This Ugly Hell

Let me go for just five minutes, let the fetters that bind me be loosed. Let me feel that I’m okay, and not as fragile as what I feel. If I go outside my comfort zone, I  won’t fall apart. What’s it like to feel ‘normal’; I can’t remember.

The day wants me to just run and run; destination unknown. There is no where I can go to escape my tumultuous mind and find relief. Sleep helps but even in my sleep, my dreams haunt me with unforgettable terror. And in my subconscious mind I know I have to awake; awake to face the fears of another day.

The Goliaths of the day seem so defeating, I have no ammunition to fight back. I’ve been beaten down once too many times. My Goliath says, ‘stay down, don’t get up.’ But I can’t give up, there are those who depend on me, I have to keep fighting, to keep going. How many times do you have to be near defeat before you just give up and say, ‘I’ve had enough?’ The Goliaths of the day are not just my illness but in my family has an whole.

This battlefield in my mind, isn’t about my spirituality but my broken mind. A mind that is frightened to death, too afraid of living but even more fearful of dying. So I’m caught in the middle, in limbo, not really living life to it’s full potential but dying a slow torturous death. But wanting life, wanting purpose, wanting to feel human.

I remember those days when my mind and body were so sick, I just wanted to die. My brain was shut down and thus my body couldn’t function either. I was sick of trying medications that were of no benefit, giving me no reprieve, no hope. ECT (Electro Convulsive Therapy) had diminished what little brain function I had left.  When ECT failed, medications weren’t alleviating my symptoms, counselling and psychotherapy were not earth shattering but nothing that could really free my dying mind.

Life as never been the same and in all likelihood will never be the same again. We have experienced many life altering traumas. Every day of my journey of living with a mental illness, is a constant battle; a war that never ends. But learning to live with this broken mind is my only hope of surviving. I can put no dependence in the medical field to cure me (there is no cure) or even come close, nor do I expect someone else to take my pain.

Most days I feel I’m surviving because I have an hope in my Creator and there are days when I feel  nothing at all. But it’s those days that I hope in God that I feel I will survive this. I feel sad for people who are in my situation and suffer from a mental illness and have no hope at all. Where do they go? What do they do? Who do they turn to? I have hope because I have to believe there is a greater power then myself. And He will see me through,  even when I feel hopeless, when I feel helpless, when I feel all alone, when I feel defeated. I do have the hope that He is there with me and that keeps me going; one day at a time.

Many may say, ‘but you are a born again Christian. Why or how can you be feeling this way?’ It’s because when you become Christian you are not exempt from sickness. Jesus didn’t promise a life without trials and tribulations; what He did promise was to be with us through these storms and hardships. So I have to have faith that He is with me at all times, even when I am having a really bad day. Others may be thinking,’ but you have a beautiful family; a wife and two beautiful children. I do and I love them dearly but I also have an illness. For those who just don’t get it, that’s okay, maybe one day you will fall into the pit of depression and then you will know what I’m talking about, but I would not wish that for you; but none of us are exempt. It’s because I have a wonderful family that I  fight so hard to be well. If I had cancer, I would do the same. I would fight with everything I have in me to beat it. But sometimes we can fight and feel like we are loosing the battle.

Many days I  live in fear that I would have a relapse. But I try not to dwell on the ‘what if’s’ but live by faith, that the mercy and grace of God will see me through. Romans 8:37 ‘In all these things we are more then conquerors through Him that loved us’. So, I am a conqueror, I will fight, I will not give up! If you are reading this and you are suffering and in pain, let me encourage you today to put your trust and faith in the God who cannot fail.

Hope In An Hopeless Situation

                                                         The days turn into months, the months into years and yet here I am still searching for that escape to freedom. Freedom from my own mind. My brain still captured and in bondage of that thing I call Depression. Some weeks seem like freedom is in sight, then that darkness overshadows me again. Giving up would be so easy to do, but where would that get me? So everyday I fight for my life and maybe just one day my fight will end  and my miracle will come. I sat in my doctors office just this week, drowning in a pool of tears;’ I’m just exhausted and tired of fighting’. As he looked helplessly into my dying eyes. My eyes told a story that never could be written. But hope is what keeps me alive, what keeps me moving, what pushes me to never give up.

After 2-3 years of trying practically every type of antidepressant and anti-anxiety medication on the market, every cocktail of drugs, psychotherapy, mindfulness therapy, talk therapy, acupuncture, inpatient assessments, a two month outpatient program at St. Clares Hospital, ECT- Electro Convulsive Therapy and I’m sure the list can go on. It was FINALLY decided that I was treatment resistant; no form of therapy was working. Is there any wonder I could become discouraged and lose hope? But despite everything, I make  the best of every day and try to live above my illness and circumstances.

I still believe that somehow, I am going to overcome this horrible existence that this illness as brought upon me. Treatment resistant or not, I am going to beat this! ‘I will look to the hills from whence cometh my help, my help comes from the Lord who made the Heavens and the Earth’. Its in those moments when I feel I can’t go on, when I have nothing left to fight with; that I have no choices left but to turn to God. It’s those times I find  hope, strength, peace and courage to go on. Many times over the pass few years I had to say, ‘Jesus take the Wheel’ (a song by Carrie Underwood). I can’t do this anymore, Jesus you take my wheel!

Just this week, I was at a very desperate place, a very dark place. I decided to do a little research of my own and see if there was something I was missing; I came across an article (two really, one pertaining to the other) that looked really interesting and hopeful, it was called Trans Cranial Magnetic Stimulation. Then of course I realized it wasn’t available in NL….surprise! But I thought that maybe I would share it with you and make this treatment more aware. And maybe one day, it could become available here; now that’s faith. Check it out:

 

This article was published by The Mayo Clinic, describing the treatment:

Transcranial magnetic stimulation
Overview
Transcranial magnetic stimulation (TMS) is a noninvasive procedure that uses magnetic fields to stimulate nerve cells in the brain to improve symptoms of depression. TMS is typically used when other depression treatments haven’t been effective.
How it works
During a TMS session, an electromagnetic coil is placed against your scalp near your forehead. The electromagnet painlessly delivers a magnetic pulse that stimulates nerve cells in the region of your brain involved in mood control and depression. And it may activate regions of the brain that have decreased activity in people with depression.
Though the biology of why rTMS works isn’t completely understood, the stimulation appears to affect how this part of the brain is working, which in turn seems to ease depression symptoms and improve mood.
Treatment for depression involves delivering repetitive magnetic pulses, so it’s called repetitive TMS or rTMS.
Mayo Clinic’s approach
Why it’s done
Depression is a treatable condition, but for some people, standard treatments aren’t effective. Repetitive transcranial magnetic stimulation (rTMS) is typically used when standard treatments such as medications and talk therapy (psychotherapy) don’t work.
Risks
Repetitive transcranial magnetic stimulation (rTMS) is a noninvasive form of brain stimulation used for depression. Unlike vagus nerve stimulation or deep brain stimulation, rTMS does not require surgery or implantation of electrodes. And, unlike electroconvulsive therapy (ECT), rTMS doesn’t cause seizures or require sedation with anesthesia.

This article was published a few years ago but obviously nothing was ever done about it:

New depression therapy should be covered in N.L. say doctor, retired nurse
CBC News
December 11, 2015

Trudy Bradbury says her depression was successfully treated with drugs, but many others are not as lucky. (CBC)

A retired nurse from St. John’s and a doctor in Toronto are arguing that a new treatment for depression should be covered by the medical care plan in Newfoundland and Labrador.

“I would ask them to please have a look at this treatment because so many lives depend on it,” said Trudy Bradbury, who worked as a nurse for 34 years, and suffered from depression herself.

“I know how it feels. I experienced it 13 years ago,” said Bradbury.

“I was one of the lucky ones. I responded to medication and was able to return to work within a few weeks.”

She said about one-third of people with depression do not respond to drugs, and now she’s asking the provincial government to pay for a different kind of therapy.

Repetitive transcranial magnetic stimulation (RTMS) is a treatment that was approved by Health Canada in 2002, and is already covered in Quebec and Saskatchewan.

Re-setting the circuits

Dr. Jonathan Downar, a Toronto psychiatrist who specializes in brain stimulation, said RTMS is effective, with two out of every three patients showing complete or partial improvement.

“It’s a technology that was developed in the 1980s and 90s, where you can stimulate the brain without having to open anything up. So it uses a powerful focused magnetic field to directly activate the neurons of the brain,” he said.

The treatment works by stimulating neurons in the brain. (CBC)
​Downar, who offers RTMS at a private clinic in Toronto, says the treatment costs between $1,500 and $3,000, with patients needing 20 to 30 daily sessions.

“RTMS, it’s like exercise, it isn’t like surgery,” said Downar.

“So when you apply the stimulations, it’s like re-setting the circuits. It’s like when you re-set your watch, after a few months it will gradually creep back to the way it was again.”

Patients need occasional booster sessions, he said, but with proper treatment can stay well for a long time.

“My message to the Newfoundland government is please focus on the new technology that’s out there,” said Trudy Bradbury, who is motivated now by the depression of someone close to her.

She said the cost of running a treatment program in this province, and covering it under MCP is worth it, because patients will be able to go back to work, and lead productive lives.

It’s also an alternative to electroconvulsive (shock) therapy, which has side effects like the loss of short-term memory.

Cost vs benefit

Jonathan Downar said the cost of RTMS is coming down, with research on how to shorten treatments.

He also said it also provides access to care within weeks of being diagnosed with a mental illness.

Jonathan Downar is a Toronto doctor who says the long wait list for one-on-one psychotherapy means other treatments have to be offered. (CBC)
“We will never have enough psychotherapists do one-on-one therapy for patients,” he said.

“So we have to figure out a way to use our existing supply of physicians and other mental health workers to see larger numbers of people, while preserving quality treatment … to provide good psychiatric care for everybody who needs it, not just for the lucky ones who make it through the wait lists.”

Post-traumatic stress disorders and other conditions could also be treated with RTMS, said Downar.

“It’s being explored for addiction to tobacco and to alcohol and to other substances. And it’s also being used in some cases for OCD and eating disorders.”

Downar said the magnetic stimulation therapy should soon be approved for funding in Ontario. Alberta is also considering it, but in Atlantic Canada the only facility is at Dalhousie University.

Bradbury said she met with health officials in the Paul Davis government to make her pitch, but got no commitment.