Who Am I Today?

After living a lifetime with a mental illness and not knowing what it was, makes it hard to describe who I am today. I’m still trying to figure out who that person was back there. A time when mental illness wasn’t even looked upon as even an illness. Nobody really knew what it was, it was just that, ‘IT’. But after living with ‘it’ for all my life, I believe I have some insight into what ‘it’ is and who I am.

‘IT’ is most definitely, beyond question, an illness. Looking back over the years I can see now, what was wrong with me, I was ill. As a little boy I remember experiencing extreme anxiety, due to worry. I worried that my Mom and Dad were going to die. My two younger brothers were going to get lost in the woods, drown by falling off a wharf or just not come back home. School, for me, was a source of anxiety that no child should have ever had to endure. But no one knew how to help or what was even wrong. Let alone being diagnosed with a mental illness. But that was exactly what was going on; my brain was not processing the information it was receiving properly, my signals were misfiring as it were.

At a very young age I remember being sad, alone, inadequate, unworthy, scared, etc. Back then i didn’t know what those emotions were but looking back; I do now. When I look at my Grade one school picture, I see a sad little boy, I can see pass the sad, dark eyes into the mind of a very disturbed and fragile little boy; who felt lost in the crowd. But how could such a young little boy be having those very adult emotions? My only explanation that I could find was that it was in my genes and I was predisposed to this illness from my conception until this present day.

This present day, now where does that bring me? ‘It’ still follows me everywhere I go, it’s in my dreams, my crowded thoughts, it’s forever present; even when my thoughts are distracted, eventually ‘it’ comes back. I long for freedom, for that morning when I can get out of bed and not have the dread of ‘it’ following me around all day. A day when I can just enjoy life and not be tormented and weighed down by this thing I call ‘it’.

So who am I today? Not much different then that little boy, all those years ago. I still have many fears, inadequacies, insecurities, worries, etc. But since those days I sure have learned a lot about ‘it’. I have learned to accept my mental illness for what it is; an illness. And on days when I’m not feeling so good, panic strikes and thoughts of a relapse arise; I tell myself, ‘I got this’, I’ve been down this road before and I will get over this ‘hump’ again. Through the years I have learned various coping skills that ‘usually’ help get me through that rough spot.

But I believe today that the years of struggling and dealing with this illness has taken it’s tole on me in all areas of my life. Physically it has exhausted me to a point of being overwhelming; I fight to keep moving, then there are times when I just have to give up and sleep. And with that comes the feeling of guilt, that I should be able to keep going. Mentally the trauma of my illness has left me with memory loss, loss of train of thought, mental fog and lack of concentration. All of which make it difficult for me to live a normal functioning life. Then Spiritually it as prompted me to question why I was never healed, right now I don’t have an answer to that question. But I am willing to leave it up to God, He knows best.

So here I am looking at the big picture, a lifetime of mental illness. I now see that there’s no different in living a lifetime with diabetes, heart disease,  or kidney disease. I am not exempt from illness anymore then the next person. So I accept my lot in life; but I have to pray for God’s grace, strength and mercy for each new day. When in my finite mind I can’t see how I can get through the next day or how I can put one foot in front of the other. I trust in an infinite God and He will see me through and will never leave me alone.

So in answer to the question of ” Who am I today?. I am the same person that I always was and is and will ever be. My DNA is still the same. Just with a lot of battle scars, mountains to climb and rivers to cross. But I will be the best that I can be with what I have!

Depression, I Hate You!

Depression, I hate you!                                                                                                                         Why can’t you just leave me alone?                                                                                             Why don’t you ever go away?

I hate that when I’m sad, people mistaken it for anger                                                        When really I’m so sad that I can’t find my happy                                                                  Where have you gone?                                                                                                                        I miss you so much.

I am angry                                                                                                                                                   Angry at depression                                                                                                                             Angry at what it has done to my life

You have stolen from me                                                                                                                     I hate the way you twist and distort my thoughts                                                                 You fill my head with ugliness.

I hate that there’s no cure                                                                                                                  But I need to escape this hell so desperately                                                                           Even though I try,                                                                                                                                   I fight every day;                                                                                                                                     every single day!

Depression, I hate you!                                                                                                                         You steal, you lie                                                                                                                                     You cover up the good and I can’t find it.

Give me back my life                                                                                                                             My days I have lost                                                                                                                                  The years I have lost                                                                                                                            I have missed so much                                                                                                                       And I hate you because I can never get it back.

Give me back the person I want to be                                                                                          The person I was before you destroyed me                                                                             Before you changed who I am.

I am so exhausted and tired                                                                                                              That makes me impatient with others and with me                                                             That’s not fair!

Depression, I am angry                                                                                                                        I am tired, I am sad                                                                                                                                 I hate you,                                                                                                                                                    I hate you,                                                                                                                                                 I  HATE YOU!!!!!

Lauren’s Journey Of Hope

Its Laurens’ fourth visit to the Children’s Shriners Hospital in Montreal. This visit is filled with worry, uncertainty, apprehension but also with hope. This visit is off to a bad start already because Lauren now has two dislocated hips and that concerns us very much. The rhizotomy surgery that we are hoping for Lauren to have (which right now is her only hope of walking or having some form of mobility) is right now looking very bleak because the surgery requires the patient to have two good hips and that is not Lauren’s case.

The day began with my alarm arousing me out of my sleep into reality. Lauren and I go and make sure Mommy and Bruddy are out of bed; we don’t want to leave anybody ‘Home Alone’. Everybody gets ready and off we go in our van to the St.John’s Airport. It’s kind of icy but the road is okay.

We had a 5-6 hour stop over in Halifax which made for a very long day. But to brighten our day; Aunt Mary, Rochelle and Ben came to visit us at the airport which was so nice to see them again.

Now we’re off to Montreal, Sissy is going strong (no nap yet today), Bruddy is sleeping soundly.

We have arrived in Montreal and had a very, well deserved rest/sleep at our Hotel. Morning came too soon, the uncertainty of what the day could/will bring is overwhelming. But off we go to the Hospital.

X-rays are done first, she was really good. Then the orthopedic surgeon, Dr Canten, came to talk to us. I just hate being kicked in the guts and our hopes being crushed at the same time. She told us Lauren will need both hips reconstructed at separate times. Can’t do both together, she would lose too much blood and too stressing on her body. Then she said, ‘rhizotomy’ was  not an option at all. This was not what we wanted to hear. How can we has parents accept that the one hope of her walking is taken from us? We just felt like leaving and coming home but of course we can’t do that, maybe the day will get better.

Now  it’s off to the 2nd floor for Occupational Therapy and Physio Therapy. Well that was a waste of time. Lauren did not cooperate and just cried through the whole thing. No fault of her’s, she was just exhausted and scared and so were we. They certainly didn’t get a true picture of the real Lauren.

We were receiving some very bad vibes, we knew this was not going in our favour; call it parent intuition. We reluctantly moved to assessment room #1, where we would meet with Dr. Farmer…..he held all the cards. He spoke words we did not want to hear, this is not the way it was supposed to go. Before anything else could be done for Lauren, she has to begin another new medication for dystonia ( clubbing and twisting of her hands, etc). Left and right hip and pelvic reconstructive surgeries done at separate times. Then a baclofen   pump to be surgically placed under the skin, which will help reduce some spasticity. The rhizotomy surgery was certainly not on the top list of options.( I had to stop writing here, I could not see the keyboard for tears. Am I dreaming or is this reality? Are we talking about my little girl, so innocent, so fragile. She doesn’t deserve this, her life is just beginning. Where’s the fairness? God help us to make sense of it all).

This was a lot of information to analyze and accept. So we just couldn’t take anymore and asked if it were okay to go back to our Hotel, which we did.

Now we are back on the ‘Rock’, feeling no further ahead then when we started. How can we put Lauren through this horrible chain of surgeries? Most parents are devastated when their child falls and scratches their knee. And then bad enough are the surgeries but with the hip surgeries she will have to be placed in body casts. In this case, ignorance would be bliss, but we know all to well what a body casts involves.

It’s confirmed today that Lauren’s first hip surgery will be done on March 28th. New medication, artene, for dystonia, will begin next week.

Our hearts are heavy as we try to keep our chins up and shoulders back. Bottom line is Lauren’s life will revolve around surgeries and procedures trying to fight an ugly condition that bears the name Cerebral Palsy.

SUICIDE

                                                         The most hushed word in the English language, I believe, is the word; SUICIDE! Why are we has a Society so afraid to discuss or even speak the word? It’s almost looked upon has a curse word, a bad word, even when spoken it should be whispered. But after reading this blog I hope our thinking, understanding and compassion toward suicide will take on an whole new perspective and we will see it in an whole new light.

Suicide brings up many questions but few answers. It is my intention to give some of my insight, my opinions into this silent killer. It is my hope that through this blog I may encourage someone that is contemplating suicide to think twice, give yourself another chance, you are worth it, there is hope, someone will listen if you would just reach out.

I have to admit this is not easy for me to do. I would rather not talk about it either, if I had a choice, but what good would that do? My whole purpose in blogging is to help others who are surrounded by this darkness and torment; therefore I have to speak out. It’s our only hope of finding the light and making the sun to shine again.  I remember so vividly when I was at the acute stage of my illness, when there was no hope in sight; all I wanted to do was die and end this hellish existence for everyone concerned.

“Committed Suicide”! Committed brings to mind something bad someone did willfully. It is not my belief that someone who dies of suicide does so willfully. As defined by Google, the word, ‘commit’ means ‘to perpetrate or carry out a mistake, crime or immortal act. You ‘commit’ a crime. Therefore this is a term I try not to use when referring to suicide. Rather than say, ‘someone committed suicide’, it’s more appropriate to say, ‘died from suicide’. Someone who died from suicide did not willfully choose to take their life; if they felt they had a choice they  would choose life. They have reached the point where nothing makes sense anymore. Having no life at all is better than the life they have. Your distorted thinking convinces you; your life is worthless and everyone would be better off without you. You are so exhausted from fighting this battlefield in your mind, that you just can’t fight anymore. When my Dad was dying, some of his last words were, ‘I just want peace’. Dad found that peace from his fight with cancer and is now at rest; no more fighting. The same is true for someone fighting a mental illness, they just want peace. Your voice of reason is gone.

                                                        You may be asking, ” why would you want to talk about suicide so openly and publicly?” And I would ask, ‘Why not?” This is one of the most alarming epidemics facing our society today. And you want me to be quiet about it? I don’t think so! God is at work here! The statistics speak for themselves. “In 2009 there were 3,890 suicides in Canada”. According to the World Health Organization, “Close to 800,000 people die to suicide every year. That works out to be around one person every 40 seconds”.’ In 2015 there were an estimated 788,000 suicide deaths worldwide’. In 2017 this statistic is growing at an alarming rate and will only keep growing. And that is why we have such an alarming drug and alcohol abuse problem in our society today. People will turn to anything to dumb the pain. They are afraid to talk about the way they are really feeling, due to the shame this illness brings, people will think you’re weak, the stigma, the ignorance of not knowing or not understanding this illness; forces many to suffer in silence. And to that person who is suffering in silence, I would say, ‘you are not alone’. There is hope and peace to be found again. I struggle with this everyday, but I see light through the cracks, glimmers of hope in the depths of despair. We can and will get through this.

If you are someone who have lost a loved one through suicide; there are never going to be enough words for me to help you understand, to take away the pain, to make sense of it all, to dry your tears or to help heal your broken heart. But let’s begin by saying, ‘this is not your fault, there is nothing that you could have done or didn’t do’. Your loved one was very, very ill and I believe something in their brain went terribly wrong and therefore at the point of ending there life; they felt no hope, no way of escape, they wanted to unburden their loved ones of the misery that their illness had brought to their family. Know now that they are finally at PEACE and they did this to free themselves and you of this horrible, horrific disease. Do not be ashamed or angry; it was their illness that forced them to do this. But rest assured they are now, FINALLY, at PEACE.

I believe that society has come  a long way, when it comes to the way people look at mental illness/suicide. The walls of stigma and ignorance (not knowing) have somewhat come down. But we still have a long way to go. If you are wondering, well what can I do? My answer would be to educate yourself on what mental illness is, have a better understanding, an open mind and to forget some of the myths, lies, primitive ideas that we have been raised to believe surrounding mental illness and suicide. For example, years ago suicide victims were automatically sent to hell and their bodies would not be buried in a consecrated Church cemetery but were buried on the outside. Now how primitive, self righteous, judgemental and disgraceful can a culture and society be, in order to do such a thing. May God forgive them “for they know not what they do.” Thankfully we have moved forward and have respect for all the deceased; for God is our eternal judge.

One of the best things we can do for someone who is contemplating suicide is to LISTEN.  Listen and show you care, reassure them that it’s going to be okay. Sometimes the best advice we can give, is as little as possible. Sometimes when we have all the right motives in mind and we mean well; we can say exactly what someone that is suicidal does not want to hear. So…listen, love, and never leave that person alone; be there for them. And suggest that maybe they visit a mental health professional or their family doctor, but never without their consent, no surprises. Just be there….

I believe with our limited mental health care in NL the church needs to play a role in helping victims and their families in dealing with suicide and mental illness. To begin that process the Church needs to make its stand on just what they believe concerning mental illness and especially suicide. But the church’s stand on suicide is certainly not clearly defined as of today. If it were it would certainly help in the grieving process for those who  have lost a loved one through suicide. Some Churches have taught that a suicide victim was/is automatically going to hell. It is my belief that it is not clearly stated in scripture the fate of a suicide victim, and therefore we are not in a place to make such a statement. I conclude therefore that the fate of any soul, whether death by suicide or death from any illness, can “only” be decided by God. As believers it is not our responsibility to play judge and jury. But instead, our calling is to bring comfort, mercy, and love to all those affected by suicide and leave the rest to God.

Today I consider myself an advocate for mental illness. I am not a medical professional, nor do I have all the answers but my lifetime with a mental illness has given me experience, wisdom and knowledge that I would have never obtained otherwise. I have insight into what this illness can do, how it affects the individual themselves,their families and their caregivers. This illness can destroy marriages, friendships, relationships and lives. It is my prayer that I could be used to help others , bring healing to the hurting and restoration to the broken. I am a vessel that’s broken, but daily I am putting the pieces back together and you can too.

My Recovering Journey of Faith

I am a recovering mentally ill person; no I didn’t say I was a recovered mentally ill person.  Just like an alcoholic can never say, “I am recovered, but I am a recovering alcoholic”. I believe the same is true for someone who has a medically diagnosed mental disorder. I can never say I was fully recovered, yes there were times when I was fully, functioning, ‘normal’ person but my illness has been a lifetime journey. It’s almost like you go into remission, but for me, I had many relaspes throughout my lifetime. Some mild, some severe and some in between. But all a fighting battle.

This recovering journey is never linear.. What I mean by that is my symptoms and mood are never on a straight plain. It’s more like a roller coaster, there are many ups and downs, you are never on a level plain. Some days you could be doing fairly well and others you could be ready to jump out of your skin. Just last week my illness overwhelmed me with feelings of exhaustion and my brain was overcrowded with unwanted thoughts that I had no control over. But today I’m feeling a little more empowered and start my uphill climb once again.

This journey is rarely a walk in the park, it’s more like climbing Mount Everest. Some days you are weak has a rat and more days you feel like you can climb; one step at a time. But the encouraging thing is; you are moving, even if it is in baby steps. It’s like the saying, ‘You can eat an elephant, one mouthful at a time.’ And so you can climb this “Mountain of Depression and Anxiety”, one footstep at a time. If you are reading this and you are saying, ‘but I can’t do this anymore, I am just too exhausted.’ Trust me; “YOU CAN”! You are stronger then you think.

Where is my strength coming from, where is your strength going to come from? I remember when I had my last relapse; I searched for healing, my wellness, my escape from this hellish disease from without. I was searching for someone or something to “make” me better. But that never happened, I was at a dead end, I had tried EVERYTHING. But it wasn’t until I searched within myself that I found a strength that I didn’t know existed. But I still take it one day at a time, that’s all we have. Yesterday is gone (so don’t dwell on it) and we are not promised tomorrow (so don’t worry about it). Live in the moment, it’s what we have.

My treatment/therapy now consist of medication (which I know is crucial to my mental health), learning to accept my limitations (my new normal), having structure in my day (a routine), limiting stress as much as I can (sometimes that’s hard to do given my life circumstances), always having a ‘project’ (painting, cleaning, reading, singing, etc.) and one of my favorite of all is; writing my blogs (amazing therapy). All of these elements help me cope with each day and creates a sense of who I am. I am NOT my illness, there is so much more to me then my disorder; so I refuse to be defined by depression and anxiety.

After so many years of searching for the truth of who I really am; I believe I have finally found it. There is so much more to us and to me then this physical and mental body. There is a spiritual component that we have to tap into to find real strength, real courage, and the real you, the real me. And I believe this can only come from an omniscient (all knowing), omnipotent (all powerful), and omnipresent (everywhere present) spiritual power. And there is only one person I know that possesses all three; God Our Father. He has been and still is my greatest source of strength and peace. On days when I was at my lowest, He was and is still my greatest source of stability, my rock, and my hope.

So you see, my recovering journey of faith, starts by placing my entire life into His hands. That’s hard to do because I thought I could do it on my own, what a joke that was. There are some things in life that we have no control over and have to be left with God, He is in control. So now I put my total trust and confidence in someone who is greater then I am. It sure takes a load off me and makes my journey a little easier.