harrisclyde@hotmail.com

April 14, 2019

The Seasons Come And Go

Winter as finally passed and Spring is so desperately trying to unfold. With Spring comes that feeling of new life, new beginnings, fresh hope and a warmth that inspires the soul. The cold, chilly winter season as reluctantly become another memory in time. Much as happened; good and bad. But yet we have survived another season; another season of life.

I can’t honestly say that the past several months hasn’t come without it’s tough times. It’s been rough on all of us, to say our life is simple, would be an understatement. Living with mental illness and cerebral palsy would be enough to send any family’s life into a whirlwind. And lots of days that’s what it feels like; you are living in a whirlwind. Where life is spinning out of control and you’re fighting to hold the pieces together. Some days you may feel like you’re winning and other days like you are loosing the fight.

With my mental illness, I must say it’s still an everyday struggle but most days now, I feel it’s a struggle that I am winning. I guess it’s like someone who has diabetes, they still have it but they have it under control. And for me with my depression and anxiety, I feel on most days I have it under control. But each day still requires a lot of self talk, keeping my thoughts from becoming distorted and unrealistic, trying to keep life as ‘normal’ as possible and live in the moment. Is this easy to do? No, not at all but if I am going to beat this living hell, then this is what I have to do on a daily bases, if I am going to survive; I can never let my guard down. And maybe with this new season of Spring may come new life, new hope and new beginnings for all of us.

Lauren has certainly had her share of pain, hurt and uncertainties. The cold winter months have found her spending most of it in bed, recovering from two major hip surgeries, that can only be described as horrific. No child should have to suffer what this child as endured and will still have to endure in the months to come. Her first hip surgery was performed in May 2018, the second was done September 2018. It’s now April 2019 and it’s only now that I can say that she is bouncing back from her ordeals. She as missed majority of her school year in kindergarten. We are now in the process of gradually introducing her back into the school setting, which as to be done slowly, cautiously and at her own pace, due to her high levels of anxiety. But she is doing fairly well and her school as been so accommodating during this transition period and for that we are so thankful.

Life for us as parents of a disabled child will never be the same again. And I don’t say that in a selfish way but in a realistic way. I know that the only parents that will truly understand what I mean; are parents that are privileged to have a disabled child. Lauren may be six years of age but right now we still have a six year old baby. We do the exact same things for her now as when she was a baby. Except now it’s harder because she as grown to be a big girl, who requires constant lifting. And the 24/7 care doesn’t end and doesn’t get any easier.

I believe that life for all of us at this season of Lauren’s life is a little tougher. Lauren is so aware, so intelligent and so full of questions; questions that we don’t always know how to answer. For instance, yesterday we were going outside and out of nowhere she asked, “Daddy why do I have to be in a wheelchair?” I’m sorry but I wish that no child would ever have to ask that question. She’s realizing now, more then ever, especially since she’s gone back to school; that not all kid’s are in wheelchairs. So she’s wondering and asking, why am I in a wheelchair? It was only recently she asked Lisa, “Mommy, when you were a little girl, were you in a wheelchair?” How can we live without having a broken heart? There will always be moments like these when our hearts are torn from our bodies. And just one more heart wrenching moment, when she asked me while we were just lying in her bed, “Daddy did you see me when I done a cartwheel?” And I lied and said, “Yes my angel and that was the best cartwheel I have ever seen in my life”.

Nature may have four distinct seasons; Fall, Winter, Spring and Summer. All of which will come and go at it’s own designated times. Much like the seasons of life. Right now I am at a different season in my mental health then I was last year at this time. And right now Lauren is at a different season of her cerebral palsy and we have discovered that those seasons are forever evolving and changing. We just have to learn to adjust to each individual season and to learn to find warmth in the coldness, sunshine in the rain, new life amidst the dying dreams. Healing and hope when the season as gone.

April 2, 2019

Triggers

My pen sets silently in my hands. It doesn’t want to move, much like my whole body. Depression as washed over me like an ocean wave. The last few months have been a very disturbing time for me, there has been many triggers that have aggravated my illness. Triggers are unpleasant and disturbing experiences that occur in your life that bring on an episode of intense depression and anxiety (in my case). And when this happens, you have to fight for your life again.

Right now this episode as left me with so many unwanted, irritable symptoms. I find it very difficult to socialize, I isolate as much as possible; my interaction with others are forced. I know I can’t isolate, it just isn’t good for my mental health, but yet it’s all I want to do. I just don’t have the drive, the energy or enthusiasm that is required to be in public. My triggers have knocked me down big time, but I know I have to get up, but how do you get up when you feel you have so little strength left; fatigue is a big problem. You barely have enough strength to crawl.

I have learned over the years what I have to do to survive but when intense depression strikes, your survival guide seems so unattainable. You push and push and push until you feel you can push no more. But push I must, or if not I will be in deeper trouble; and I am not going there again. To that dark tunnel that has no light at the end.

When you are feeling this way, you search for that something that can bring you that glimmer of hope. But when you are enduring such intense depression; your thoughts are so distorted that you cannot see the light, the smallest task seems so impossible to do. It’s at this point you have to give it all you got and find some good, somewhere. It’s there, just so much harder to see when you are in a cloud of fog.

Some things that I’m using to bring me through this valley of despair at the moment are; looking forward to Logan coming home from school, hearing Lauren saying ‘Good morning Daddy’. It’s in the little things lots of times, the smell of supper cooking, the sun shining, looking outside and realizing that spring is here. All does my heart good.

It’s great that I do enjoy various hobbies and when I’m not feeling well I try to distract myself by engaging in them. Right now I started painting again, it’s great therapy and certainly a great distraction. Painting is a great way to express your feelings and emotions. For example, I can paint pictures that portray calmness, peacefulness, beauty and solitude. All of which help to reflect positive thoughts. I also love playing the part of ‘Walter on da line’, but that is very difficult to do when you are not feeling well. When I do feel well enough, I find it is such great therapy and laughter is great medicine.

Writing about mental illness certainly brings no glory to myself. In reality, I really would like to hide under a rock and never come out, so the world would never see my illness. But I believe in order to help others that are suffering with mental illness, we have to talk about it. And in doing so, we help others realize they are not alone, we educate each other, and we help break down the walls of stigma that still exist today.

March 29, 2019

Living Through Trauma

When I sit in my ‘man cave’ (our office) I feel like I’m in my safe place and I can close the door and leave the world outside. But that’s not really true, I believe it creeps in under the door and through the cracks. But it’s in my ‘man cave’ that I find refuge, strength and distraction; my greatest source of therapy. For it’s here I can read, write my blogs, paint and just mediate or pray. Oh yah, I forgot, and I become ‘Walter on da line’. All of these various activities have helped so much in helping me escape the darkness or that feeling of knowing that something is just not right. That nagging, gut wrenching feeling of uneasiness. Words really cannot describe how it really feels.

As I sit here in the early hours of the morning, there’s a deafening silence. I’m not comfortable with silence, it scares me, afraid of what thoughts I might hear. So I grab my pencil and start writing, I’ve needed to write but didn’t know what to say or where to start. You would think I have said everything I needed to say by now. But everyday brings new challenges, something new that triggers my brain to want to write about. Mental illness certainly has given me lots to share and the topics are endless.

Today I want to talk about trauma and how it affects your life, how we deal with it and how someone with a mental illness, especially depression and anxiety, can cope with it and survive. Trauma is defined as a deeply distressing or disturbing experience. Over my lifetime I have encountered many traumatizing experiences, all of which triggered my depression and anxiety disorder. So dealing with trauma in your life, while at the same time living with a mental illness, hits you with a double whammy. You are fighting two battles at the same time, which makes it even more distressing.

I’m going to be honest with you, there really aren’t any concrete answers. There’s no one thing that I can say to you that will make the pain go away, except time and that just deadens it for a while. There’s a lot of truth to the phrase, ‘time heals all wounds’. But I always say, ‘they leave such ugly scars’. Especially when it comes to trauma; we have to take just one day at a time and with each day there will come some healing.

I am not a trained professional, nor do I claim to be; but I have lived and survived through many traumatic experiences in my life.

I believe the first step is to talk to someone; whether that being a professional therapist, councillor, trusted friend or partner. Knowing that you are not alone and you have support is certainly your first step on your journey to healing.

We also have to accept that bad things happen to good people. It’s a part of life that we all will have to deal with at some time or another. I compare my life to a boat on the ocean. There are some days when we have a beautiful calm but then there are other days when we are in the midst of the raging seas. But we have to remember, storms don’t last forever; we just need to ride out the storm and eventually (sometimes longer then others) the storm will cease and the calm will come again.

If our trauma was caused by someone else; we have to forgive, we must ‘love your enemy’. Now that doesn’t happen overnight. Ecclesiastes says, ‘there’s a time to love and a time to hate’. Right now we may be at the hating stage, but with time we can learn to love again and let go of the anger. Holding on to anger and hate only hurts ourselves, so there are and were many times when I had to let it go and free myself and learn to forgive.

We also need to recognize our strength. Life may at times knock us down but we have to get up again. I believe experiencing painful events and trauma in our lives makes us more resilient. When we see that we have already survived, we know we can make it through again. We just have to keep getting up, never stay down.

Experiencing trauma in our lives can also give us greater compassion for other trauma survivors. We can relate on a new level because we ‘get it’. And relating to others can further provide a source of strength. It certainly gives us a sense of purpose in life when we know we are helping others and bringing some good into an already hurting world.

So if and when we do experience trauma in our lives, we can work through it and with time, will find healing and the hurt won’t hurt so bad. I hope I have encouraged you today and have given you some food for thought. We are stronger then we think, even in the roughest seas.

March 9, 2019

Let’s Talk Suicide

I just finished reading another heart wrenching story written by a Mom about her daughter who had died by suicide. Her Mom goes on to say (speaking of her daughter) that in March 2017 she lost her battle with depression and died from suicide.

The stigma that society as placed on suicide is ridiculous. So much so that it steals from the grieving family the opportunity to grieve without prejudice, guilt or shame. And the deceased is looked upon in an undignified, judgemental and condescending manner. It’s sad, that even today we still use language like ‘committed suicide’ or ‘taking your own life’, as if it is an intentional, deliberate and rational process. If someone loses a 10 years battle with cancer, we talk about their bravery, their strength and how they were an inspiration to all around them. And they were certainly all of those things, I am not denying that. But people (myself included) with depression are fighting a constant battle as well. Some people lose their battle with depression and other mental illness through suicide. But the way in which Society views this person is the complete opposite of the way they would view someone with cancer or some other physical disease. They are looked upon as selfish, weak and highly stigmatized. It’s time for this ignorant way of thinking to end!

Someone suffering from a mental illness should be treated with the same dignity, pride, love, compassion and remembered as brave fighters, regardless of the circumstances of their death. Maybe you have not been introduced to the ‘death of shame’, but maybe if it hit close to home, to someone you loved, you would soon start to see suicide in a new light. I hope you never have to experience such an horrific death but there are no exemptions. So the next time you are quick to pass judgement, may you think before you speak. Someone who has fought a mental illness for too long and within their broken mind the only way they see to ‘fix it’ is through suicide. Relieving themselves and their families of this horrible burden of sorrow, shame and ugliness.

This blog is not based on my spiritual beliefs and I wish not to get into a religious debate. But is based on the right to die and be treated with dignity, no matter the cause. We were always taught to respect the dead. It’s about being treated humanely with no disrespect for anyone involved. But may we leave the ‘God Stuff”, up to God, it’s certainly not our place to judge; God has the last word! But may it be our responsibility to, love, to be compassionate and a shoulder to cry on. I want to be that person that is there for the hurting, the misjudged and for those suffering from a loss of a loved one by suicide. Or if you are that person that is contemplating suicide or just wishing you could die to end this unbearable pain, then I’m here for you too. I have been and still have those days just like that, so you are not alone; I’ve been there too.

I know I have nothing to be ashamed of because I have a mental illness. Yes, my brain is broken and tells me I’m a loser, I’m weak, I’m a good for nothing, etc. No different then if I was suffering from anorexia and my brain was telling me; I’m fat and ugly. None of which are true but when you have a ‘sick’ brain you cannot always control the way you think.

And that is why more needs to be done to find more effective ways to treat the brain and then suicide wouldn’t need to be an option and hopelessness would be turned to hope and hope to life. But right now I believe our Mental Health System is failing us, one suicide at a time; at an alarming and frightening rate. Someone open your eyes! We are in the midst of a suicidal epidemic and very little is done. ‘Let’s Talk’ is great but ‘Let’s Do’!

March 6, 2019

A Life Of Fighting

‘Desperate times cause for desperate measures’, that’s what the quote says anyway. Here I am at Robin’s, sitting alone, sipping a coffee and writing; like I was getting paid for it. I’m expecting the roof to blow off the building any minute, the wind is blowing so hard. I’m here trying to put my thoughts together but nothing seems to work. If I’m getting paid per word for what I’m writing, then my pay won’t be much today.

I’ve just experienced two horrible weeks of depression and nothing I do helps. When you are feeling depressed; ‘to do’ are the last two words in your vocabulary. You really feel totally disabled, not that you don’t want ‘to do’ something, you can’t do it. It’s like your body goes in shut down mode and you find it next to impossible to function. Nothing brings you joy, you feel numb but mostly you feel angry and guilty because you feel this way. I know it’s not my fault, this illness has captured my mind and as held me prisoner for most of my life.

Major depression is not a once in a lifetime occurrence or at least it hasn’t been for me. I guess I can compare it to a roller coaster, with many ups and downs; with the downs a lot lower then the highs of the ups. The scariest part of the ride is, you have no choice in when your ride will end and you can get off. Yes, you will experience times when your depression goes into remission as it were. You know it’s still there, but you can live life with a little more ease. Those are the times when you have to enjoy life to it’s fullest because you don’t know how long this reprieve will last. And then that disabling, crippling, ugly beast of depression returns in all it’s fury; that’s where I’ve been for the past few weeks. I call it a veil of sadness.

What happens to me during this period of time? I change! I find it difficult to laugh, but yet normally, I love to laugh. I love to make other people laugh; so much so that I started a YouTube channel called, ‘Walter on da line’ and it’s all about laughing. But when I’m in this pit of despair I cannot even play the part but yet I miss it so much. I’m hoping this cloud will soon lift and I can get back to playing my character, ‘Walter’, once again. Then, I didn’t go to church on Sunday, and I rarely miss. But I just could not go, I couldn’t be around large crowds, just too overwhelming. The darkness was starting to close in, the dark night of depression was creeping in. When this happens I find it really hard to see the sunshine, even when the sun is shining. I love bright sunny days but when depression strikes, the darkness hides the sunshine. I want to just run and hide. I ignore the phone, not that I don’t want to talk to the other person but I just can’t. I just want to sleep and isolate; but I know if I do, depression will take over. So now I am becoming very frightened, scared and panic is setting in, I’m terrified that I’m relapsing, that I’m returning to that place I call hell. I can’t go there again, ever! I know now I have to see my doctor. I make my appointment.

The night before my doctor’s appointment, I sat down and tried to the best of my ability, to write what I thought he needed to hear, in order to help me.

Once inside his office, I sat and pulled out my letter of ‘confession’ and nervously let him hear what I was feeling. ‘My doctor appointment note’:

‘Lying in my restless bed last night, I turned over at least a thousand times. My appointment with my doctor this morning was enough to give anyone nightmares. I felt my life was on the line but how would I make him see that. And if he did, what good would it do, if any? Had my diagnosis been written in stone and this was my lot in life? Six months had gone by since my last appointment and here I was again, waiting impatiently in the waiting room.

What as happened in those six months that he would need to know and that I would need to tell him, in order for him to understand where I am today, in my somewhat mental health. I guess those pass six months have proven, I’m not suicidal because if I were, I would not be sitting in this chair today and he would have lost one of his many patients.

But how have I improved or declined since my last visit? Mental health isn’t as black or white as other physical illnesses and therefore much harder to explain and pinpoint. For me each day and everyday is a fight and a struggle to survive this war within. Some days very intense, others maybe not so intense, but a struggle none the less. It’s a fight to function, to move, to feel happiness, to perform. Some days I do fairly well, others not so well.

The last few weeks I have found myself spiraling downward into a deep hole of despair. Wanting to sleep more, to escape the pain. Longing just to feel okay. Not being afraid to face the day, just to know I can do this. But lots of my days I loose my fight, I run out of ammunition, there’s nothing left to fight with. I’m exhausted, tired, frustrated and lots of times hopelessness creeps in and tries to steal that little bit of ‘being’ that I have left. But I won’t let go, I hold on tight.

My pain becomes real through my tears. I have moments when I have to let them escape and let some of the pain go. Sometimes I think I feel healing in my tears. Some people may call that weakness but I call that strength. Keeping it all inside is weakness; not wanting or knowing what to do with the pain. Finding ways to cope, to heal, to be okay; is strength! On most days, that’s how I have functioned.

But the scary days come when you feel you are loosing control, when you are loosing your battle and you have no strength to fight back. That’s the scary days and that’s where I am today.’

I believe he heard me, he was listening. But I also believe that he knows that this is really what my life is, was and always will be. I will have good days and bad days, but I have to accept that that’s the way this illness works, much like any other illness, you have it and you just have to learn to live with it. Right now I feel really low but I have to believe that I will bounce back again. That the light will shine again, that the spark will come back into my eyes, my energy and drive will increase and life will be restored to my being.

I know what I have written is very personal and some would call private. But if I am going to be honest and expose this horrible disease for what it is, then I have to tell it like it is and hide nothing. Good days and bad days. If I have to sacrifice my own privacy to help others to see and feel this misunderstood, stigmatized and cruel disease, then I will do so.

February 26, 2019

The “ME” Today

I can’t believe seven years have flown by since my last mental breakdown. Yet here I am still needing to write, still needing that escape, still needing my therapy. Still so far from the high functioning person that I once was. Major depression and anxiety as sure changed who I am. Let’s look into what some of those changes are and explore the ‘me’ I am today. But first let me remind those who are reading this and you are suffering or have suffered from mental illness (in my case, major depression and anxiety) that you cannot compare your illness with mine. Every person is different, each illness is different, your symptoms could be different then mine. Your journey with mental illness may not even compare to mine; the severity of your depression may not even compare. Each individual is different, recovery time may vary and to what extent. You may be able to function at an higher level then what I can. You may not be treatment resistant as I am. So what I’m saying is, don’t be afraid or discouraged that you won’t get well again; when comparing yourself to me. Everyone is different and so is the healing and recovery process. I use these words cautiously because for majority of mental illnesses there is no cure but we can maintain our symptoms and return to a functioning level again.

I believe mental illness is caused by many different factors. For me, genetics plays a big role, it is my belief that when I was in my mother’s womb, I was predisposed to have a mental illness. I was born this way, it was inherited from my family bloodline. Therefore this is why I cannot remember when I didn’t have to fight this disabling disorder; it’s plagued me all my life. I can say though that I did have many years through my life that medication and drive allowed me to live an high functioning life. So I may have had a mental illness but it did not always have me.

But today, sadly to say, I am still struggling, I didn’t bounce back in the way I thought I would; this breakdown has rendered me disabled and functioning at a much lower level then I had hoped for. One of the many changes in me, is that I can no longer work, leaving me feeling like I am not contributing to society or a provider for my family and as taken my sense of pride away, my sense of accomplishment. But I will have to adjust and refocus my thoughts on other positive energies in my life. All is not lost!

Another change that I’m experiencing is; I find it very difficult to find pleasure in the things I once loved to do. I am not self diagnosing myself but the medical field would call this anhedonia; the inability to feel pleasure. I have certainly improved in this area but when I still experience days of deep depression, I find it very hard to feel pleasure or excitement. But as part of my therapy I try to introduce myself back into some of the things that once brought me pleasure. Such things as; art (especially painting), singing, reading, design, gardening and most of all, writing, an hidden gift I didn’t realize I possessed. And just recently I started a YouTube channel called, ‘Walter on da line’. This is where I play a character named, Walter. With his very ‘strong’ Newfoundland dialect, Walter talks about issues of today and reminisces about years gone by. This also proved to be a very therapeutic and distraction for my mind, from everyday stress. All of which add to good mental health.

A loss of concentration and train of thought are also a change within me that I still struggle with up to this present day. I cannot trust to my mind to remember things anymore; anything that requires memory, I have to write on paper. When it comes to my train of thought, I could be in the middle of a conversation and have to stop because I loss my train of thought; this happens much too often. I am not sure why this still happens, maybe it’s my medication, prolonged effects of ECT or a lingering symptom of my depression and anxiety. But whatever the cause; memory and train of thought loss can be very frightening and scary and yes, sometimes embarrassing.

Sometimes I feel I’ve missed out on a lot of my life. When your mind is overcrowded, fogged and distorted, it’s hard to concentrate and to give your undivided attention to the people and things that matter the most in your life. I find it hard to focus on living in the moment, when your mind is rushing about in a million different directions. But I have to tame this lion within and awaken the ‘me’ that lies deep down inside.

What I miss the most is just waking in the morning and knowing within myself that I could take on or face anything that the day may bring. But I have changed ‘big time’ in this area of my life. I awake now feeling if I will even survive the day or how I am even going to face the day. Each day seems so big and overwhelming but I do survive and I do keep going. I feel I can’t run on empty forever, there as to be a strength other then my own that will keep me going. And to that hope I will trust.

Writing these thoughts and sharing them on paper for all to see, makes me feel so transparent, exposed and vulnerable. But how else will you understand and know the truth about depression, unless someone is willing to tell you exactly how it feels and through understanding the walls of stigma will come down. And by doing so, just maybe I have opened the eyes of your heart to see mental illness for the disabling, cruel, hellish illness that it really is.

February 19, 2019

My Greatest Fear

Just to show you how unpredictable that Major Depression can be; it was only last week I wrote a blog that would ‘almost’ give you the impression that my depression and anxiety was pretty much under control. But the last few days the haunting, ugliness of this illness have overpowered my will to survive.

I have experienced a constant feeling of ‘grief’ as it were. Not wanting to talk to anyone, and that had nothing to do with them, but all to do with me; I didn’t want to talk, afraid I would express how I was truly feeling. Therefore I would rather not talk at all, so I didn’t. I isolated and slept every chance I could get, to escape the uncontrollable symptoms that were starting to flood my mind with fear. Fear that I was sinking, fear that I was loosing control of myself, fear of just wanting this constant torment to end.

So tired of this ever recurring nightmare called depression. When will this ever end? Ever? The little task that come so natural and easy for everyone else to do, are so difficult for me. Just making my bed requires self-talk, unloading the dishwasher; so simple but yet so hard. And yet here I am struggling with the littlest tasks but yet facing the greatest challenges of my life. Challenges that I won’t get into but are not just the everyday challenges that everyone has to face on a day to day bases. Much bigger then that and those I try to entrust to my Heavenly Father, who is much bigger and stronger then anything I could do. And live in hope that He’s going to take care of things for me, when I can’t do it myself.

I think when I start having ‘not so good’ days, I become a little anxious or fearful that I’m going to relapse or spiral into a not so nice place; an ugly place where I don’t want to visit anymore. I read a book recently, that was written by an American author, who suffers from bipolar disorder but was doing well with various treatments and medication. And she felt that if she did relapse, she wasn’t overly fearful because there was ‘so much help out there’. Ironic, because my greatest fear of a relapse is knowing the lack of help that is out there. I have used every form of therapy and medication that is available in NL. My trust and faith in ‘OUR’ Mental Health Care System in NL is at a minimal. I cannot say, ‘there is so much help out there’, because I honestly don’t feel that way.

There are new treatments and medications that are available out of Province but are not available here in NL. If these were available to me, I would most certainly participate in availing of these. One promising medication for depression is ketamine. Increasingly, this dissociative anethetic is being examined as a potential treatment in depression cases where other drugs have failed. Sounds hopeful and promising to me, especially since I was diagnosed as treatment resistant. Researchers have called it the most exciting breakthrough in the field of depression research in the past half-century. Some other non-medication therapies (I won’t elaborate on each one but they are treatments that are available outside the Province) transcranial direct current stimulation, repetitive transcranial magnetic stimulation, vagus nerve stimulation and deep brain stimulation. But none of these are available to me. And when you feel so hopeless and exhausted from fighting; you would try anything to make the pain go away. Any improvement would be better then none at all. If I lived in an area where these treatments were offered, I’m sure I would avail of them. At least they would give you some hope, some relief because living in NL, I cannot say like the American author that ‘there is so much help out there’. If it’s here, I can’t find it!

So where does that leave me? I have to work with what I have, with what’s available and hope for the best. The best being that I will never relapse to the acute stage of my illness ever again. But there are some days that are so bad, I fear that I could be headed that way. And the best I can do is hope and pray that God will look down on me and in His mercy and grace, He won’t let that happen again. So basically, I pray, trust His promises and fight with all I have, to not let it happen. Sometimes I wonder, do I have to wait until this life is over to escape my pain and suffering. I hope not. I was reminded of this verse in Revelations 21:4 “And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, no crying, neither shall there be any more pain; for the former things are passed away”.

February 15, 2019

His Love Has No Limit

I believe it’s when I’m in the most pain, that God uses me the most. My pain triggers my brain to unleash what’s imprisoned in my mind. Some thoughts are impossible to describe by my pen, they have to be lived and felt in order to fully comprehend the pain they bring to one’s life. I am not referring here to the feeling of down-in-the-dumps kind of pain.

When major/clinical depression hits, and it can hit at any moment, without warning; one’s ‘self’ can disappear into the depression, you loose who you really are. Your personality is dissolved with your tears, your soul is destroyed by it’s flames, your being is no more. You exist, nothing more then a robot, you go through the motions. But you search and long for that ‘you’, the one that you once knew. The one that you felt love towards, now you hate what you have become. Not that I have become a monster but quite the opposite. There are times when it seems as though someone came into my space and turned the lights off; I was in complete darkness. That was the acute stage of this illness.

Today I still have this illness and struggle with it everyday. Not unlike someone with any other incurable illness have to struggle with theirs on a day to day bases. I still have days when I find it hard to even do the small tasks that need to be done, but I do them. I now know my limits and only do what I can with what I have. There are still days when sadness overflows me like a flood. And days when my strength and drive is at it’s lowest.

But having said all of that, I believe, and no I’m not getting all religious on you and no it’s not my illness or my medication talking, I am totally of a sound and sane mind. But I am going to tell you that the only way I have survived this illness thus far is through the constant presence of my Heavenly Father. On days when I am not doing so well, I hold onto His hand a little tighter. And when I was at the acute stage of my illness, when I could not hold on; then it was those days that He literally carried me. There is no other explanation. Nothing! The medical field can only do so much and then no more.

But then the Great Physician steps in. And that’s why I’m still here today, to tell you there is hope in Jesus. He is not my last resort but my only hope! And He can be yours too. No matter what you are struggling with today, no matter what your addiction is, no matter your illness, no matter your pain. It doesn’t matter how hopeless you feel, how far down you may be. Jesus can and will raise you up again! There is only one answer, when you feel you have exhausted all resources, He is ‘still’ there.

I want to leave with you a portion of a song that sums up this blog and reinforces what I’m trying to say:

His love has no limit, His grace has no measure, His pow’r has no boundary known onto men; For out of His infinite riches in Jesus, He giveth, and giveth, and giveth again. When we have exhausted our store of endurance, When our strength has failed ere the day is half done; When we reach the end of our hoarded resources, Our Father’s full giving is only begun.

I pray today that this blog as reached the ears of the hurting, to the heart that is broken, to the soul that is helpless; may you find peace and healing in the one that loves you unconditionally. He loves you just as you are, no matter what. And if He’s not your Saviour today, it’s not too late. He loves you just as you are; broken, tired, hopeless and lost. Ephesians 2:8 “For by grace are you saved through faith, and that not of yourselves; it is the gift of God”.

February 9, 2019February 10, 2019

Living In An Unjust World

When Lauren was diagnosed with Cerebral Palsy at the age of one; I knew we were in for the challenge of our lives. What I didn’t know was what those challenges would entail. We have had many obstacles, uncertainties, and battles that no human should have to fight. We have been bombarded by policy, protocol and ‘the Systems'( there are more then one).

If there ever was a day when I felt I failed my little girl, it was today. If there ever was a day I felt that the ‘systems’ failed her, then that would be every day. It’s been one disappointment after another, but why does it have to be that way? You would think a child with a disability would come first, no matter what; if it meant it was going to improve the quality of life for that child. But that’s not the way our society/world works. Agenda, policy and protocol supersedes the rights and privileges of even a little child. When you are faced with the real world, with a child who has a disability, you soon learn and experience things you would never believe otherwise.

I could share with you many injustices, discriminations, unfairness, inequalities, exclusions and the list could go on. I could name names of people from the school system, the School Board, the Dept. of Education itself, owners of public buildings, including Government buildings, all levels of Government from MHA’s-MP’s, Skate Canada; to name a few. But for our own sakes and the protection of our children, I won’t go there (right now anyway).

I have learned that we live in such a corrupt world, that human life is nothing more than a name or number on a piece of paper. We have fought many battles, that no parent should ever have to fight when they are already fighting against the biggest battle of their lives already, by raising a child with no supports, with so many needs. But I have found that some battles are never meant to be won. And at this point because I have failed to win some of those battles, I feel I have failed.

Just to give you an example, here is an excerpt of an email that I sent to the Human Rights Commission (kind of ironic in a way that I felt I was fighting the Human Rights Commission for human rights!). “So it is with great regret that we wish to withdraw our complaint: not that I don’t believe we don’t have a solid and valid case but we just don’t have the money to pay for a lawyer to represent Lauren. We live in a very unjust Society, when a five year old, disabled child is denied legal counsel because we are not rich. I believe I have failed my little girl but I will not take all the blame, I also feel The Human Rights Commission as failed her because they have failed to provide her with the rights she so deserves as a human being, the Legal System as failed her and Society as an whole. I will close this matter with a saddened and broken heart on behalf of Lauren. I am tired of fighting for Lauren’s rights and getting nowhere but I can say with certainty that I have tried with all I have, but there comes a time when you know you can do no more and I have reached that point”. This is just one of the many battles that we have been fighting behind the scenes, that nobody knows about and there are more.

The energy, the stress and stamina that is required to fight such needless battles is overwhelming. We are tired and exhausted but we have to go on and make the best life we can for Lauren, despite the forces that are against us. She deserves so much more, but lives in an uncaring world (for the most part, not all); that policy, protocol and agenda come first. I feel nothing but sadness for those who enforce these policies and protocol. I don’t know how they sleep at night, when they would rather protect their own agenda over that of a five year old, disabled child. And that my friend, is why we live in an unjust world!

February 4, 2019February 4, 2019

This Ugly Hell

Let me go for just five minutes, let the fetters that bind me be loosed. Let me feel that I’m okay, and not as fragile as what I feel. If I go outside my comfort zone, I won’t fall apart. What’s it like to feel ‘normal’; I can’t remember.

The day wants me to just run and run; destination unknown. There is no where I can go to escape my tumultuous mind and find relief. Sleep helps but even in my sleep, my dreams haunt me with unforgettable terror. And in my subconscious mind I know I have to awake; awake to face the fears of another day.

The Goliaths of the day seem so defeating, I have no ammunition to fight back. I’ve been beaten down once too many times. My Goliath says, ‘stay down, don’t get up.’ But I can’t give up, there are those who depend on me, I have to keep fighting, to keep going. How many times do you have to be near defeat before you just give up and say, ‘I’ve had enough?’ The Goliaths of the day are not just my illness but in my family has an whole.

This battlefield in my mind, isn’t about my spirituality but my broken mind. A mind that is frightened to death, too afraid of living but even more fearful of dying. So I’m caught in the middle, in limbo, not really living life to it’s full potential but dying a slow torturous death. But wanting life, wanting purpose, wanting to feel human.

I remember those days when my mind and body were so sick, I just wanted to die. My brain was shut down and thus my body couldn’t function either. I was sick of trying medications that were of no benefit, giving me no reprieve, no hope. ECT (Electro Convulsive Therapy) had diminished what little brain function I had left. When ECT failed, medications weren’t alleviating my symptoms, counselling and psychotherapy were not earth shattering but nothing that could really free my dying mind.

Life as never been the same and in all likelihood will never be the same again. We have experienced many life altering traumas. Every day of my journey of living with a mental illness, is a constant battle; a war that never ends. But learning to live with this broken mind is my only hope of surviving. I can put no dependence in the medical field to cure me (there is no cure) or even come close, nor do I expect someone else to take my pain.

Most days I feel I’m surviving because I have an hope in my Creator and there are days when I feel nothing at all. But it’s those days that I hope in God that I feel I will survive this. I feel sad for people who are in my situation and suffer from a mental illness and have no hope at all. Where do they go? What do they do? Who do they turn to? I have hope because I have to believe there is a greater power then myself. And He will see me through, even when I feel hopeless, when I feel helpless, when I feel all alone, when I feel defeated. I do have the hope that He is there with me and that keeps me going; one day at a time.

Many may say, ‘but you are a born again Christian. Why or how can you be feeling this way?’ It’s because when you become Christian you are not exempt from sickness. Jesus didn’t promise a life without trials and tribulations; what He did promise was to be with us through these storms and hardships. So I have to have faith that He is with me at all times, even when I am having a really bad day. Others may be thinking,’ but you have a beautiful family; a wife and two beautiful children. I do and I love them dearly but I also have an illness. For those who just don’t get it, that’s okay, maybe one day you will fall into the pit of depression and then you will know what I’m talking about, but I would not wish that for you; but none of us are exempt. It’s because I have a wonderful family that I fight so hard to be well. If I had cancer, I would do the same. I would fight with everything I have in me to beat it. But sometimes we can fight and feel like we are loosing the battle.

Many days I live in fear that I would have a relapse. But I try not to dwell on the ‘what if’s’ but live by faith, that the mercy and grace of God will see me through. Romans 8:37 ‘In all these things we are more then conquerors through Him that loved us’. So, I am a conqueror, I will fight, I will not give up! If you are reading this and you are suffering and in pain, let me encourage you today to put your trust and faith in the God who cannot fail.