Tag: Anxiety

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The Unseen Caregivers

I just finished watching a documentary called, ‘UNSEEN’. It was a documentary that was so eye opening, encouraging and was produced to show non caregivers an inside look at the lives of parents of a disabled child. It’s not about being selfish  or about complaining but it’s stating the reality of the unseen caregivers. When you have a baby you have dreams for that child, to walk, to talk, to see. Then off to kindergarten, junior high, play sports, make friends, high school graduation. Then off to College and maybe even get married and have kids of their own. It’s just one big ball of dreams.

But then you have this child with confounded disabilities! What Now? Then your big glass ball of dreams just shatters to the ground and explodes into a million pieces. You immediately fall into a state of unbelief and panic. This is not a path that the majority of parents have to walk on but yet there are thousands of us out there; they are just UNSEEN, sometimes by choice, sometimes its easier for the ‘perfect’ cookie cutter parents to just look the opposite way.

Then you wake up one day and realize – this world wasn’t created for your child and that’s the hardest to accept. But you do what you can to give your child the best life possible because you love them, you love them more then your own life. You want nothing less then the best for them, in this imperfect world that was only designed for the ‘perfect child’. You keep going, you have to keep going because your child needs you but you realize it’s a very lonely path.

Home is supposed to be a sanctuary, but it is sometimes far from that. At times it’s more like a war zone. Some days you find you are hanging on by a thread. The screaming, crying, pain, uncertainties, the worries go on and on, you can’t stop it. We thought that as Lauren would get older  things would get a little easier, but it doesn’t, and this can get very overwhelming. It eventually turns into a constant state of anxiety for the whole family. You are living on the edge, you don’t know what a day is going to bring forth. You are in a fight or flight mode. It affects every area of your lives, your family, your marriage. It feels like some days you are just existing.

Our lives as caregivers never ends and will probably never end. It’s not Lauren’s fault, it’s not our fault,  sacrificing your life for another person  for 24/7, 365 days a year; you love them but that doesn’t make it any easier. Parent caregiving never stops, you know you need a break, but how are you going to get it, it’s next to impossible. We need to decrease the stress in our lives but how do we do that? We need to find a balance but there is no balance in sight.

The system has failed us as parent caregivers, we require mental health resources (I’m not just referring to ourselves but all parent caregivers) , more continuous care and respite. There  is no burden of child, if you care about a disabled child, you have to care for the parent caregivers as well. Most caregivers are not fine and are not doing well and that’s a fact. The older we get the harder it gets. We can’t get sick ourselves, for who would become our child’s caregiver?  Our daughter needs us, no matter what and that’s so overwhelming.

Our glass ball fell and shattered into a million pieces, many years ago now. As life become easier? Not at all. We feel just has overwhelmed now as before., maybe more. We feel just as alone as we did on that dreadful day that Lauren got her diagnosis. But maybe one day some of the pieces of that broken glass ball can be put back together. Just maybe! And the UNSEEN caregivers can see a ray of light!

 

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Being Strong

Darkness falls around me like a shroud. It’s not the darkness I fear but the night. My dreams are haunted by the never ending trauma of my past. But yet I sleep to escape the torment of the day, a reprieve from reality. My nightmares devour my only since of peace. Maybe, just maybe, tonight will be different; peace and calm will flood my mind leaving no space for terror. How I long for peace of mind, the end to my battlefield, the never ending struggle to just survive. Depression and anxiety has stolen anything that resembles a ‘normal’ life. It is my deepest longing to just be okay, to just feel ‘normal’ for once, to love life.

Morning comes again bringing with it the light of a new day. But I know today will be a struggle, most days are, some worse then others. I know this all sounds horrible and who would want to read such depressing and hopeless accounts of a day in the life of a struggling mentally ill person. But it is what it is! Try living with it for day in and day out. Not much fun believe me. I guess when I say mentally ill, many people conjure up ideas of a ravenous lunatic, an out of control insane person. But depression/anxiety is probably the exact opposite. Depression for me can be compared to being in a constant state of grief, that never really goes away. And this so interferes with the function of life’s everyday tasks and stresses. Life as to move on but it’s like I’m always trying to play catch up, but I never really do.

I can’t remember how many times I’ve said I’m fine just because I didn’t want to burden others with just how I was really feeling. Ashamed to admit to the truth of how I really felt. So everyday I fight, fight to be okay. But I’m tired, tired of being strong when really I’m not strong at all. The ‘cover’ to my book may look great on the outside but on the inside it’s ripped and torn. So like the old saying goes, ‘Never judge a book by it’s cover’. Afraid that if I open the cover, the pages of my heart would fall out for all the world to see, and if they saw maybe they would judge me and consider it all weakness. When all along I know it can’t be weakness, I ‘know’ it’s not weakness but my mind tells me it is. And everyday I tell myself, over and over again, that it’s not what I feel but what I know. I cannot live my life by feelings but what I know to be the truth. And to live with this hellish disorder of the brain; I have to be strong in order to survive.

Tomorrow may be a ‘good’ day and by a good day I am not defining it by those who do not suffer from a mental illness, there’s no comparison. I live my life by hope, hoping that tomorrow will be a good day. If I lost my will to hope, I would have nothing left but an empty well of darkness. So I will press on, I will not quit the fight, even when overwhelming fatigue and exhaustion have left me lifeless; I will not give in. I will fight for my life. To those who are struggling and feel like you have no hope, take it from me, if I can do it, then so can you. I believe in you!

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Hey, check out my website, “Art by Harris” with this link: https://www.harrisartisticdesigns.com/

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Define Depression

Over the past few years I have written enough blogs on the subject of depression and anxiety to fill a book, and yet I still feel I haven’t adequately defined it. I guess the only real way to understand what depression is, is to experience it for yourself and you really don’t want to do that. It differs from one person to the other and ranges from mild to major symptoms. We really can’t compare my experience with mental illness to someone else’s.

I have used many analogies to try and define what it felt like to live with depression and anxiety on a daily basis. They all give you a better understanding of this illness. I wanted to share a post that popped up on my newsfeed today, it was quite interesting, so I thought I’d share it with you.

This is so true for someone who suffers from major depression. Your body is so exhausted and tired of fighting the raging thoughts in your head, that all your head wants is to die. The never ending torture makes life not worth living; well that’s what your distorted mind is telling you.

But there is hope and it’s not rocket science; you can take control of your thoughts to a certain degree, at least to a place where life doesn’t seem so unbearable as you thought. Thoughts are just that; thoughts. They cannot harm you unless you allow them to, you don’t always have to believe every thought that comes into your head. When you are fighting this mental illness, your mind is producing thoughts that are distorted and untrue; so don’t always believe your own mind. Your best defence is to realize which thoughts are distorted and which are not; not always easy to do but you can do it. It could save your life! Talk to yourself, tell yourself you are going to get through this, it will not last forever. Be gentle with yourself, do whatever it takes to get well and only you know what that is. Go for a short walk not a marathon, listen to some of your favourite music, take a nap if you need it and don’t feel guilty about doing so or just watch a funny tv show. Or just sing in the shower or bath. These are the little things and that’s where you have to start; baby steps.

With the holly, jolly season approaching it can throw us for a loop. Christmas can bring up so many different feelings and emotions; all not jolly and bright! I really have an hard time during Christmas, it’s expected of us to be an Hallmark fantasy movie; where all is merry and bright. But when you suffer from a mental illness, that is so far from how you are really feeling, maybe even quite the opposite. And with that comes much guilt, shame, anger toward yourself for not feeling the spirit of Christmas that is so expected of you. But if you are just not feeling it, that’s okay, just do what you can and that’s all is required.

I may never see the day when I am totally free of this hateful illness but there’s one thing I know and that is; I WILL NEVER LOSE HOPE! Hope is what gets me through the day, hope is what gets me out of bed, hope is what pushes me to enjoy life as best I can while fighting this horrible illness. And you can to, I believe in you , life is worth living; no matter what our broken mind is telling us.

 

 

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I’m Just Tired

I’ve stated before in previous blogs that writing is therapy, there is a sense of unloading your mind of your ugly thoughts. So if that’s the case, I better start writing because my mind is in a scary place. I want to run, run for my life but where would that bring me? At a dead end! I need to write not just for me but for those who don’t have a voice, those who are screaming in silence. I write to help others understand to some degree; the horrors of this disease and to emphasize that this is a disease, an illness. And that it’s a very dangerous one at that and should never be taken lightly.

Those who suffer from depression, anxiety, panic attacks and other mental illness know all too well the disabling and crippling effects of this illness. Mental illness has the power to destroy and kill lives. And that is why medical attention is a must to survive this illness. Medication and other therapies may not be a cure but they certainly aid in coping with a mental illness and give hope to an illness that seems hopeless. An illness that destroys your will to live. That would be the most important statement that I could write that would sum up this illness called depression. It’s so important I think I need to repeat it again, ‘An illness that destroys your will to live.’ I know because I have been there many times.

Now here I am in the middle of a second wave of covid-19; a province in lockdown, a province in panic, a province in uncertainty. And here I am fighting to get through each day, with a virus that is playing havoc on my mind. My mental illness doesn’t do well in the best of times but throw a pandemic into my already out of control world and it makes for some really rough days. Try has I must to carry on, to live a normal life as possible. And so many days I fail, I just can’t rise above this illness, some days it wins. Days when fatigue takes over, tired of fighting, days when you just don’t want to participate in life anymore. Just getting through the day is a gigantic accomplishment. No matter how hard you try to be positive, to be happy, to live; you cannot force what is not there. I came across this quote today and it really sums up the kind of day I was having. “When people ask, ‘are you okay?’ And you say, ‘I’m just tired’. Yeah. Tired of trying, tired of hoping, tired of coping, tired of existing, tired of breathing, tired of living. I’m just done.”

Yet deep down inside I know I’m not done. Tomorrow will be a better day. I will keep trying, I will keep hoping, I will keep coping, I will keep existing, I will keep breathing, I will keep living. I will not give up. I cannot give up. I will find a way. Although today my depression told me otherwise but I will not listen, I will turn a deaf ear and keep fighting. No matter how rough the day, no matter the burden that I bare, the weight that I carry, I will not give up. Please help me God!

The reality of this illness is there is no cure. I cannot change that  no more then a person with cancer can change their illness. But we fight to live the best life we can with what we have. And many times that just doesn’t seem like very much. Days when it takes all that is within us to just move, days when we just want to hide from the world; when we feel so inadequate, impatient and lost. Sometimes I know I’m too hard on myself, when really I should give myself a little credit. I am a survivor and so are you! 

 

 

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War of the Mind

It’s been months now since I have written a blog, July 25,2020 to be exact (www.harrislisa72.com). I just felt there was nothing else to say. Not sure if that meant I had written all I needed to write about mental illness or if my illness had built a roadblock in my mind. A wall that I could not break through, maybe more the latter.

I became a prisoner in my own mind. So many things that I found enjoyment in, things that were not just  hobbies for me but life saving therapy. I wanted so desperately to engage in again but I could not, although I yearned within me to be able. But I just could not. I felt myself spiralling down that dark hole of depression. But I knew I had to rescue myself from that crippling, disabling hole of  despair. But how? It felt that my thought process could not function to come up with a plan. I couldn’t write anymore, words could  not describe what I was  feeling. The one thing that brought me some healing therapy, I felt I couldn’t do anymore; blogging! And thus months went by and I didn’t blog my thoughts. I was frozen in time; speechless.

Everything seemed so overwhelming again. The things in reality that were so small to perform, now seemed like a mountain, a mountain I felt I just could not climb. Days went by and I fought to make each one matter. Some  days I did better then others. I was in survival mode. And survive I did, in spite of what my broken mind was telling me.

Many associate mental illness with weakness but I have learned over the years that people with a mental illness are some of the strongest people I know. I am strong (if I  weren’t, I would never survive this hellish disease of the mind) but I am tired. I’m tired of fighting just to be okay, something maybe that others know nothing about. But I know there are others out there that know and feel exactly what I’m saying.

We live in a world where we are expected to be happy and positive all the time. If we show our true self, our true feelings, then we are viewed as being different and strange. And of course this is where stigma, prejudice and discrimination comes in. But it’s perfectly okay to feel sad, angry, annoyed, frustrated, scared or anxious. Having these feelings doesn’t make you a ‘negative person’. It makes you human. So I guess I’m human after all because I have certainly dealt with all these feelings. Being depressed doesn’t mean you are negative, it means you are not okay, your ‘happy’ is just not there.

I won’t lie to you and tell you life is easy, it’s not. And when you have a mental illness, everything in life is intensified to the extreme. Just going to the grocery store requires so much mental energy, you have to push yourself out the door. Your mind is telling you; you can’t do this. But you know you have to because if you surrender to your thoughts then your illness will consume you. And you eventually would become ‘paralyzed’ and be forever controlled by your thoughts.

So let’s fight this battle together, we are not alone. You can do this, I can do this. Do I always win this war of the mind, of course not, I’m human. There are days when I have no choice but to give in. But there’s one thing I know, I will not give up! When those really rough days come, I remind myself that I can get through this; one second, one minute, one hour at a time. Remember to be kind to yourself, you are worth it and  so am I!

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A Little Nudge

Months, weeks, days have passed, like a feather in the wind; here one second, gone the next. It’s like I went in hiding and I guess in one way I did. I loss interest and motivation in everything, anything I did was forced. Mental illness raised it’s ugly head and held me in it’s grip and wouldn’t let me go.

I had a therapy plan, a plan that I created to help me through the days of depression and anxiety. It certainly wasn’t a cure but for the most part it worked or helped at least. With depression and anxiety, you don’t pick and choose what day or days you are not going to be well; it just happens! Some days are fairly good while others could be torturous. And then there are those times when you just shut down, as it were.

I painted for sanity sake but what brought me peace turned into turmoil. I couldn’t hold my brush and still can’t but I know I will again, when the time is right. But right now painting is just too overwhelming. Ironic isn’t it, what once brought me peace and enjoyment; now scares me to death. This is what I call; mental illness!

Another part of my homemade therapy plan was, I played two fictional characters; live on Facebook. I loved it, it was fun, I enjoyed making others laugh. And I believe it took all our minds off the dreaded pandemic of the corona virus, that had shut down our world. But then, just like a light went out, I couldn’t do it anymore. No matter how much I wanted to perform; I couldn’t. Depression destroys who you are and you have very little control over it. I fought everyday and still fighting to keep going. With this illness there is no rest for the weary; you are in a constant battle to have some form of normalcy. But some days I just don’t win; I trust.

And lastly, my therapy plan included writing my blog (www.harrislisa72.com). Today is the first time I’ve held my pen for weeks or maybe months. I had so much to say, so much hurt to release, so much discouragement to share but I could not! The pain I felt could not be written. But today I feel it’s time to write. There are so many that are hurting, in pain and feel alone. I just want to encourage you that you can get through whatever it is you are experiencing today.  Our pain and tribulations may be great but ‘God is Greater!’

Over the years of struggling with this illness, I’ve had many reasons to give up, to give in and just call it quits. But I have not, with God’s help. I’m reminded many days of Job’s wife in Job 2:9 when she said to Job after he had endured many afflictions, losses, tribulations. She said, ‘…curse God, and die.’ But Job’s reply was, no matter what he had to endure; he said, ‘Though He slay me, yet will I trust in Him.’ So no matter what we are experiencing, no matter how long we’ve been afflicted; we still have to trust in Him. He will bring us through.

I believe that God could have healed me a thousand times over but He didn’t choose to. He has another plan, something I cannot see, but that’s what having trust is; placing my life in His hands, knowing that He is in control. Because God as allowed me to go on in my illness for years, I have reason to be angry, to feel abandoned, forsaken and to question God. But I know that I cannot feel this way, it would serve no purpose and destroy the faith that I do have.  So no matter what happens I will still trust in Him and I will endure onto the end.

Then to add fuel to the fire the worldwide pandemic, the corona virus or covid-19, invaded the world. Now I knew I was in real trouble, anyone suffering from mental illness, any major change could bring on a relapse or intensify, your already existing symptoms. Then came the guidelines by the NL Government to contain and stop the spread of this deadly virus. Some of these guidelines were the complete opposite of what I needed to help keep my mental health under control. The guidelines that bothered me the most was, ‘stay home’ limiting contact with others to my immediate household bubble. I know all of the guidelines were for my good but for me it brought on panic, fear  and isolation. And then there was social distancing, I love touch, hugging and here I was being told to keep my distance of six feet. This was rough and is still rough today because this nightmare is not over, no matter how much we think it is.

I pray my blogs are, an encouragement and a little nudge to go on. I know there are so many days that going on is the last thing we feel like doing. No matter what your pain is, no matter what you are going through; you got this! As tough as it is, you can do it!

 

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The Silent Killer

I wouldn’t say that Winter is my most favourite time of the year. The freezing cold, slippery streets and sidewalks, back breaking shovelling of the snow and the claustrophobic confinement inside your home because of a monstrous snowstorm. None of which make for the ideal situation for someone suffering from chronic depression and anxiety. I would call Winter, ‘One big trigger for mental illness.’ And then there’s the relentless hours of darkness, where daylight savings time is at it’s cruelest.  We require, as human beings, a certain amount of daylight each day in order to produce enough vitimin D, which  in turn increases our mood and helps combat anxiety and depression; that’s not always possible this time of the year.

But I’ve been doing fairly well and by fairly well, I don’t mean cured. But it’s been managable for the most part, with a lot of daily work; it certainly doesn’t  happen naturally. But at least I can function, to a certain degree. This functioning level recently was misinterpreted falsely by someone’s ignorance and boldness. When she stated in an email that I was more then capable of working and that I shouldn’t burden my family, friends and Community with the financial responsibility of Lauren’s needs. Our hearts were broken and torn that someone could be so cruel and insensitive.

In reality I have no obligation to explain the status of my health to the general public. Nor do I need public clearance for when I go back to work. I think this would be my doctor’s area of expertise and the public should keep their opinions and comments to themselves. It’s really sad that I feel the need to even justify my illness. I guess that’s why it’s sometimes referred to as the ‘hidden/silent killer.’ It’s an illness that you don’t always see on the outside. And when I go in public I’ve mastered how to act ‘normal’ despite an abnormal illness. The public will never see my worst days; it’s those days I hide; I isolate. But in the end , it lends significantly to the public’s misconceptions about the severity of my illness because just maybe what they are seeing and what the reality of my illness is, are two different things.

I’m telling this because it’s easy to judge a person’s well being on what you see; and you certainly cannot diagnose the severity of my illness or the wellness of my being by what you see. But when you see me, you aren’t seeing all of me. I write this because I want people to understand that when someone looks okay on the outside, certainly doesn’t mean that eveything is fine on the inside. Sometimes we are so quick to judge someone else and to dictate what we think is right for that person. But if we don’t walk in their shoes, we have no right to judge that person. So if we can’t say something nice about someone, it’s best to say nothing at all. And for a lot of people that is near impossibe to do. I have to live with this illness, every fighting day of my life; as does so many others who are fighting this battle called mental illness.

I believe (I know) we have been the topic of conversation around many supper tables. I have never experienced such cruelty, gossip and backbiting in all my life.  And the topic of conversation being our fundraising efforts in order to give our six years old little girl, who has cerebral palsy, and who’s needs far outway the needs of a ‘normal’ child. We were told we were a burden to others and society. It’s attacks like this that make it near impossible for us to live a normal life. Life is hard enough as it is while trying to raise a child with a disability, 24/7 365days a year and no government funding. But then to have to deal with such cruelty, added stress and humilitation is beyond humane.

But we will move forward, with courage, strength and hope; despite adversity, hatred and insensitivety. We are so grateful for those in our lives who support us with their love, compassion and encouragement. It’s those people that help us each day to put one foot in front of the other, without them we could not survive. I am sorry that I have to write such a disturbing blog but I feel exposure is the best and only remedy.

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Defining Depression

How do you put on paper what your heart is yearning to say? Words are just that; words! But putting those words in a sentence that makes sense and expresses how you feel, well that’s not so easy to do. Words can only speak, but only the heart can truly feel what it is you truly want to express. I have tried so desperately to portray my thoughts and feelings in my Blog: www.harrislisa72.com entitled; ‘Life and Times of The Tuckers.’ With the caption attached; ‘Living with depression and anxiety. Raising a child with cerebral palsy. The ups and downs of life; the rain and the sunshine.’ I have written a total of 173 posts/blogs on this website and I feel I have only scratched the surface (written from January 2017-November 2019).

I won’t lie to you and tell you that life is wonderful and easy. When I’m having a very bad day, and I’m just referring here to my depression and anxiety, life is anything but wonderful and easy. Each moment of the day is a fight, a fight to just survive. Each day is a challenge, nothing comes easy anymore, not even the little things. I would just like to elaborate on some defining symptoms of this battlefield of the mind.

For me, when my pain is so intense, I feel like I don’t want to live anymore, that’s what depression can do to you, but yet I don’t want to die either. The constant pain and torment lessens your will to live. It would be so much easier to die and escape this living hell. But yet deep down, you really know that’s not what you really want. You just want to live, but really live without the constant struggle to survive. Life should be so much more then just surviving. I’ve often said to my doctor, ‘if this is living, then I am not living.’ Depression steals the joy, enthusiasm, your reason for living, your purpose; it steals ‘YOU’! And everyday you are constantly trying to find that ‘you’ that once you were. He’s in there somewhere but just can’t seem to escape the prison of the mind.

Depression can be defined as the overpowering need to isolate yourself from the rest of the world. There’s the inability to socialize, the wanting to just hide under a rock. That outgoing, social ‘icon’ that once I was is now turned into somewhat of a recluse. But that is the last thing I want, the last thing I need. When you suffer from depression you feel totally alone, you could be in a crowded room but feel like you are the only person there. Lonely is your constant companion. But we know we are created for companionship, we  crave affection and love. Living in isolation will only make our depression worse and that is why I need people around me, a form of support.

And then there’s the worse part of the day; the morning! A major defining symptom of depression is the fear of the day to come. How am I ever going to survive it? Constant fatigue and tiredness overwhelms my body and mind. I wonder how I can get out of bed, but then I say; ‘Okay God, it’s me and you, I can’t do this alone. So let’s do this! And the day begins. On the not so good days, I long for night to come. I know then, I have survived another day. Maybe sleep will provide an escape; a reprieve. And yet in spite of my depression and anxiety, I live my best life with what I have and try to make the best of everyday.

I can define/describe depression in so many other ways; living in a dark hole, loss of memory and concentration, having no desire to do the things you once loved to do. Depression has the power to redefine who you are (if you let it); It can consume your every thought and lessen you to a different person; to someone who as lost all confidence in oneself, convincing you that you are worthless and useless. No matter how hard I try, life becomes unbearable and overwhelming to a point where you don’t know how you can go on. But you know in reality, that is your illness talking; it distorts your thinking patterns.  The American Psychiatric Association defines major depressive disorder as ‘a common and serious MEDICAL illness that negatively affects how you feel, the way you think and how you act.’

We are presently experiencing the ‘Season to be Jolly.’ I love Christmas, a little too much sometimes; I don’t know when to stop decorating. I was warned to tone it down this year, but how do ‘I’ tone down Christmas? My idea of toning it down is someone else’s idea of being overdone, too funny! But that’s not what Christmas is all about, there’s more to it then just decorations. For a lot of people Christmas can be one of the most difficult times of the year. It’s that time of the year when we are expected to be happy, joyful and glad. But what if we suffer from depression and anxiety; Christmas can be an enormous trigger. It can trigger so many symptoms of depression; loneliness, sadness, hopelessness, fatigue, anxiousness; all for various reasons. I pray this Christmas that all who suffer from mental illness, will feel the peace that came to earth on that first Christmas morning. Isaiah 9:6 ‘For unto us a child is born, unto us a son is given; and the government shall be upon His shoulder; and His name shall be called Wonderful, Counseller, The Mighty God, The Everlasting Father, THE PRINCE OF PEACE.’

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“Battered n’ Worn”

I have recently completed a painting called, ‘Battered n’ Worn’ (view on my Facebook Page: ‘Harris’ Artistic Designs’). It depicts a scene of an old, weather beaten shed and an overturned ‘punt’ that had seen better days. And the boisterous sea just uncaringly raging in the background. While I was engrossed in the actual painting of the scene itself, I really didn’t give much thought to what I would name the painting or what the painting was actually trying to say to me; not until it was competed! And then I stepped back and viewed it from a distance, it really told the story of my life and how I was actually feeling right at that moment. I had painted my life and it was ‘Battered n’ Worn’.

I have fought this crippling, disabling sea of depression and anxiety for far too long and it was starting to show. That along with ALL of the other winds and weather, had left me battered and worn. I was and is feeling much like that deserted, weather beaten shed; ready to crumble if I had to withstand just one more storm. How much can one withstand before the storms of life just leave you battered and worn; before the shed can take no more and just eventually crumbles beneath the beatings of the storms of it’s life.

If the only battle I had to fight was for my mental health, then maybe I could withstand that. But when the storms of life, and they are many, come beating you down and the winds are taking you off your feet, the rain as saturated your skin, right to the bones. The cold, cold air as left you numb, the raging sea is pulling you down into it’s clutches and you are drowning, gasping, gasping, gasping for air.

But you cannot keep a good ma down, no matter what others may think or say about you; you forgive and move on. You get up and dust yourself off, and we have had to do this many a times, and keep moving on.

One such battle that we have fought and I believe now is the time to let the world know how Lauren was discriminated against by Skate Canada, Skate NL and the CBNSC. I will give them the benefit of the doubt that it may not have been intentional but as defined by Human Rights: ‘Intention to discriminate is not a requirement to a finding of discrimination’. The full story can be found on our website: www.harrislisa72.com called, ‘I Want To Skate Like ‘Bruddy”. But the story doesn’t end there. I filed a complaint with the Human Rights Commission and won the right to file a ‘formal complint’ against Skate Canada NL. This was no easy journey, filled with anxiety, fear and intimidation. You see, Skate Canada (on behalf of Skate NL and CBNSC) hired a lawyer to fight their battles (an intimidation tactic I’m sure, hoping we would back off, not a chance). I followed through with the Human Rights procedure in settling this injustice.

This is what we were offered to keep our mouths shut and not proceed any further. Sadly to say, we could not proceed any further because we did not have the money to obtain legal counsel of our own and I could not fight anymore. But this is what we were offered and I am quoting Skate Canada’s lawyer, ‘My client is prepared to pay the sum of $2000.00 in settlement of this matter. These funds would be paid in exchange for a release which acknowledges no admission of liability on the part of my client. A condition of the proposed settlement is a confidentiality agreement. This proposal would not see the provision of an apology on the part of my client’. Obviously we did not accept the ‘bribe’ and because we really could not pay for a lawyer, we had to withdraw the complaint.

Did we lose? Not at all. First of all we did pass the requirements and was awarded an ‘Official Complaint with the Human Rights Commission’. That was the first hurdle and we leaped that one, without any problem. We knew we had a legitimate complaint. And although we had no admission of guilt on either of the three clubs involved; we ourselves knew by their actions of hiring a lawyer and offering money for a confidentiality agreement, that we had won.

I write this because it is not Lauren’s Cerebral Palsy that we are fighting against but an everyday fight for her rights as an equal, inclusive and accepted little girl that needs to live a happy life, in spite of the injustices, the stigma, the unfairness and lack of compassion that is still prevalent in our so-called ‘Society’ today. And this is just one example of what we have to deal with on a day to day basis. And yet we have to stay strong because the challenges that come with Cerebral Palsy alone is enough to ‘break’ any man or woman!

So today as battered and worn has we may feel, we will fix up that old shed and polish ourselves off and lift our heads high and be proud parents, that want nothing more then for their children to have the best life possible; against all odds. And we will not give up the fight, we are going to brush ourselves off and start again. It’s not a choice, we have to do it, if we are going to survive the raging storms in our  lives!