Fill My Cup

Today is one of those days when I feel like I’m running on empty. Just like a car, if we don’t refuel it, it will run out of gas and be of no use. So what do we do when our car is empty? We take it to the gas station and fill it up.

Well today I’m on empty, the challenges and responsibilities of life have left me empty. It seems there’s never a reprieve, a time when I can just breathe.

With Mom’s passing, time as not healed my wounds. It seems the more time passes the more I miss her and the reality hits me that she’s no longer with me. The telephone calls every day have ended, just hearing her voice is gone. So I call out to God; be my comfort today.

I’m guessing that most people wouldn’t admit to having a down day. And that’s okay, but for me I like to be real and by doing so to help others. We live in such a world that expects perfection, a ‘me’ society, a cookie cutter mentality of what we are supposed to feel, think and act. I guess I was never drawn into that way of thinking. I am who I am, nothing or no one more, just me. Sometimes maybe it would have been easier if I just went along with the status quo. But I didn’t always chose the path most travelled. Many times I made my own path, I found my own way.

Living with a mental illness can so easily drain you to a point of exhaustion. Every day is a struggle, some less then others. But lots of days I feel like I’m running on empty. Many days I just have to stop and refuel, to breathe.

And then there’s a caregivers life; that means 24/7, 365 days year. I’m not complaining; I would do it all over again if I had to. But I can’t say it’s an easy life, it’s tough, challenging, isolating and exhausting. I love Lauren more then life itself and that’s why I gave up my own life for her. But what I gained was far above anything I could ever imagine. John 15:13 says, “Greater love hath no man than this, that a man lay down his life for his friends”(his daughter, his family).

So it’s those days when I’m running on empty, when it seems humanly impossible to keep going. But it’s those days that I have learned to look to an higher power. To a strength that is not my own, to a God that is in the driver’s seat of my car. I’ve been singing this song all morning and it sums up what I’m trying to say. The words of the song are “my” words, my prayer for today. He is faithful!

Like the woman at the well I was seeking, for things that could not satisfy. And then I heard my Saviour speaking, “Draw from My well that never shall run dry”.

Fill my cup, Lord. I lift it up, Lord. Come and quench this thirsting if my soul. Bread of Heaven, feed me ‘til I want no more. Fill my cup, fill it up and make me whole.

There are millions in this world who are craving the pleasures, earthly things of gold. But none can match the wondrous treasure that I find in Jesus Christ my Lord.

Let’s Talk

Mental health matters and so does each person with a mental illness. We are not  alone, 1 in 5 Canadians suffer from a ,mental illness of some form or another, I believe that over the past few years, especially during Covid, that we are in a mental health crisis. Mental illness has no respect of persons, no one is exempt, no one! Mental illness has touched the lives of all of us, whether that being ourselves directly or someone we know.

Today is “Bell Let’s Talk” day. So, let’s talk! My name is Harris Tucker and I suffer from a mental illness! I have nothing to be ashamed of, nothing to hide; I have an illness, it’s that simple. No need to be stigmatized, no need to be misunderstood, no room for prejudice, no need to feel alone. This is why I have talked about my illness with openness, transparency and truth; hiding nothing. My advocacy for mental illness can be found on my website at www.harrislisa72.com and also through my book, “Beyond The Door, My Journey Through A Lifetime Of Mental Illness”, available through Amazon.ca. It’s through both of these avenues that I have shared my story, my life and my experiences with;  major depression and anxiety disorder. Bell’s campaign, ‘Let’s Talk’ certainly motivates us all to share our story. How else will others know and understand what mental health is all about, if we don’t  talk about it?  So let’s talk and talk some more, let’s never stop talking. And eventually the walls of stigma will come down and all those who are suffering, will suffer in silence no more but will talk of their illness has free has talking about any physical illness.

In the last few months I have worked on my mental health so intently because if I didn’t I would once again end up in that dark hole with no end in sight. I have to give some credit for my improvement to my medical team; my family doctor, my psychiatrist and therapist who have so caringly given me the tools and encouragement that I needed to get to where I am today, which is a much better place. A place where I can find some light, a place of hope and a reason to love myself and live, in spite of my  mental illness. It’s been a long journey back to a form of recovery, I know I’m not cured, there is no cure, but I am so thankful to be able to say that I am at a better place then I have been in years. And much appreciation also goes to my family and my heavenly Father who have walked this journey with me and have never left me and I’m sure will continue to walk with me.

I am especially drawn to those who suffer with depression and anxiety because I know how they feel, I get it. I have been where they are. But I want to tell you now; no matter how dark the day – there is light, no matter how hopeless you feel – there is hope, and no matter how worthless you feel – you matter, you are worthy! Just hang in there; after the darkness comes the dawn. The light will shine again!! I know because I have been there!

Hey, check out my website, “Art by Harris” with this link: https://www.harrisartisticdesigns.com/

Covid19 And My Mental Health

Will the ‘restrictions’ of Covid19 kill me before Covid19 does? Don’t get me wrong I know we have to abide by these restrictions and they are put in place for our good, for our protection. And I will follow these restrictions for myself and also for the safety of others.

But having said that, coming from someone who suffers from a mental illness; how am I going to survive? Because right now I have days where I feel I am loosing the battle. Every restriction that is in place are restrictions that trigger my depression and anxiety. I believe this pandemic is difficult even for someone who has good mental health. But those who suffer mental illness; this caged, confined, imprisoned pandemic, would make one worry and wonder if you can survive this hellish existence.

I have no problem in wearing a facemask, I believe it’s the selfless thing to do; if it makes us a little uncomfortable, I think we can tolerate that, especially if it meant protecting someone who is autoimmune comprised or vulnerable. Sometimes we just have to do the right thing and wear a mask, if not for ourselves, then do it for others. I know there are some who just cannot wear a mask because of medical reasons and therefore they have a medical exemption from their doctor. I do believe these people should really limit their outings around others. One for their own protection and two, for the protection of everyone else. To my disbelief there are still those who just blatantly refuse to wear it. Their reasoning; they just don’t want to live their life in ‘fear’. I think sometimes we need a little healthy fear and abide by the restrictions that the Health Care Professionals put in place for our protection. I believe that someone who refuses to wear a mask are just being selfish, careless and inconsiderate of others. I certainly don’t feel that all those who are wearing a mask are living in fear but they just have a lot of common sense. So I will ‘suck it up’ and wear my mask without complaint, it’s the least I can do.

I know right now the media, example ‘Bell Let’s Talk’, are encouraging those who are finding the stress and anxiety of the  pandemic is affecting their mental health and they are finding life very difficult. And I totally agree, talking is great therapy and is certainly a means to help each other through these tough days. But I guess there are sometimes, exceptions to every rule. Just yesterday, I was having a really tough day, how I was feeling was unexplainable but it was not good. I was desperately fighting to just cope, to just survive the day. And talking to someone was the last thing I wanted to do; I just wanted to close the door on everyone and just crawl inside myself. I know this was not right but talking wasn’t on the top of my list of coping. So, don’t do as I do but do as I say and talk to someone!

I believe the most trigger provoking restriction of this whole pandemic is, social distancing/living in a bubble.  Not being able to spend time with friends and not having a social life is just killing me. The things that once I took for granted, I now crave to do. Just being able to go to the grocery store and smile at the passing customers or stopping and having a chat to a friend we just bumped into. And then just not being able to hug those we meet. Those little things aren’t little anymore, they play havoc on our mental health, even when we don’t realize they are. But for me, getting out, socializing, interacting with others, sharing with others, were all therapy for my mental health. Those were things I desperately craved to help bring me through my dark days. But because of this pandemic I am very limited to what I can do.

We are so blessed here in Newfoundland and Labrador compared to others parts of Canada and the World. But we certainly can’t afford to let our guard down. It’s because of our abiding to the restrictions of Covid19, that I believe have helped to flatten the curve and keep our numbers down. So thanks to our Government and Health Care Professionals for doing such an amazing job. I believe our protection and well being were their top priority and they have to be commended.

One day, hopefully, we will be able to look back on this nightmare and thank God that it did not kill us but we survived. My heart goes out to the tens of thousands that have died because of this deadly virus; worldwide. To those we will never forget, to the families who are still grieving their loss, beyond sad! Even to this very day, we are far from being home free! Still this pandemic sweeps through the earth and taking thousands of lives with it. One day, just one day, maybe just CA one day, we will be free again. I believe we will never be the same again, in this generation, but we will learn once again to live a ‘New Normal’.

 

 

I Pressed On!

A very dear friend sent me this post today which says, ‘If you rearrange the letters in Depression, you’ll get ; “I Pressed On”. Little did she know how desperately I needed to be reminded of that; ‘Your current situation is NOT your final destination.’ And then in her own words she wrote; ‘You have been pressing on! The rewards for you are just up ahead! Hugs. I believe this was no coincidence but God’s reminder to me that I will make it through this storm.

It’s been several weeks now and I have been pressing on, but barely. My depression, like any other illness, sometimes gets the better of me and I get so scared that this time I’m not going to make it. That my strength, my fuel is going to run out and just like a car; I cannot run on an empty tank. And to describe it best, that’s exactly how I’ve been feeling; like I’m running on an empty tank. I have used up every ounce of strength, energy and will power that I have left. Today I awakened with panic, if you haven’t experienced what a panic attack is, then be thankful, very thankful. It paralyzes and disables every part of your body. But I know I can’t let it, so ‘I Press On’. I force my legs over the side of the bed and let my feet hit the floor. And the thoughts of facing another day of fighting this broken mind, so overwhelms me. Again I ask for God’s strength, wisdom and guidance for another day. And that He would be my fuel in my empty tank, that He would take the wheel of my life and steer me over the rough road ahead.

You see I have a disability; not a physical one that confines me to a wheelchair, like my darling Lauren, but a disability of my mind, a disability that confines me to my broken mind. Not trapped in a wheelchair but trapped inside my mind. A mind that is so fragile, that on the darkest days; I can only see sadness, hopelessness, helplessness and emptiness. But ‘I Press On’ and hope that tomorrow will be better.

Depression as become the epidemic of the century. The statistics speak for themselves. According to the Canadian Mental Health Association, 1 in 5 people in Canada will personally experience a mental illness. And according to the World Health Organization, more then 264 million people of all ages suffer from depression. Close to 800,000 people die due to suicide every year. With statistics such as these, the stigma that is associated with mental illness should be greatly affected and reduced. No one is exempt from having a mental illness, no more then someone is exempt from having cancer. So let’s respect, be nonjudgmental and be kind to all persons and may we realize that tomorrow we could be suffering a mental illness.

If you are suffering today from a mental illness, let me assure you that you are not alone. And that there are people out there who really do care and do want to help. I encourage you today to stand tall, with your head held high, we have nothing to be ashamed of, nothing to hide, we have an ILLNESS called DEPRESSION. So let’s rearrange those letters and lets say, “I PRESSED ON!” We can do this, you can do this! I believe in YOU!

Defining Depression

How do you put on paper what your heart is yearning to say? Words are just that; words! But putting those words in a sentence that makes sense and expresses how you feel, well that’s not so easy to do. Words can only speak, but only the heart can truly feel what it is you truly want to express. I have tried so desperately to portray my thoughts and feelings in my Blog: www.harrislisa72.com entitled; ‘Life and Times of The Tuckers.’ With the caption attached; ‘Living with depression and anxiety. Raising a child with cerebral palsy. The ups and downs of life; the rain and the sunshine.’ I have written a total of 173 posts/blogs on this website and I feel I have only scratched the surface (written from January 2017-November 2019).

I won’t lie to you and tell you that life is wonderful and easy. When I’m having a very bad day, and I’m just referring here to my depression and anxiety, life is anything but wonderful and easy. Each moment of the day is a fight, a fight to just survive. Each day is a challenge, nothing comes easy anymore, not even the little things. I would just like to elaborate on some defining symptoms of this battlefield of the mind.

For me, when my pain is so intense, I feel like I don’t want to live anymore, that’s what depression can do to you, but yet I don’t want to die either. The constant pain and torment lessens your will to live. It would be so much easier to die and escape this living hell. But yet deep down, you really know that’s not what you really want. You just want to live, but really live without the constant struggle to survive. Life should be so much more then just surviving. I’ve often said to my doctor, ‘if this is living, then I am not living.’ Depression steals the joy, enthusiasm, your reason for living, your purpose; it steals ‘YOU’! And everyday you are constantly trying to find that ‘you’ that once you were. He’s in there somewhere but just can’t seem to escape the prison of the mind.

Depression can be defined as the overpowering need to isolate yourself from the rest of the world. There’s the inability to socialize, the wanting to just hide under a rock. That outgoing, social ‘icon’ that once I was is now turned into somewhat of a recluse. But that is the last thing I want, the last thing I need. When you suffer from depression you feel totally alone, you could be in a crowded room but feel like you are the only person there. Lonely is your constant companion. But we know we are created for companionship, we  crave affection and love. Living in isolation will only make our depression worse and that is why I need people around me, a form of support.

And then there’s the worse part of the day; the morning! A major defining symptom of depression is the fear of the day to come. How am I ever going to survive it? Constant fatigue and tiredness overwhelms my body and mind. I wonder how I can get out of bed, but then I say; ‘Okay God, it’s me and you, I can’t do this alone. So let’s do this! And the day begins. On the not so good days, I long for night to come. I know then, I have survived another day. Maybe sleep will provide an escape; a reprieve. And yet in spite of my depression and anxiety, I live my best life with what I have and try to make the best of everyday.

I can define/describe depression in so many other ways; living in a dark hole, loss of memory and concentration, having no desire to do the things you once loved to do. Depression has the power to redefine who you are (if you let it); It can consume your every thought and lessen you to a different person; to someone who as lost all confidence in oneself, convincing you that you are worthless and useless. No matter how hard I try, life becomes unbearable and overwhelming to a point where you don’t know how you can go on. But you know in reality, that is your illness talking; it distorts your thinking patterns.  The American Psychiatric Association defines major depressive disorder as ‘a common and serious MEDICAL illness that negatively affects how you feel, the way you think and how you act.’

We are presently experiencing the ‘Season to be Jolly.’ I love Christmas, a little too much sometimes; I don’t know when to stop decorating. I was warned to tone it down this year, but how do ‘I’ tone down Christmas? My idea of toning it down is someone else’s idea of being overdone, too funny! But that’s not what Christmas is all about, there’s more to it then just decorations. For a lot of people Christmas can be one of the most difficult times of the year. It’s that time of the year when we are expected to be happy, joyful and glad. But what if we suffer from depression and anxiety; Christmas can be an enormous trigger. It can trigger so many symptoms of depression; loneliness, sadness, hopelessness, fatigue, anxiousness; all for various reasons. I pray this Christmas that all who suffer from mental illness, will feel the peace that came to earth on that first Christmas morning. Isaiah 9:6 ‘For unto us a child is born, unto us a son is given; and the government shall be upon His shoulder; and His name shall be called Wonderful, Counseller, The Mighty God, The Everlasting Father, THE PRINCE OF PEACE.’

What Others Can’t See

This isn’t the way it was suppose to be. This isn’t what I had anticipated my life to be today. This wasn’t the plan; so far from what I had thought. Never did I think my mental illness would be so controlling, so disabling, so crippling. I awake and wonder, ‘how am I going to do this again?’ My eyes just opened and I’m in panic mode already, exhausted and my day as not even begun. My inner voice calls out to God, ‘Okay God, let’s do this because if you don’t, I can’t.’ So I throw my feet over the bed and hope for the best. Hope that just maybe, this might be a good day, a better day.

This is exactly how someone who is struggling with chronic depression feels; it doesn’t go away. Even on a good day it’s still lurking in the shadows of your subconscious mind.

It’s a beautiful Fall Saturday morning. The leaves on the trees have just started to fade to the most vibrant, radiant colors that Fall brings. I think to myself; a beautiful day to harvest the small but abundant vegetable garden we had planted in early spring. A day to reap the benefits of our labor. Time to get my hands dirty with the soil of Mother Earth, rather then covered in paint from my time of splattering different mediums on an artist canvas. So today is going to be a good day, if good intentions, fight and drive have anything to do with it. But deep inside I know the difference; for this chronic depressed soul would have to endure that unending feeling of sadness, hopelessness, fear of surviving another day and the question, ‘Would I survive another?’ Fatigue was already scratching at my minds door; trying to get in.

I had to franticly remind myself of what I had planned to do today and nothing was going to stop me. So I had to push aside those thoughts and remind the kids and Lisa that it was harvest time. Time to get those potatoes and carrots especially, out of the ground. And so we start digging, everyone in awe of what we had accomplished and what was coming out of the ground would be our winter supply of vegetables; I don’t think so! It wouldn’t be long before we’d be headed to the nearest produce department of our local grocery store. But I guess it wasn’t  all about the quantity but the fun we had in the process. The kids just loved it and that made me happy, no matter what my brain was telling me. Our cameras (iPhones) clicked multiple pictures of our first family harvest; it was an hit! And we had the proof; the pictures we had captured. Looking at the pictures, you could not buy the more perfect ‘Fall Family Harvest.’

But does a picture always tell a thousand words? In this case, no! For hidden behind my farmer façade; deep down inside my mind, was an hurting, painful, struggling, faltering soul. Wanting nothing more then to be at peace, just to enjoy what I was doing in the moment. But no, it was still there; hidden behind the pictures, the camera could not see or capture the war within.

Just recently I read an article by Awareness Act, called; ’15 Habits of People With Concealed Depression.’ I thoroughly related to many of these habits and find myself practicing them even today. Although I blog and talk openly about my depression; I don’t go around with DEPRESSION written on my forehead for all to see. No, when I am in public I have mastered the art of concealing my depression. People may look at me and think, ‘Wow, what I wouldn’t give to have his life.’ Everything may look great on the outside but on the inside I could be dying. Fighting a war that never seems to end.

I would just like to elaborate on a few of these ‘habits’ that relate to ‘my’ depression. One of these would be; ‘people with concealed depression are often quite talented and very expressive.’ I’m quoting, ‘These people are able to bring something beautiful out of the darkness that consumes them.’ And every day that as been my goal, through my writing and painting; is to bring something beautiful out of all this suffering and darkness.

Secondly, ‘They tend to search for purpose.’ My life is filled with searching; there as to be a reason and a purpose for all this hidden depression that lies deep within, it cannot all be in vain. And I believe it as opened a door whereby I can be an advocate for mental illness. And because I have personally suffered with this horrible illness for all my life, I have gained knowledge, experience and a compassion that I would have never received had I not suffered from depression, anxiety and panic attacks myself. It is my belief that the only people that truly understand and ‘get it’, are those who have suffered this illness themselves.

Thirdly, in order to feel better or to try to have a ‘good’ day requires a lot of effort; it doesn’t just come naturally, unlike most people. Every day that I put my feet over the bed, to get up in the morning, requires effort and fight. But I do it!

People suffering from depression learn to fake moods. They will often come across as happy and ‘normal’ on the outside because they don’t want to bring others down. So we fake it!

And lastly I’d like to elaborate on the fact that we have trouble shutting off our brains, they are constantly in motion; much like an hamster on a spinning wheel, always moving but going no where. Sometimes I wish I had an on/off switch but that’s not the way it is. Learning to slow down my thoughts and to stay in the moment is one of the best practices I have found to find a little relief. And due to this constant turmoil; it leaves you with unending fatigue, mentally drained, irritable and a shortness of patience. Mental fatigue can some days just leave you lifeless.

Robin Williams, well known actor and comedian, was a man who suffered immensely with concealed depression. He was one of my favorite actors and never in a million years would I have thought that he suffered from depression. But the façade awarded him many awards in his industry and the picture he painted certainly wasn’t a one of darkness and depression.

So, a picture doesn’t always tell a thousand words. Many times what we cannot see is much greater then what we can see. So never judge a book by it’s cover; for hidden in the pages lie the many hurts, the pain and the sadness of depression. Sometimes what others can’t see, is what hurts the most. So if you are hurting today, and you are suffering alone and in silence; know this, you are not alone. If you have no one to talk to, I am here, I understand, I care, I love you! Feel free to private message me, I may not have the answers but I ‘get it’.

A Good Day

I was swiftly spiralling down a dark hole of despair. Loosing control as I was going down, down, down. Every indication that I was relapsing was steering me in the face. My sleeping pattern was interrupted, my appetite for food was dwindling, my emotions were crying out to me to help them stop. But I could not control them, the dam had broken and I was drowning. But worst of all, panic attacks had returned and was taking over my life. My greatest fear had come true; I was relapsing!

But was I willing and was I going to let this happen again? I fought this before and I will fight this war again. I was determined to stop this illness from escalating into a full blown breakdown. In the back of my mind I knew my options had pretty much ran out. Over the years I had tried everything to escape this living hell. But yet every day for the past eight years (not including a lifetime) I could not honestly say I had a ‘good’ day. I am not referring to my physical life but my life from within my mind. My mind was broken and I was trying desperately to fix it. I just wanted this hell to go away. But to even reach a functioning level, required hard, hard work. And today I have reached that level but staying there requires so much strength, courage and determination.

And there are so many every day triggers that would throw me into the grasps of my depression, anxiety and panic attacks. How was I going to defeat this monster? I have to use my past experiences to find my way out. And I knew the best place to start was my amazing family doctor. I wasted no time to get an appointment and before I knew it, I was sitting face to face with the man I knew could help me. I described to him the horrors of my panic attacks, how they awakened me from my already restless sleep. How I was afraid to be in a public place because a panic attack could strike without warning and wasn’t  just confined to my home life but could occur anywhere. And because of this, I was a prisoner, under house arrest.

I explained how I wasn’t living, just surviving and this was fair to no one. I was determined, this as to stop and I would do anything to make it stop. And being the compassionate doctor he is, he was determined to help me. His first plan of attack was to get my panic attacks under control. And this would require another drug, called buspirone. I have to admit, I wasn’t all that optimistic, given my track record. But I was willing to try and I did. To my amazement, six days later from taking this new drug, I have not had another panic attack since. I am being highly cautious and afraid to get my hopes up because of past drug failures but I have to believe that this one is working and will remain working.

I visited my scheduled psychologist appointment yesterday. And as I sat in his home based office, he politely asked how I was doing today? And I replied with, ‘I’m having a good day’. It seems like forever since I said those words, I really surprised myself when I said them. When you have a chronic illness, it’s not every day you can say, you’re having a good day. So now I’m just hoping to have more ‘good’ days, then bad days.

All of us I’m sure have good days and bad days. One thing we can be assured of and that is, it won’t rain always. And if we could just remember that on the bad days then we can make it through. I’m reminded of the song which says;

“Someone said that in each life some rain is bound to fall. And each one sheds his share of tears, And trouble troubles us all. But the hurt can’t hurt forever and the tears are sure to dry.

And it won’t rain always, the clouds will soon be gone. The sun that they’ve been hiding has been there all along. And it won’t rain always, God’s promises are true. The sun’s gonna shine in His own good time, and He will see you (and He will see me) through.”

CLOSING MY BLOG

These past few weeks for me have been an overwhelming sea of depression, panic and anxiety. My illness as so desperately tried to destroy me, to a point of where I just wanted to give up and not fight anymore. Fatigue had drained every ounce of strength that I had left in me; that I couldn’t fight anymore, even if I wanted to. Curling up into a ball and staying there would be so much easier to do.

I had been so tired of ‘well meaning’ people who know nothing about me, nor my illness but who think they have all the answers to  mental illness. And I know they mean well but sometimes it’s best they say nothing at all. Actions speak louder then words. A simple hug would do more good then a textbook of advice. But sorry to say society is quicker to give their opinion (not always fact) rather then a compassionate heart. And before I go any further, let me make one thing clear, I am not looking for pity (that I don’t need) but I do deserve respect and understanding. Just as I respect others feelings, thoughts and beliefs. I don’t always have to agree, I just need to respect. And respect meaning; ‘due regard for the feelings, wishes, rights or traditions of others’.

I reached a point this week, when I felt, ‘why do I do this to myself?’ Why do I speak so openly about my illness and in so doing, put myself out there for ridicule, stigma, misunderstanding and isolation. People are not always kind; and say or imply things that really hurt. And when you have a mental illness you are already in a vulnerable state. I was ready to say, ‘I’ve had enough and I was going to close my blog/website down. But then I remember the real reason I do this, it’s not about those ‘well meaning’ people, it’s not all about me, but it’s about those who are suffering with mental illness and do so feeling all alone. And for some reason, mental illness as always been an illness of isolation and even in today’s society is still so plain to see. But if I give up now, that would be one less voice that mental illness has and I will not give up. Despite adversity, ridicule and ignorance I will keep talking about mental illness. If you are reading this and you are guilty of stigmatizing mental illness, then shame on you for not educating yourself to what it means to be mentally ill; tomorrow it could be you or someone you love. But if you are someone who is suffering from a mental illness and you feel you are alone, you are not; I am where you are.

There are so many who are suffering from mental illness all around the world; mental illness has no respect of persons, no one is exempt. Just this week a famous Olympic swimming champion revealed he lives with depression. He said, ‘If I can get one message out there, it’s that ‘it’s OK not to be OK’. When he says, ‘living with’ he is implying/stating that his condition is a chronic illness. Chronic meaning, ‘persisting for a long time or constantly recurring’. Unfortunately for many of us, our condition is a chronic one; no different then any other chronic physical illness. So yes, I have a chronic mental illness that I have suffered all my life, but I am living with it. That doesn’t make me any less of a person; it just means I have an illness. And it also doesn’t mean that all mental illnesses are chronic, but for me; mine is. And if I have to go to my grave still struggling with this illness, then I will. Not unlike the countless multitudes of persons with cancer have gone to their graves, fighting to the end.

So today I hope I have accomplished three things. One, that I have helped to destigmatize the disease. Secondly, that I have inspired and given you hope in that you are not alone. Thirdly, that by acknowledging our own disease, I have empowered you to face your own disease openly and in the face of stigma. Our only hope of mental illness ever being publicly accepted by society, is through awareness, education and speaking out. We all have a part to do. Chin Up! We can do this together! I’m here for you!  Closing my Blog? I think NOT!

The Seasons Come And Go

Winter as finally passed and Spring is so desperately trying to unfold. With Spring comes that feeling of new life, new beginnings, fresh hope and a warmth that inspires the soul. The cold, chilly winter season as reluctantly become another memory in time. Much as happened; good and bad. But yet we have survived another season; another season of life.

I can’t honestly say that the past several months hasn’t come without it’s tough times. It’s been rough on all of us, to say our life is simple, would be an understatement. Living with mental illness and cerebral palsy would be enough to send any family’s life into a whirlwind. And lots of days that’s what it feels like; you are living in a whirlwind. Where life is spinning out of control and you’re fighting to hold the pieces together. Some days you may feel like you’re winning and other days like you are loosing the fight.

With my mental illness, I must say it’s still an everyday struggle but most days now, I feel it’s a struggle that I am winning. I guess it’s like someone who has diabetes, they still have it but they have it under control. And for me with my depression and anxiety, I feel on most days I have it under control.  But each day still requires a lot of self talk, keeping my thoughts from becoming distorted and unrealistic, trying to keep life as ‘normal’ as possible and live in the moment. Is this easy to do? No, not at all but if I am going to beat this living hell, then this is what I have to do on a daily bases, if I am going to survive; I can never let my guard down. And maybe with this new season of Spring may come new life, new hope and new beginnings for all of us.

Lauren has certainly had her share of pain, hurt and uncertainties. The cold winter months have found her spending most of it in bed, recovering from two major hip surgeries, that can only be described as horrific. No child should have to suffer what this child as endured and will still have to endure in the months to come. Her first hip surgery was performed in May 2018, the second was done September 2018. It’s now April 2019 and it’s only now that I can say that she is bouncing back from her ordeals. She as missed majority of her school year in kindergarten. We are now in the process of gradually introducing her back into the school setting, which as to be done slowly, cautiously and at her own pace, due to her high levels of anxiety. But she is doing fairly well and her school as been so accommodating during this transition period and for that we are so thankful.

Life for us as parents of a disabled child will never be the same again. And I don’t say that in a selfish way but in a realistic way. I know that the only parents that will truly understand what I mean; are parents that are privileged to have a disabled child. Lauren may be six years of age but right now we still have a six year old baby. We do the exact same things for her now as when she was a baby. Except now it’s harder because she as grown to be a big girl, who requires constant lifting. And the 24/7 care doesn’t end and doesn’t get any easier.

I believe that life for all of us at this season of Lauren’s life is a little tougher. Lauren is so aware, so intelligent and so full of questions; questions that we don’t always know how to answer. For instance, yesterday we were going outside and out of nowhere she asked, “Daddy why do I have to be in a wheelchair?” I’m sorry but I wish that no child would ever have to ask that question. She’s realizing now, more then ever, especially since she’s gone back to school; that not all kid’s are in wheelchairs. So she’s wondering and asking, why am I in a wheelchair? It was only recently she asked Lisa, “Mommy, when you were a little girl, were you in a wheelchair?” How can we live without having a broken heart? There will always be moments like these when our hearts are torn from our bodies. And just one more heart wrenching moment, when she asked me while we were just lying in her bed, “Daddy did you see me when I done a cartwheel?” And I lied and said, “Yes my angel and that was the best cartwheel I have ever seen in my life”.

Nature may have four distinct seasons; Fall, Winter, Spring and Summer. All of which will come and go at it’s own designated times. Much like the seasons of life. Right now I am at a different season in my mental health then I was last year at this time. And right now Lauren is at a different season of her cerebral palsy and we have discovered that those seasons are forever evolving and changing. We just have to learn to adjust to each individual season and to learn to find warmth in the coldness, sunshine in the rain, new life amidst the dying dreams. Healing and hope when the season as gone.