It’s National AccessAbility Week (NAAW) 2024, May 26-June 1 and is a nationwide week of recognition that celebrates the many social, economic and cultural achievements of persons with disabilities. The theme for this year is: “Forward Together: Accessibility and Inclusion for All”. Then there’s the Red Shirt Day, this is an Easter Seals initiative and was first celebrated in 2019. It takes place on the Wednesday of NAAW each year. Red Shirt Day for accessibility and inclusion is a day when people across Canada come together and wear red to create a visible display of solidarity to show their support for disabled people and their families, celebrate the achievements of disabled Canadians and to pledge their commitment to help create a fully accessible and inclusive society.
This is all wonderful and we so appreciate this nationwide week of recognition. But we are not living in a perfect world and sometimes, more then not, this world can be cruel, discriminating, judgmental and uncaring. Accessibility and inclusion are for the most part not at the forefront of our society. We can say this because Lauren as been the recipient of such injustices on many occasions. The minute Lauren steps foot outside our door, or should I say, ‘the wheels of her wheelchair’; then the reality of just how inaccessible and non-inclusive our society and system really are. And this is why we decide on this particular Wednesday, to NOT wear red, in recognition of this injustice to disabled persons. The theme for this year; “Forward Together: Accessibility and Inclusion for All”, sounds great if it were only true.
In this blog I will certainly give praise and applause where it is do but I will also give you some astounding and shocking illustrations of just some of the injustices that we have encountered during Lauren’s years of struggling with this disability. I was just about to disregard this whole blog and throw it in the garbage. I thought, ‘what’s the point?” I have advocated for years and it seems I get nowhere; only exhausted and frustrated. But this will be my last and final blog on this topic, I’m tired and rather then putting my energy into a fight that I know I will never win; I will put my energy into giving Lauren the best life that I can, in spite of everything else.
I will list the non-profits and organizations that we are so thankful for and have helped us to make Lauren’s life just a little bit easier. I cannot elaborate on these because it would take forever. But we are so thankful for: Easter Seals, CNIB, APSEA, Rainbow Riders, The Shriners Children’s Hospital and The Children’s Wish Foundation.
But, sad to say I could write a book on the lack of accessibility and inclusion within our own province and society of NL. I will elaborate on just a few, just to give you an idea of what we deal with on a daily basis.
One very important issue would be accessible public washrooms. You would be amazed at the number of washrooms that are ‘not’ accessible, to a point where, if Lauren needed to use the washroom, then we would have to take her home or take her to another establishment that provided an accessible washroom that she could use. It is appalling to me, in 2024 that we still are dealing with this issue; sometimes it’s easier to find an “Outhouse”.
Then there’s parking!! OMG!! Yes you may find the ‘limited’ blue handicap parking spaces that are so misused it is shameful. One example, if I am driving our van and Lauren is ‘not’ in the van; that doesn’t give me the right to park in the blue zones just because I have the sign in my van window. I will park in a regular parking space. I could go on and on with examples of parking incidents but one is sufficient to make my point.
A very important violation of Lauren’s rights to accessibility and inclusion and is very near to our hearts are community and school playgrounds. The closest that Lauren can access her school playground is, she can get to the gate/entrance. When outside play is supposed to be a big part of our children’s curriculum; then where is Lauren supposed to play? The Dept. of Education puts absolutely no thought into inclusion and accessibility when designing playgrounds for ALL children. To my knowledge there is not a school playground in this province that is totally accessible. Very sad!
Many organizations, clubs, associations, leagues or specific groups are not at all accommodating if you have a disability. One such club in particular, knowingly discriminated against Lauren because she was disabled and offered us $2500(which we did not accept) to keep quiet. I have the written proof of this transaction but we could not bring a lawsuit against them because we didn’t have the financial means to do so. We had no choice but to cut all ties, communication and correspondence because of the immense about of stress that the whole situation brought into our lives.
As any parent would, no matter the ability or disability of your child; you want only the best for them. But when you have a child that is not on the ‘normal scale” of what society defines as “normal”, then you are in for a not so pleasant journey. You will be confronted with many obstacles, hurdles, roadblocks and barriers that you would have never otherwise encountered.
We will wear red everyday for our precious Lauren, 365 days a year!