The Year I Died

In 2012 someone died. That someone was me. Something changed that year that I have fought to resurrect, fought to bring that person back to life; to resuscitate. It’s now 2020 and I’m still trying to find that person who died. My spirit died, my enthusiasm, my zest for life died. Some days are worse then others but this week as left me feeling numb, no motivation; I’m still missing me. And I don’t like the one that’s left behind.

The new me is in a constant struggle to survive. The fighting as left me exhausted, tired and numb. I find it so hard to feel happiness, especially since that’s all I want. I believe happiness is something you shouldn’t have to fight for but should come naturally. And after all these years I thought I would be at a much better place of improvement with my mental health. But it’s like I’m still fighting to keep me alive. Still fighting to resuscitate that lifeless me.

I remember back in 2012, my wife Lisa, described me as a ‘walking corpse’. I’m sure I’ve improved pass that acute stage but it’s been a battle I fought every day. How much can one person fight and how long can a person fight before they come to a breaking point? That’s the question I’ve asked myself during the pass few weeks.

This year as brought many challenges and obstacles for everyone. The worldwide Covid19 pandemic itself as added so much stress and anxiety to us all. But for us, those living with a mental illness, this pandemic as been a trigger and frightening experience and many have found it hard to cope. I’ve certainly had my moments that’s for sure. At times when my wife Lisa was hospitalized for three surgeries in less then a year. Then Lauren with her already comprised immune system was hospitalized for cerebral palsy related issues. And our son, Logan, was thrown around in all this chaos and turmoil; a strong but worried little boy, dealing with issues that no little boy should not have to face.

So in the midst of a world that was so frightening, unpredictable and isolated, I felt the pressure of having to survive. There were days I thought I would crumble but I knew I had to be resurrected to get through this yet another life changing crisis. I knew that if I crumbled we were doomed and I could not let it happen. I was reminded of the safety regulations repeated by a flight attendant on an airline prior to take off. And it was advice that I had to use during this very stressful time. The flight attendant would say, ‘In the event of a drop in cabin pressure; air masks will be released from above your heads. If you are travelling with infants, small children, seniors or anyone requiring assistance with their mask; put on your own mask FIRST!’ And that’s what I had to do, put on my own mask first and  then I would be equipped to help those that were in my care. I was resuscitated once again.

Maybe the year to come will be my year to be resurrected. The year I come back to life! For everyone’s sake, I need to return, I need to be there for my family, in every way. I pray for strength, wisdom and endurance to press on, to never give up. To live again!

 

 

 

 

 

No Options Left!

The screams of terror, fear and pain fill the house. No, we are not watching a horror movie; it seems we are living it. Logan rushes to close the bedroom door because he can’t bare to hear his little sister in so much pain. It was just Monday, October 22,2018 that Lauren had her third spica cast removed. For anyone having a cast removed is never pleasant but for Lauren it’s even worse because her cerebral palsy exemplifies itself by spasticity(tightness)  of the muscles.

Because her muscles have been unable to move within the cast: they are now weak, tight and very little control over her movement. If she is moved at all, even to do a pamper change, throws her into an horrifying rage. We have to put her in a bath of epson salts and very warm water to help relax and awaken her now ‘sleeping’ muscles. Getting her from the bed to the bathtub is nothing short of a nightmare. She is clawing at my neck in hopes of getting relief from the fear and pain. Once she gets in the tub with Mommy, she starts to settle down and relax a little, to a point where she is just floating. We do this for about twenty minutes. Then its time to get out and the terror starts all over again.

Why am I telling you all of this? It’s because I want to educate and make you aware of what’s involved in caring for a child with a disability. And also to make you aware that our insensitive, non caring, non compassionate Government does nothing to help. We has her parents feel so all alone and no support, we have to provide 24/7 care ourselves with  no respite care because we can’t pay for it ourselves and our Government as declined  any help whatsoever. We are not complaining about what we have to do, because we love Lauren and would give our lives for her. But we believe we deserve a little help from our Government to receive some respite care. We are only human and we are running on empty and this road is just beginning and we are falling beneath the load already.

What do we have to do to get some help? I am tired of pleading with our Government officials MHA, MP, Minister of Health, Minister responsible for the Status of Persons with Disabilities, etc. Where did I get with all this advocating? No Where!

Where else can I go? What else can I do? We have run out of options and feeling exhausted and overwhelmed. Who can help? Who will help? Someone as to do something and I’m calling upon our Government to get their heads out of the sand, to hell with policy and do what’s right for this little girl and her family.

Logan’s Journey

I want to introduce you to an amazing little six year old boy named Logan. When we decided to have children (after been married for thirteen years) we were told we would probably never be able to conceive a child on our own. After working with Fertility Specialists for over a year, we had no progress. So our last and only hope of having a child would be by IVF; Invitro Fertilization.

IVF was a very costly procedure and would be done in Calgary, Alberta. With bags packed and hearts full of anticipation and hope, off we go to Calgary. Once the procedure was complete, which took about a week, we were homeward bound again. Then we waited for two weeks before we could take a pregnancy test; to find out it was positive! To make a long story short, we were soon the proud parents of a “bouncing” baby boy. And two years later we were surprisingly blessed with a beautiful baby girl, you talk about divine intervention and a little “work” by Mommy and Daddy. It was a year later when we would learn the devastating and life altering news of Lauren’s diagnosis with Cerebral Palsy.

Logan has grown to be such an amazing, intelligent, sociable, fun loving little boy. But you see as much has we try to protect and shelter him from all the “challenges” of our lives, this is impossible to do. When I was very sick, especially during ECT treatments, I spent most of my time asleep. How could a little boy understand why his Daddy was always asleep and couldn’t play with him. I hate my illness for stealing this precious time away from my little boy; time I can never get back. Has I’m writing this I am also realizing how much of my memory of this period of my life is gone, due to ECT, medication and the severity of my depression. But we are trying to make new memories and making life as normal has possible for both our children.

Logan is his father’s child when it comes to his love for animals. His first love were worms, then snails, our dog; Brady (who has since gone to Heaven). Then we thought some fish would satisfy his longing for more pets, but only to find out he also had a love for bunnies. Which now he is the proud owner of a blue eyed, white mini lop; the love of his life. Recently we visited Lester’s Farm, Logan wanted to know if we could buy farm animals. I said, “we’ll have to wait and see. A pig has really peaked his curiousity (all things are possible in our household; never say never).

Logan also has a love for singing, that’s also in his genes. His ability to remember songs, his voice range and tune is amazing. I can’t wait to see where he goes with it; “the skies the limit”.

When it comes to toys,he first became fasinated with trains, all trains, not just Thomas the Train. To bad we live on an island where there are no trains, kind of ironic. Then there’s his love for Star Wars and Star Wars Legos. Him and Daddy spent many hours putting together large Star Wars Lego space ships; Daddy loved it.

Logan’s greatest achievement, accomplishment, and love is his little sister Lauren. He’s become her mentor, “Bruddy” is the sparkle in her eye and vice versa. They just love each other (most of the time). If there is anybody that will motivate Lauren to move or maybe even walk; it will be Logan. He can do anything with her and she loved it; they are best buddies.

Logan has seen and experienced more in his little lifetime then most kids, when it comes to life challenges. But I believe it’s those experiences that have made him into the amazing, caring, loving little boy that he has become. He has taught us all, that
there is joy in living and we can overcome any opstacle because we have something that money can’t buy; LOVE! And we just “love him to pieces!”

The Cold, Hard Truth About Mental Illness, Depression and Suicide

  1. II thank God for social media because it gives me a voice, a means to tell my story to others who need to hear it.

Up until recently, I thought that society had come a long way when it comes to the way people look at mental  illness and suicide. I thought the walls of stigma and ignorance (not knowing) had come down somewhat. And maybe they have to a certain point but we have such a long way to go.

You may ask, why would you go on such a public forum and talk about something so stigmatised and controversial? A topic many would not even talk about because of fear and shame. Well, I have nothing to fear, nothing to be ashamed of and if I can help save the life of one person; it would make it all worth while. So I speak out once again!

To the person who is suffering in silence, you are not alone. There is hope and peace to be found again. I struggle with this everyday, but I see light through the cracks, glimmers of hope in the depths of despair. We can and will; ‘rise again’!

I don’t get up in the morning and say, “I think I’ll have a crappy day today, that would be so much fun”. NO! I awake with panic, a flow of an hot sensation all through my body, accompanied by fear. I get up and struggle through most of the day, hoping this will be a “good day”. It is not “a choice” as some would say or think. Your broken mind is misfiring and happy thoughts don’t come naturally. The chemical imbalance in your brain causes you to see darkness, hopelessness, helplessness and constant negative thoughts that a “normal” brain would not feel. Don’t get excited and think you’re normal – there is no such thing; we all have something, none of us are perfect.

Then there’s the “myth” that it’s the devil making you feel this way. Well let’s not give the devil so much credit! This is not a spiritual battle going on in my head, no more then someone with cancer fighting a spiritual battle, they are fighting an illness and so are people with a mental diagnosis. Yes, I believe as sin entered the world, so did sickness. It’s far beyond my mental ability to understand the “WHY?” I don’t know why God allows this to happen, why I’m sick, why some die by  suicide, why some have cancer and the list goes on. But God’s ways are not our ways and His thoughts are not our thoughts. We cannot see the big picture because our thinking is so small compared to that of an all knowing God. And that’s where I leave it; to God! It’s not for me to say or judge, that’s His department. I just need to trust that He knows best.

Then there’s suicide. What? You are going to talk about suicide? Yes, indeed I am. The ancient myths, lies, opinions and beliefs about suicide are sickening and primitive. It’s time to open our mouths (we use it for everything else) and our eyes, minds, and hearts. I am/was borderline suicidal, when I was at the acute stage of my illness. I prayed to God to just let me die and end all this pain and torment. I could not come to do it myself, not that I’m any stronger then the next person but I believe God as another plan for me and that’s why I’m still here. To be an advocate, a voice; to help others and their caregivers and to give insight on what this illness really is all about. Some statements that I have heard over the years are: 1. If they took their own life, they must be going to hell. 2. That is such a selfish thing to do. 3. They could not have thought about their family and the impact it would have on them. These statements would definitely come from someone who has no idea, no knowledge about the illness and never walked in their shoes.

First of all, the pain and torment that this illness brings is unbearable and you feel the only escape, the only way out is suicide. You see no hope, only a dark tunnel with no light at the end. You get so desperate and so tired of fighting, until all your strength is gone; you have nothing left but flesh and bones, no ability to reason. Thus death is your only way to find peace. Also this is not a selfish act or cowardly way out as some would say but quite the opposite. It is a way to relieve your caregivers of the burden you have brought into their lives. It’s a way to free them of the worry, pain and suffering you have afflicted on them. So you are convinced that they would be better off without you. You are doing them a favour. For those of you who have suffered a lost of a loved one, know now that they are finally at peace and they did this to free themselves and you of this horrible, horrific disease. Do not be ashamed or angry; it was their illness that made them do this. The real person that they were, is now at peace with the angels and are watching over you from afar.

I hope in some small way I have shed some light on this so misunderstood and complicated disease. May we all find compassion, love and forgiveness and  look at mental illness in an whole new light. And may we never be quick to pass judgement on anyone suffering with a mental illness, until we’ve walked a mile in their shoes. May God open our minds and hearts to be our “brothers keeper”.