it out:

 

This article was published by The Mayo Clinic, describing the treatment:

Transcranial magnetic stimulation
Overview
Transcranial magnetic stimulation (TMS) is a noninvasive procedure that uses magnetic fields to stimulate nerve cells in the brain to improve symptoms of depression. TMS is typically used when other depression treatments haven’t been effective.
How it works
During a TMS session, an electromagnetic coil is placed against your scalp near your forehead. The electromagnet painlessly delivers a magnetic pulse that stimulates nerve cells in the region of your brain involved in mood control and depression. And it may activate regions of the brain that have decreased activity in people with depression.
Though the biology of why rTMS works isn’t completely understood, the stimulation appears to affect how this part of the brain is working, which in turn seems to ease depression symptoms and improve mood.
Treatment for depression involves delivering repetitive magnetic pulses, so it’s called repetitive TMS or rTMS.
Mayo Clinic’s approach
Why it’s done
Depression is a treatable condition, but for some people, standard treatments aren’t effective. Repetitive transcranial magnetic stimulation (rTMS) is typically used when standard treatments such as medications and talk therapy (psychotherapy) don’t work.
Risks
Repetitive transcranial magnetic stimulation (rTMS) is a noninvasive form of brain stimulation used for depression. Unlike vagus nerve stimulation or deep brain stimulation, rTMS does not require surgery or implantation of electrodes. And, unlike electroconvulsive therapy (ECT), rTMS doesn’t cause seizures or require sedation with anesthesia.

This article was published a few years ago but obviously nothing was ever done about it:

New depression therapy should be covered in N.L. say doctor, retired nurse
CBC News
December 11, 2015

Trudy Bradbury says her depression was successfully treated with drugs, but many others are not as lucky. (CBC)

A retired nurse from St. John’s and a doctor in Toronto are arguing that a new treatment for depression should be covered by the medical care plan in Newfoundland and Labrador.

“I would ask them to please have a look at this treatment because so many lives depend on it,” said Trudy Bradbury, who worked as a nurse for 34 years, and suffered from depression herself.

“I know how it feels. I experienced it 13 years ago,” said Bradbury.

“I was one of the lucky ones. I responded to medication and was able to return to work within a few weeks.”

She said about one-third of people with depression do not respond to drugs, and now she’s asking the provincial government to pay for a different kind of therapy.

Repetitive transcranial magnetic stimulation (RTMS) is a treatment that was approved by Health Canada in 2002, and is already covered in Quebec and Saskatchewan.

Re-setting the circuits

Dr. Jonathan Downar, a Toronto psychiatrist who specializes in brain stimulation, said RTMS is effective, with two out of every three patients showing complete or partial improvement.

“It’s a technology that was developed in the 1980s and 90s, where you can stimulate the brain without having to open anything up. So it uses a powerful focused magnetic field to directly activate the neurons of the brain,” he said.

The treatment works by stimulating neurons in the brain. (CBC)
​Downar, who offers RTMS at a private clinic in Toronto, says the treatment costs between $1,500 and $3,000, with patients needing 20 to 30 daily sessions.

“RTMS, it’s like exercise, it isn’t like surgery,” said Downar.

“So when you apply the stimulations, it’s like re-setting the circuits. It’s like when you re-set your watch, after a few months it will gradually creep back to the way it was again.”

Patients need occasional booster sessions, he said, but with proper treatment can stay well for a long time.

“My message to the Newfoundland government is please focus on the new technology that’s out there,” said Trudy Bradbury, who is motivated now by the depression of someone close to her.

She said the cost of running a treatment program in this province, and covering it under MCP is worth it, because patients will be able to go back to work, and lead productive lives.

It’s also an alternative to electroconvulsive (shock) therapy, which has side effects like the loss of short-term memory.

Cost vs benefit

Jonathan Downar said the cost of RTMS is coming down, with research on how to shorten treatments.

He also said it also provides access to care within weeks of being diagnosed with a mental illness.

Jonathan Downar is a Toronto doctor who says the long wait list for one-on-one psychotherapy means other treatments have to be offered. (CBC)
“We will never have enough psychotherapists do one-on-one therapy for patients,” he said.

“So we have to figure out a way to use our existing supply of physicians and other mental health workers to see larger numbers of people, while preserving quality treatment … to provide good psychiatric care for everybody who needs it, not just for the lucky ones who make it through the wait lists.”

Post-traumatic stress disorders and other conditions could also be treated with RTMS, said Downar.

“It’s being explored for addiction to tobacco and to alcohol and to other substances. And it’s also being used in some cases for OCD and eating disorders.”

Downar said the magnetic stimulation therapy should soon be approved for funding in Ontario. Alberta is also considering it, but in Atlantic Canada the only facility is at Dalhousie University.

Bradbury said she met with health officials in the Paul Davis government to make her pitch, but got no commitment.

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How Are You?

                                                              I am depressed! That’s not an everyday answer to the question,” How are you?” I think if you answered with that phrase, the other person would go in shock or think you were crazy. The more sociable response would be; I’m doing fine, I’m great, I’m good, etc.  We live in a Society that really doesn’t want to hear the real truth of how you are truly feeling but the more politically correct response. If you are sensitive to negativity and only surround yourself with positive people or if you think negative thoughts are contagious; then you better stop reading and leave this blog. I believe sometimes we mistake pain and hurt for negativity. If I were to say I only have positive thoughts, then I would be lying. If I did, I would be in denial or living in a bubble. All illness, physical or mental, bring with it negativity. We have two forces moving through the universe; negative and positive. And in order to produce electricity we need both. I believe in order to live a balanced life we need both forces to ignite our fire. To say we do not have negative thoughts, then I believe we are suppressing reality. Just as the sun shines, so must the rain fall.

Reality for me is living with negative thoughts, do I choose to live with these thoughts? Do I have a choice about these thoughts? Absolutely not! I don’t have a on/off switch. Who in their right mind (no pun intended) would want to be bombarded by negative thinking. Certainly not me. But that’s what depression is; having more negative thoughts, then positive thoughts. I do my part to keep these thoughts under control when I am at a capable place in my mindset. O well, you might say, “All you have to do is think positive thoughts and surround yourself with positive people”. I pray to God it were that easy. That would be like saying to someone who has anorexia, “Just eat food”. It’s not that simple and that’s not the way it works. We have an illness, a brain disorder, and no amount of positive thinking will cure us. I’m hoping and praying that one day, my mind will heal completely, just as if I cut my finger and over time it healed.

My mental illness is much like a physical illness; if gone untreated it will only get worse and maybe even cause death. It is as real and painful has any physical illness. And will not go away on it’s own. “Suicide happens when pain exceeds the ability to cope”(Dianna Paige). People don’t kill themselves; their illness kills them. People are victims of suicide. Suicide is what kills them, their illness is what kills them. So mental illness needs to be treated before it escalates to a point where you have no hope.

How many slang negative terms can you come up with pertaining to mental illness; crazy, psycho, mental, insane, nuts, weird, etc. Now how many negative slang terms can you come up with for cancer? None, there are none. But both of these are illnesses; if you suffer an illness of the mind you are thought to be irrational but if you suffer a physical illness you are honorable, courageous and strong. Mental illness is the only illness that the person is blamed for their illness or lack of recovery.

I’m tired of living in a Society where you get a cast if your arm is broken, but if you have a mental illness, you become an outCAST.  Over the time it took to read this blog, over 20 people from around the world have died by suicide. With the proper support, guidance and care these deaths could have been prevented. It is up to us and is our responsibility to take a stand, end stigma and raise awareness for Mental Illness.